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id="_NBK574976_"><span itemprop="name">Communication by healthcare staff</span></h1><div class="subtitle">Babies, children and young people’s experience of healthcare</div><p><b>Evidence review B</b></p><p><i>NICE Guideline, No. 204</i></p><p class="contrib-group"><h4>Authors</h4><span itemprop="author">National Guideline Alliance (UK)</span>.</p><div class="half_rhythm">London: <a href="https://www.nice.org.uk" ref="pagearea=meta&targetsite=external&targetcat=link&targettype=publisher"><span itemprop="publisher">National Institute for Health and Care Excellence (NICE)</span></a>; <span itemprop="datePublished">2021 Aug</span>.<div class="small">ISBN-13: <span itemprop="isbn">978-1-4731-4231-2</span></div></div><div><a href="/books/about/copyright/">Copyright</a> © NICE 2021.</div></div><div class="bkr_clear"></div></div><div id="niceng204er2.s1"><h2 id="_niceng204er2_s1_">Communication by healthcare staff</h2><div id="niceng204er2.s1.1"><h3>Review question</h3><p>How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</p><div id="niceng204er2.s1.1.1"><h4>Introduction</h4><p>Good communication with babies, children, young people and the parents or carers of babies and young children is essential and it is vital for healthcare professionals to establish rapport and good communication from the very first contact and throughout healthcare. Effective communication can support children and young people to understand their health condition, treatment options, treatment plans, and reduce anxiety and fear.</p><p>Communication is also vital to ensure a thorough understanding to allow for informed consent and shared decision-making, especially in circumstances where the issues to be considered are difficult or emotional.</p><p>The aim of this review is to identify the preferred way for healthcare staff to communicate with babies, children and young people, and the parents or carer of babies and young children.</p></div><div id="niceng204er2.s1.1.2"><h4>Summary of the protocol</h4><p>See <a class="figpopup" href="/books/NBK574976/table/niceng204er2.tab1/?report=objectonly" target="object" rid-figpopup="figniceng204er2tab1" rid-ob="figobniceng204er2tab1">Table 1</a> for a summary of the population, phenomenon of interest and primary outcome characteristics of this review.</p><div class="iconblock whole_rhythm clearfix ten_col table-wrap" id="figniceng204er2tab1"><a href="/books/NBK574976/table/niceng204er2.tab1/?report=objectonly" target="object" title="Table 1" class="img_link icnblk_img figpopup" rid-figpopup="figniceng204er2tab1" rid-ob="figobniceng204er2tab1"><img class="small-thumb" src="/books/NBK574976/table/niceng204er2.tab1/?report=thumb" src-large="/books/NBK574976/table/niceng204er2.tab1/?report=previmg" alt="Table 1. Summary of the protocol." /></a><div class="icnblk_cntnt"><h4 id="niceng204er2.tab1"><a href="/books/NBK574976/table/niceng204er2.tab1/?report=objectonly" target="object" rid-ob="figobniceng204er2tab1">Table 1</a></h4><p class="float-caption no_bottom_margin">Summary of the protocol. </p></div></div><p>For further details, see the review protocol in <a href="#niceng204er2.appa">appendix A</a>.</p></div><div id="niceng204er2.s1.1.3"><h4>Methods and process</h4><p>This evidence review was developed using the methods and process described in developing <a href="https://www.nice.org.uk/article/pmg20/chapter/1%20Introduction%20and%20overview" ref="pagearea=body&targetsite=external&targetcat=link&targettype=uri">NICE guidelines: the manual</a>. Methods for this review question are described in the review protocol in <a href="#niceng204er2.appa">appendix A</a> and the <a href="/books/NBK574976/bin/niceng204er2_bm2.pdf">methods</a> supplement.</p></div><div id="niceng204er2.s1.1.4"><h4>Clinical evidence</h4><div id="niceng204er2.s1.1.4.1"><h5>Included studies</h5><p>This was a qualitative review with the aim of:
