1641 lines
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Text
1641 lines
115 KiB
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<p>
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<strong>Official websites use .gov</strong>
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<br/>
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A <strong>.gov</strong> website belongs to an official government organization in the United States.
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<strong>Secure .gov websites use HTTPS</strong>
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A <strong>lock</strong> ( <span class="icon-lock">
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</span>
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) or <strong>https://</strong> means you’ve safely connected to the .gov website. Share sensitive information only on official, secure websites.
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<a href="/adlp" class="usa-nav__link">Assoc Director of Laboratory Programs</a>
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<a href="/ctl" class="usa-nav__link">Communications Technology Laboratory</a>
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<a href="/el" class="usa-nav__link">Engineering Laboratory</a>
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<a href="/itl" class="usa-nav__link">Information Technology Laboratory</a>
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<a href="/mml" class="usa-nav__link">Material Measurement Laboratory</a>
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<a href="/pml" class="usa-nav__link">Physical Measurement Laboratory</a>
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<a href="/cnst" class="usa-nav__link">CNST NanoFab</a>
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<a href="/oam" class="usa-nav__link">Office of Advanced Manufacturing</a>
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<a href="/spo" class="usa-nav__link">Special Programs Office</a>
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<a href="/tpo" class="usa-nav__link">Technology Partnerships Office</a>
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<a href="/standardsgov" class="usa-nav__link">Standards.gov</a>
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<h1 class="nist-page__title">How Secure Is Your DNA?</h1>
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<div class="daterange"><time datetime="2022-05-25T12:00:00Z">May 25, 2022</time>
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<span>By: </span>
|
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<a href="/blogs/taking-measure/authors/ronald-pulivarti" hreflang="en">Ronald Pulivarti</a>
|
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<figure class="nist-image--lightbox nist-image" data-lightbox="https://www.nist.gov/sites/default/files/styles/2800_x_2800_limit/public/images/2022/05/25/GenomicData_Cybersecurity_960x600_Option_A.png?itok=zEWpxYZj" data-media-id="644726">
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<img loading="lazy" src="/sites/default/files/styles/960_x_960_limit/public/images/2022/05/25/GenomicData_Cybersecurity_960x600_Option_A.png?itok=Xnk8QmZ9" width="960" height="600" alt="Illustration shows a pattern of repeating DNA strands with a shadowy figure in a trenchcoat and hat lurking behind. " typeof="foaf:Image" />
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</div>
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<div class="nist-image__credit">
|
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<span class="nist-image__credit-label">Credit:</span>
|
|||
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|
|||
|
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B. Hayes/NIST
|
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<h2>A closer look at cybersecurity protections for genomic data</h2>
|
|||
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|
|||
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<p>If you had asked me a few years ago about my opinion on the security of my personal information, my response would have centered around my Social Security number or my credit card information. Like many of my federal colleagues, I have been impacted by several major data breaches involving government and commercial databases. Needless to say, it was not a fun experience and caused my mind to wander with worry, which kept me up at night wondering: Will this breach hurt my credit rating now? How will this impact me later when I retire? I enrolled in the offered free credit monitoring tools and do my own credit checks, but I still do not completely have that warm fuzzy feeling of being protected. However, as bad as my experience has been with those breaches, I shudder to think of the concerns of people who have had their personal health information compromised!</p>
|
|||
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|
|||
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<p>Our society is increasingly generating and relying on personal data in many aspects of everyday life. A more recent category of data at risk is genomic data, an individual’s genetic information. Due to technical advances in genetic sequencing, what was once a multimillion-dollar, decade-long effort to sequence a human genome now takes less than a week to complete and is a <a href="https://www.genome.gov/about-genomics/fact-sheets/DNA-Sequencing-Costs-Data">thousand-dollar endeavor</a>. This data is being used by researchers, corporations and, amazingly enough, everyday people, just living life.</p>
|
|||
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|
|||
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<p>I remember hearing my friend, who was adopted, share with me that she submitted her sample to a direct-to-consumer DNA testing provider to learn about her health information and family heritage. Sounds simple, right? Nope, not at all. Hearing my good friend talk about what she went through to find out what types of illnesses she may experience during her lifetime triggered me to think about a few things. My process to get this information involves a conversation with people I know and trust. Her process required her to have another data type in a database, vulnerable to an unknown number of breaches. Yet there are no monitoring tools that can minimize the feelings that still haunt me from my own breach experiences. </p>
|
|||
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|
|||
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<div class="nist-callout">
|
|||
|