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<ul><li class="half_rhythm"><div>Understanding how children and young people, or the parents or carers of babies and very young children prefer healthcare staff to communicate with them.</div></li></ul></p><p>A systematic review of the literature was conducted using a combined search. Thirteen studies were included in this evidence review: 8 studies used semi-structured interviews (<a class="bibr" href="#niceng204er2.ref1" rid="niceng204er2.ref1">Arnott 2012</a>, <a class="bibr" href="#niceng204er2.ref2" rid="niceng204er2.ref2">Boyden 2013</a>, <a class="bibr" href="#niceng204er2.ref5" rid="niceng204er2.ref5">Heath 2015</a>, <a class="bibr" href="#niceng204er2.ref6" rid="niceng204er2.ref6">Law 2020</a>, <a class="bibr" href="#niceng204er2.ref9" rid="niceng204er2.ref9">McCormack 2010</a>, <a class="bibr" href="#niceng204er2.ref11" rid="niceng204er2.ref11">Sharkey 2016</a>, <a class="bibr" href="#niceng204er2.ref12" rid="niceng204er2.ref12">Taylor 2010</a>, <a class="bibr" href="#niceng204er2.ref13" rid="niceng204er2.ref13">Wood 2018</a>); 2 used participatory-based approaches (<a class="bibr" href="#niceng204er2.ref3" rid="niceng204er2.ref3">Curtis-Tyler 2012</a>, <a class="bibr" href="#niceng204er2.ref4" rid="niceng204er2.ref4">Gibson 2010</a>); 1 study used mixed-methods (<a class="bibr" href="#niceng204er2.ref8" rid="niceng204er2.ref8">Lowes 2015</a>); and 1 systematic review included qualitative, quantitative and mixed-methods studies (<a class="bibr" href="#niceng204er2.ref10" rid="niceng204er2.ref10">Robards 2018</a>). With the exception of <a class="bibr" href="#niceng204er2.ref10" rid="niceng204er2.ref10">Robards 2018</a>, which included studies from the US, Australia, Canada, New Zealand and Portugal, the remaining 12 studies were conducted in the UK.</p><p>The included studies are summarised in <a class="figpopup" href="/books/NBK574976/table/niceng204er2.tab2/?report=objectonly" target="object" rid-figpopup="figniceng204er2tab2" rid-ob="figobniceng204er2tab2">Table 2</a>.</p><p>The data from the included studies were synthesised and explored in a number of central themes and sub-themes (as shown in <a class="figpopup" href="/books/NBK574976/figure/niceng204er2.fig1/?report=objectonly" target="object" rid-figpopup="figniceng204er2fig1" rid-ob="figobniceng204er2fig1">Figure 1</a>). Main themes are shown in dark blue, and sub-themes in pale blue.</p><div class="iconblock whole_rhythm clearfix ten_col fig" id="figniceng204er2fig1" co-legend-rid="figlgndniceng204er2fig1"><a href="/books/NBK574976/figure/niceng204er2.fig1/?report=objectonly" target="object" title="Figure 1" class="img_link icnblk_img figpopup" rid-figpopup="figniceng204er2fig1" rid-ob="figobniceng204er2fig1"><img class="small-thumb" src="/books/NBK574976/bin/niceng204er2f1.gif" src-large="/books/NBK574976/bin/niceng204er2f1.jpg" alt="Figure 1. Theme map." /></a><div class="icnblk_cntnt" id="figlgndniceng204er2fig1"><h4 id="niceng204er2.fig1"><a href="/books/NBK574976/figure/niceng204er2.fig1/?report=objectonly" target="object" rid-ob="figobniceng204er2fig1">Figure 1</a></h4><p class="float-caption no_bottom_margin">Theme map. </p></div></div><p>See the literature search strategy in <a href="#niceng204er2.appb">appendix B</a> and study selection flow chart in <a href="#niceng204er2.appc">appendix C</a>.</p></div><div id="niceng204er2.s1.1.4.2"><h5>Excluded studies</h5><p>Studies not included in this review are listed, and reasons for their exclusion are provided in <a href="#niceng204er2.appk">appendix K</a>.</p></div></div><div id="niceng204er2.s1.1.5"><h4>Summary of studies included in the evidence review</h4><p>Summaries of the studies that were included in this review are presented in <a class="figpopup" href="/books/NBK574976/table/niceng204er2.tab2/?report=objectonly" target="object" rid-figpopup="figniceng204er2tab2" rid-ob="figobniceng204er2tab2">Table 2</a>.</p><div class="iconblock whole_rhythm clearfix ten_col table-wrap" id="figniceng204er2tab2"><a href="/books/NBK574976/table/niceng204er2.tab2/?report=objectonly" target="object" title="Table 2" class="img_link icnblk_img figpopup" rid-figpopup="figniceng204er2tab2" rid-ob="figobniceng204er2tab2"><img class="small-thumb" src="/books/NBK574976/table/niceng204er2.tab2/?report=thumb" src-large="/books/NBK574976/table/niceng204er2.tab2/?report=previmg" alt="Table 2. Summary of included studies." /></a><div class="icnblk_cntnt"><h4 id="niceng204er2.tab2"><a href="/books/NBK574976/table/niceng204er2.tab2/?report=objectonly" target="object" rid-ob="figobniceng204er2tab2">Table 2</a></h4><p class="float-caption no_bottom_margin">Summary of included studies. </p></div></div><p>See the full evidence tables in <a href="#niceng204er2.appd">appendix D</a>. No meta-analysis was conducted (and so there are no forest plots in <a href="#niceng204er2.appe">appendix E</a>).</p></div><div id="niceng204er2.s1.1.6"><h4>Quality assessment of studies included in the evidence review</h4><p>A summary of the strength of evidence (overall confidence), assessed using GRADE-CERQual is presented according to the themes below. For each of the sub-themes, the overall confidence was judged to be:</p><div id="niceng204er2.s1.1.6.1"><h5>Main theme 1: Medical information</h5><ul><li class="half_rhythm"><div>Sub-theme 1.1: Timing. The overall confidence in this sub-theme was judged to be very low.</div></li><li class="half_rhythm"><div>Sub-theme 1.2: Co-ordination. The overall confidence in this sub-theme was judged to be very low.</div></li><li class="half_rhythm"><div>Sub-theme 1.3: Amount. The overall confidence in this sub-theme was judged to be moderate.</div></li><li class="half_rhythm"><div>Sub-theme 1.4: Future. The overall confidence in this sub-theme was judged to be very low.</div></li></ul></div><div id="niceng204er2.s1.1.6.2"><h5>Main theme 2: Person not patient</h5><ul><li class="half_rhythm"><div>Sub-theme 2.1: Creating relationships. The overall confidence in this sub-theme was judged to be high.</div></li><li class="half_rhythm"><div>Sub-theme 2.2: Time. The overall confidence in this sub-theme was judged to be high.</div></li><li class="half_rhythm"><div>Sub-theme 2.3: Importance of nurse involvement. The overall confidence in this sub-theme was judged to be low.</div></li><li class="half_rhythm"><div>Sub-theme 2.4: Insensitivity. The overall confidence in this sub-theme was judged to be high.</div></li></ul></div><div id="niceng204er2.s1.1.6.3"><h5>Main theme 3: Type of communication</h5><ul><li class="half_rhythm"><div>Sub-theme 3.1: Creative and interactive. The overall confidence in this sub-theme was judged to be very low.</div></li><li class="half_rhythm"><div>Sub-theme 3.2: Behavioural. The overall confidence in this sub-theme was judged to be moderate.</div></li><li class="half_rhythm"><div>Sub-theme 3.3: Talking and listening. The overall confidence in this sub-theme was judged to be high.</div></li><li class="half_rhythm"><div>Sub-theme 3.4: Written. The overall confidence in this sub-theme was judged to be very low.</div></li></ul></div><div id="niceng204er2.s1.1.6.4"><h5>Main theme 4: Consultations</h5><ul><li class="half_rhythm"><div>Sub-theme 4.1: First impressions. The overall confidence in this sub-theme was judged to be moderate.</div></li><li class="half_rhythm"><div>Sub-theme 4.2: With and without parents. The overall confidence in this sub-theme was judged to be very low.</div></li><li class="half_rhythm"><div>Sub-theme 4.3: Actively promoting involvement. The overall confidence in this sub-theme was judged to be high.</div></li><li class="half_rhythm"><div>Sub-theme 4.4: Open and honest. The overall confidence in this sub-theme was judged to be low.</div></li><li class="half_rhythm"><div>Sub-theme 4.5: Age-appropriate. The overall confidence in this sub-theme was judged to be high.</div></li></ul></div><div id="niceng204er2.s1.1.6.5"><h5>Main theme 5: Communication with parents</h5><ul><li class="half_rhythm"><div>Sub-theme 5.1: Utilising knowledge of their child. The overall confidence in this sub-theme was judged to be low.