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<p><em>There are real risks with genomic data if it falls into the wrong hands, such as the ability to discriminate against me or my children, create biological weapons or thwart businesses that rely on genomic data.</em></p>
|
|||
|
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</div>
|
|||
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|
|||
|
|
<p>Credit cards, Social Security numbers, health information, genomic information. Data put into the world of information storage is always at a risk. It all needs to be protected … but I wondered if the same cybersecurity methods apply to each type of data. </p>
|
|||
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|
|||
|
|
<p>Given my profession, I am fortunate to have an understanding of cybersecurity principles that many laypeople do not. Throughout my career in multiple federal government agencies, I have worked in information technology organizations and been able to be part of teams and task forces responsible for identifying cybersecurity risks and mitigating those issues. </p>
|
|||
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|
|||
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<p>Currently, in my role as a principal investigator at the National Institute of Standards and Technology (NIST) National Cybersecurity Center of Excellence (NCCoE), I am leading a project that is exploring an important question: Is genomic data distinct from other data types? How should cybersecurity protection be tailored to genomic data?</p>
|
|||
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|
|||
|
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<p>In August 2021, at the request of Congress, the NCCoE embarked on an effort to answer these questions. We created an interdisciplinary team that included NIST employees, subject matter experts from MITRE and members from both the University of Alabama in Huntsville and the HudsonAlpha Institute for Biotechnology, also in Huntsville. This team is examining the question of what is unique about genomic data, discovering the most common and pressing cybersecurity concerns specific to this data, and identifying and providing guidance around security and privacy practices to help protect it.</p>
|
|||
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|
|||
|
|
<p>As a first step, we hosted the <a data-entity-substitution="canonical" data-entity-type="node" data-entity-uuid="37552501-95fd-4762-9eb6-8c9e641ca8aa" href="/news-events/events/2022/01/nccoe-virtual-workshop-cybersecurity-genomic-data" title="NCCoE Virtual Workshop on the Cybersecurity of Genomic Data">NCCoE Virtual Workshop on the Cybersecurity of Genomic Data</a> on Jan. 26, 2022, during which we heard from 18 subject matter experts from around the world who discussed the unique challenges of securing genomic data. The speakers represented the U.S. government, public and private universities, industry and professional organizations. Speakers covered their experiences from the time data is created on sequencers through to when it is stored, shared and analyzed. We also heard from privacy experts.</p>
|
|||
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|
|
|||
|
|
<p>Here are a few things I heard that confirmed my earlier suspicions and thoughts.</p>
|
|||
|
|
|
|||
|
|
<ul>
|
|||
|
|
<li>Genomic data is indeed different from other types of data. Unlike my credit card, it can never be changed, and it can be used to disclose additional information about me like the diseases I have now or will likely have in the future.</li>
|
|||
|
|
<li>Health advances, including targeted health treatments and earlier disease detections, which I want to benefit me and my family, rely on this genomic data research.</li>
|
|||
|
|
<li>There are real risks with genomic data if it falls into the wrong hands, such as the ability to discriminate against me or my children, create biological weapons or thwart businesses that rely on genomic data.</li>
|
|||
|
|
<li>Both cybersecurity and privacy are factors when discussing securing genomic data.</li>
|
|||
|
|
<li>Challenges and vulnerabilities are not isolated to one aspect of genomic data handling. For example, once data is created using a genomic sequencer device, it is vulnerable and needs safeguards to ensure protection. </li>
|
|||
|
|
</ul>
|
|||
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|
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<p>I encourage you to look at the workshop materials posted on our website, find the topics that interest you, and then write to our project’s email address <span class="spamspan"><span class="u">genomic_cybersecurity_nccoe</span> [at] <span class="d">nist.gov</span><span class="t"> (genomic_cybersecurity_nccoe[at]nist[dot]gov)</span></span> and let us know your thoughts on what you found and what would you like to hear more about.</p>
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<p>We have a shared interest in providing the right cybersecurity for genomic data. Our future generations are counting on us to get this right! </p>
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>
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<div class="nist-tags">
|
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<a href="/blogs/taking-measure/categories/248321">Bioscience</a>,
|
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<a href="/blogs/taking-measure/categories/248346">Genomics</a>,
|
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<a href="/blogs/taking-measure/categories/249421">Information technology</a> and
|
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<a href="/blogs/taking-measure/categories/248731">Cybersecurity</a></div>
|
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<h2
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class="nist-block__title"
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>About the author</h2>
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<div class="nist-field nist-field--label-hidden entity-reference">
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<div class="nist-field__item">
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<article
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about="/blogs/taking-measure/authors/ronald-pulivarti" class="nist-teaser"
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>
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<div class="nist-teaser__image">
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<div class="entity-reference"> <a href="/blogs/taking-measure/authors/ronald-pulivarti" hreflang="en"><img loading="lazy" src="/sites/default/files/styles/thumbnail/public/images/2022/05/19/Headshot_01262022.jpg?itok=aqmnRSS9" width="100" height="75" alt="Ronald Pulivarti poses for a picture in front of an NCCoE backdrop." typeof="foaf:Image" />