</div></li><li class="half_rhythm"><div>Sub-theme 5.2: Support. The overall confidence in this sub-theme was judged to be very low.</div></li></ul><p>Findings from the studies are summarised in GRADE-CERQual tables. See the evidence profiles in <a href="#niceng204er2.appf">appendix F</a>.</p></div></div><div id="niceng204er2.s1.1.7"><h4>Evidence from reference groups and focus groups</h4><p>The children and young people’s reference groups and focus groups provided additional evidence for this review. A summary of the findings is presented in <a class="figpopup" href="/books/NBK574976/table/niceng204er2.tab3/?report=objectonly" target="object" rid-figpopup="figniceng204er2tab3" rid-ob="figobniceng204er2tab3">Table 3</a>.</p><div class="iconblock whole_rhythm clearfix ten_col table-wrap" id="figniceng204er2tab3"><a href="/books/NBK574976/table/niceng204er2.tab3/?report=objectonly" target="object" title="Table 3" class="img_link icnblk_img figpopup" rid-figpopup="figniceng204er2tab3" rid-ob="figobniceng204er2tab3"><img class="small-thumb" src="/books/NBK574976/table/niceng204er2.tab3/?report=thumb" src-large="/books/NBK574976/table/niceng204er2.tab3/?report=previmg" alt="Table 3. Summary of evidence from the reference groups and focus groups." /></a><div class="icnblk_cntnt"><h4 id="niceng204er2.tab3"><a href="/books/NBK574976/table/niceng204er2.tab3/?report=objectonly" target="object" rid-ob="figobniceng204er2tab3">Table 3</a></h4><p class="float-caption no_bottom_margin">Summary of evidence from the reference groups and focus groups. </p></div></div><p>See the full evidence summary in <a href="#niceng204er2.appm">appendix M</a>.</p></div><div id="niceng204er2.s1.1.8"><h4>Evidence from national surveys</h4><p>The grey literature review of national surveys of children and young people’s experience provided additional evidence for this review. A summary of the findings is presented in <a class="figpopup" href="/books/NBK574976/table/niceng204er2.tab4/?report=objectonly" target="object" rid-figpopup="figniceng204er2tab4" rid-ob="figobniceng204er2tab4">Table 4</a>.</p><div class="iconblock whole_rhythm clearfix ten_col table-wrap" id="figniceng204er2tab4"><a href="/books/NBK574976/table/niceng204er2.tab4/?report=objectonly" target="object" title="Table 4" class="img_link icnblk_img figpopup" rid-figpopup="figniceng204er2tab4" rid-ob="figobniceng204er2tab4"><img class="small-thumb" src="/books/NBK574976/table/niceng204er2.tab4/?report=thumb" src-large="/books/NBK574976/table/niceng204er2.tab4/?report=previmg" alt="Table 4. Summary of the evidence from national surveys." /></a><div class="icnblk_cntnt"><h4 id="niceng204er2.tab4"><a href="/books/NBK574976/table/niceng204er2.tab4/?report=objectonly" target="object" rid-ob="figobniceng204er2tab4">Table 4</a></h4><p class="float-caption no_bottom_margin">Summary of the evidence from national surveys. </p></div></div><p>See the full evidence summary in <a href="#niceng204er2.appn">appendix N</a>.</p></div><div id="niceng204er2.s1.1.9"><h4>Economic evidence</h4><div id="niceng204er2.s1.1.9.1"><h5>Included studies</h5><p>A systematic review of the economic literature was conducted, but no economic studies were identified which were applicable to this review question. A single economic search was undertaken for all topics included in the scope of this guideline. See <a href="/books/NBK574976/bin/niceng204er2_bm8.pdf">supplementary material 6</a> for details.</p></div><div id="niceng204er2.s1.1.9.2"><h5>Excluded studies</h5><p>Economic studies not included in this review are listed, and reasons for their exclusion are provided in <a href="#niceng204er2.appk">appendix K</a>.</p></div></div><div id="niceng204er2.s1.1.10"><h4>Summary of studies included in the economic evidence review</h4><p>No studies were identified which were applicable to this review question.