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</a>
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<div class="nist-teaser__content-wrapper">
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<header>
|
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<h3 class="nist-teaser__title"><a href="/blogs/taking-measure/authors/ronald-pulivarti"><span>Ronald Pulivarti</span>
|
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</a></h3>
|
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|
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</header>
|
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<div class="nist-teaser__content">
|
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<div class="text-with-summary"><p>Ronald Pulivarti is a senior cybersecurity engineer who leads an engineering team at the National Cybersecurity Center of Excellence (NCCoE), which is part of the National Institute of Standards and Technology (NIST). He and his team promote the acceleration of businesses’ adoption of standards-based, advanced cybersecurity technologies for the health-care sector. Ron has a strong technical background and cybersecurity experience in multiple high-value-asset applications. Prior to NIST, he worked within the Department of Health and Human Services and has served in many IT leadership roles for over 20 years.</p></div>
|
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</article>
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class="views-element-container nist-block no-print"
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>
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<h2
|
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class="nist-block__title"
|
|||
|
|
>Related posts</h2>
|
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|
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<div><div class="js-view-dom-id-089d384bac60b460ed50b6ad1ebc019756567862fb710a534eca31302b890ae4">
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<article
|
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about="/blogs/taking-measure/5-concepts-can-help-you-understand-quantum-mechanics-and-technology-without" class="nist-teaser"
|
|||
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>
|
|||
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<div class="nist-teaser__image">
|
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|
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<div class="entity-reference"> <a href="/blogs/taking-measure/5-concepts-can-help-you-understand-quantum-mechanics-and-technology-without" hreflang="en"><img loading="lazy" src="/sites/default/files/styles/thumbnail/public/images/2023/10/16/tara_fortier_working_in_lab_october_2023.jpg?itok=RkM9HePP" width="100" height="67" alt="A researcher wearing safety glasses reaches into a box of circuitry and other equipment, which emits a green glow. " typeof="foaf:Image" />
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</a>
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</div>
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</div>
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<div class="nist-teaser__content-wrapper">
|
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<header>
|
|||
|
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<h3 class="nist-teaser__title"><a href="/blogs/taking-measure/5-concepts-can-help-you-understand-quantum-mechanics-and-technology-without"><span>5 Concepts Can Help You Understand Quantum Mechanics and Technology — Without Math!</span>
|
|||
|
|
</a></h3>
|
|||
|
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<div class="nist-teaser__date">
|
|||
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<div class="daterange"><time datetime="2025-02-05T12:00:00Z">February 5, 2025</time>
|
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</div>
|
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</header>
|
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<div class="nist-teaser__content">
|
|||
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<div class="text-with-summary"> Quantum is everywhere, and you can understand the basic quirks of life at the quantum level … no math required.
|
|||
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</div>
|
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<div>
|
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<article
|
|||
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about="/blogs/taking-measure/robots-and-ai-are-working-together-bring-you-better-medicines-shampoo-and-more" class="nist-teaser"
|
|||
|
|
>
|
|||
|
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<div class="nist-teaser__image">
|
|||
|
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<div class="entity-reference"> <a href="/blogs/taking-measure/robots-and-ai-are-working-together-bring-you-better-medicines-shampoo-and-more" hreflang="en"><img loading="lazy" src="/sites/default/files/styles/thumbnail/public/images/2024/12/18/peter_beaucage_afl_equipment_121024.jpg?itok=CdxapNjs" width="100" height="67" alt="Peter Beaucage wears safety glasses as he stands in the lab, holding a piece of equipment on display. " typeof="foaf:Image" />
|
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</a>
|
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</div>
|
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</div>
|
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<div class="nist-teaser__content-wrapper">
|
|||
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<header>
|
|||
|
|
<h3 class="nist-teaser__title"><a href="/blogs/taking-measure/robots-and-ai-are-working-together-bring-you-better-medicines-shampoo-and-more"><span>Robots and AI Are Working Together to Bring You Better Medicines, Shampoo and More</span>
|
|||
|
|
</a></h3>
|
|||
|
|
<div class="nist-teaser__date">
|
|||
|
|
<div class="daterange"><time datetime="2025-01-15T12:00:00Z">January 15, 2025</time>
|
|||
|
|
</div>
|
|||
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|
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|
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</div>
|
|||
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|
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|
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</header>
|
|||
|
|
<div class="nist-teaser__content">
|
|||
|
|
<div class="text-with-summary"> Products you use every day are carefully formulated in a lab. Experts at NIST are now working to revolutionize how those products are made.
|
|||
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|
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|
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</div>
|
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|
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|
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|
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</article>
|
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|
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<div>
|
|||
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|
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<article
|
|||
|
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about="/blogs/taking-measure/cybersecurity-careers-go-beyond-coding" class="nist-teaser"
|
|||
|
|
>
|
|||
|
|
<div class="nist-teaser__image">
|
|||
|
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<div class="entity-reference"> <a href="/blogs/taking-measure/cybersecurity-careers-go-beyond-coding" hreflang="en"><img loading="lazy" src="/sites/default/files/styles/thumbnail/public/images/2019/08/13/blogsmallbus.jpg?itok=4Y7K66Ac" width="100" height="63" alt="Blonde woman in black top sitting at desk with laptop across from man in blue shirt" typeof="foaf:Image" />
|
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</a>
|
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</div>
|
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</div>
|
|||
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<div class="nist-teaser__content-wrapper">
|
|||
|
|
<header>
|
|||
|
|
<h3 class="nist-teaser__title"><a href="/blogs/taking-measure/cybersecurity-careers-go-beyond-coding"><span>Cybersecurity Careers Go Beyond Coding</span>
|
|||
|
|
</a></h3>
|
|||
|
|
<div class="nist-teaser__date">
|
|||
|
|
<div class="daterange"><time datetime="2024-10-16T12:00:00Z">October 16, 2024</time>
|
|||
|
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</div>
|
|||
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|
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|
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</div>
|
|||
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|
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|
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</header>
|
|||
|
|
<div class="nist-teaser__content">
|
|||
|
|
<div class="text-with-summary"> You don’t have to be a coder or have a technical background to work in cybersecurity. Learn about the career stories of three of our NIST cybersecurity
|
|||
|
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|
|||
|
|
</div>
|
|||
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|
|||
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</div>
|
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|
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|
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|
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|
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|
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|
|||
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<h2
|
|||
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|
class="nist-block__title"
|
|||
|
|
>Comments</h2>
|
|||
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|
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|
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<section>
|
|||
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<article data-comment-user-id="0" id="comment-107796" class="nist-comment js-comment">
|
|||
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|
|||
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<footer class="nist-comment__info">
|
|||
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<p class="submitted">
|
|||
|
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<span class="nist-comment__author"><span lang="" typeof="schema:Person" property="schema:name" datatype="">Eduardo Luis Aprea</span></span>
|
|||
|
|
on
|
|||
|
|
<span class="nist-comment__date">May 26, 2022 10:52 AM</span>
|
|||
|
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<mark class="hidden nist-comment__new" data-comment-timestamp="1653586414"></mark>
|
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</p>
|
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|
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|
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<div class="nist-comment__permalink"><a href="#comment-107796">Permalink</a></div>
|
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|
|||
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<div class="nist-comment__content">
|
|||
|
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<div class="text-long"><p>El genoma humano esta estrechamente vinculado con las huellas dactilares, algo sorprendente, no existe en los millones de seres humanos de este planeta, que tengan igual huella dactilar.</p>
|
|||
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|
|||
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|
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<ul class="links inline nist-comment__links">
|
|||
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|
|||
|
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<a href="/comment/reply/node/1703606/comment_node_blog/107796">Reply</a></li></ul>
|
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|
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|
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<article data-comment-user-id="0" id="comment-107801" class="nist-comment js-comment">
|
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|
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<footer class="nist-comment__info">
|
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<p class="submitted">
|
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|
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<span class="nist-comment__author"><span lang="" typeof="schema:Person" property="schema:name" datatype="">Eduardo Luis Aprea</span></span>
|
|||
|
|
on
|
|||
|
|
<span class="nist-comment__date">May 26, 2022 10:53 AM</span>
|
|||
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<mark class="hidden nist-comment__new" data-comment-timestamp="1653586397"></mark>
|
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|
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|
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<div class="nist-comment__content">
|
|||
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<div class="text-long"><p>Gracias</p>
|
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|
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|
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|
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<article data-comment-user-id="0" id="comment-107806" class="nist-comment js-comment">
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|
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<p class="submitted">
|
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<span class="nist-comment__author"><span lang="" typeof="schema:Person" property="schema:name" datatype="">Terrence Thompson</span></span>
|
|||
|
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on
|
|||
|
|
<span class="nist-comment__date">May 26, 2022 10:54 AM</span>
|
|||
|
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<mark class="hidden nist-comment__new" data-comment-timestamp="1653586394"></mark>
|
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|
|||
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<div class="nist-comment__permalink"><a href="#comment-107806">Permalink</a></div>
|
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|
|||
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<div class="nist-comment__content">
|
|||
|
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<div class="text-long"><p>Another very informative article</p>
|
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|
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<article data-comment-user-id="0" id="comment-107811" class="nist-comment js-comment">
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|
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<span class="nist-comment__author"><span lang="" typeof="schema:Person" property="schema:name" datatype="" content="Justice for victims of abuse">Justice for victims of abuse</span></span>
|
|||
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on
|
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|
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<span class="nist-comment__date">May 26, 2022 1:18 PM</span>
|
|||
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<mark class="hidden nist-comment__new" data-comment-timestamp="1653586491"></mark>
|
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|
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|
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|
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<div class="text-long"><p>I am highly concerned about a large amount of genetic data being collected, harvested, and shared all through the world, and the changes in privacy legislation to be able to use that genomic data forever. I help victims of abuse relocate and change their names. Abusers can locate them, especially those that are connected to crimes and skip tracers and government. In addition, once the DNA is collected under "implied consent" or someone just does not read consent, and the GDPR changes, then yes, injections can be created to kill a certain selection of the world population. People are being fooled that the collection of their DNA or genetic code to their postal code is a good thing. It is a dangerous plan. As you stated which is true: There are real risks with genomic data if it falls into the wrong hands, such as the ability to discriminate against me or my children, create biological weapons or thwart businesses that rely on genomic data.</p>
|
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|
|||
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<article data-comment-user-id="0" id="comment-107816" class="nist-comment js-comment">
|
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<span class="nist-comment__author"><span lang="" typeof="schema:Person" property="schema:name" datatype="">Gebregziabher Daniel</span></span>
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on
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<span class="nist-comment__date">May 26, 2022 3:28 PM</span>
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<div class="text-long"><p>It is very interesting idea and solve a lot of problems on securing data , but if it is abused with better technology some one will control your life.</p>
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<span class="nist-comment__author"><span lang="" typeof="schema:Person" property="schema:name" datatype="">AnonymousEyEz</span></span>
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on
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<span class="nist-comment__date">June 14, 2022 5:18 PM</span>
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<div class="text-long"><p>If eye recall correctly attempting to secure your DNA is futile if living within modern society.<br />
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See YouTuber Veratasiums coverage on the matter from late 2021:<br />
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<a href="https://www.youtube.com/watch?v=KT18KJouHWg">https://www.youtube.com/watch?v=KT18KJouHWg</a></p>
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<span class="nist-comment__author"><span lang="" typeof="schema:Person" property="schema:name" datatype="">Rachel Elorriaga</span></span>
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on
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<span class="nist-comment__date">December 19, 2022 11:51 PM</span>
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<div class="text-long"><p>I can imagine how many opportunities the legal industry is already banking on with all the legal fun they can have. I just want to track my DNA and it’s use and organizing with others under the same type of traits to manage securing it. I don’t see this ever happening after already attempting to get medical records with red tape by legal requirements. Only an authorized dealer or representative by law to administer and handle securing this information and it’s use for intellectual property rights to uphold.....or some mumbo jumbo legal-lingo to retain the rights in all transactions for your protection.</p>
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<span class="nist-comment__date">September 14, 2023 12:46 PM</span>
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<div class="text-long"><p>Enjoying the blog!</p>
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<span class="nist-comment__author"><span lang="" typeof="schema:Person" property="schema:name" datatype="">Robin Simington</span></span>
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<span class="nist-comment__date">January 8, 2025 5:57 PM</span>
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<div class="text-long"><p>Thank you for the information and dangers of sharing DNA (God's blueprint for creation) in my opinion. I have a local hospital that is asking for volunteers for Geonomix testing through a local facility. They are explain some of the same reasons why this would be a game changer for the same reasons that were discussed in your article. So it's a shame that something that could be a life changer for individuals con earned about there risk for diseases and such, but some nefarious creeps out here would breath this and could destroy a particular nation of peoples. So I say no way!! I'm keeping my blueprints of life.</p>
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