</p></div><div id="niceng204er2.s1.1.11"><h4>Economic model</h4><p>No economic modelling was undertaken for this review because the committee agreed that other topics were higher priorities for economic evaluation</p></div><div id="niceng204er2.s1.1.12"><h4>The committee’s discussion of the evidence</h4><div id="niceng204er2.s1.1.12.1"><h5>Interpreting the evidence</h5><div id="niceng204er2.s1.1.12.1.1"><h5>The outcomes that matter most</h5><p>This review focused on the preferences of children and young people in relation to communication by healthcare professionals. To address this issue, the review was designed to include qualitative data, and as a result, the committee could not specify in advance the data that would be located. Instead, they identified the following main themes to guide the review:
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<ul><li class="half_rhythm"><div>Absence of continuity of communication with staff throughout the healthcare journey in short- or long-term (e.g. staff does not explain aim or reasons for emergency procedure)</div></li><li class="half_rhythm"><div>Appropriate and multiple opportunities to ask staff questions about healthcare condition and treatment options,</div></li><li class="half_rhythm"><div>Avoiding use of medical jargon</div></li><li class="half_rhythm"><div>Importance of feeling a personal connection to healthcare staff</div></li><li class="half_rhythm"><div>Lack of consistency in what is communicated</div></li><li class="half_rhythm"><div>Lack of appropriately-trained staff</div></li><li class="half_rhythm"><div>Provision of interpreter</div></li><li class="half_rhythm"><div>Sensitivity of staff to personal and family circumstances</div></li></ul></p><p>The themes which emerged from the evidence review provided data relating to most of these themes, and were related to communication within a consultation setting, how medical information was communicated, the importance of communicating to a person as an individual not just as a patient, the role of communication with parents, and the best types of communication.</p><p>The committee did not prioritise any of the themes above other ones and considered all the evidence valuable in making their recommendations.</p></div><div id="niceng204er2.s1.1.12.1.2"><h5>The quality of the evidence</h5><p>The quality of the evidence for the systematic review was assessed using GRADE-CERQual, and the quality of the methodology of the individual studies was assessed using the relevant Critical Appraisal Skills Programme (CASP) checklists.</p><p>The quality of evidence ranged from very low to high. Sub-themes were generally downgraded because of the methodological limitations of the included studies. Examples of these are lack of information regarding recruitment methods or how interviews were conducted. Lack of reflexivity in data analysis was also a common limitation. Themes were downgraded for coherence in the study findings. For example, the evidence for certain themes were closely interlinked and may have lost some nuances in the synthesis and separation. Additionally, themes that were mainly identified in the systematic review (<a class="bibr" href="#niceng204er2.ref10" rid="niceng204er2.ref10">Robards 2018</a>) were also downgraded due to relevance of evidence as the population for this review included evidence from health professionals and young people aged up to 24 years old. Finally, evidence was also downgraded due to concerns about the adequacy of data, as some themes only had relatively small amounts of evidence contributing to the finding.</p><p>There was no evidence relating to babies less than 1-year-old.</p></div><div id="niceng204er2.s1.1.12.1.3"><h5>Benefits and harms</h5><p>The evidence from the systematic literature review on the theme of consultations identified that first impressions are important, and children want to be greeted in a positive and friendly manner. The committee discussed that creating a good first impression was important to ensure ongoing and effective two-way communication between the healthcare professional and the child or young person. Feedback from stakeholders suggested that recommendations should include introductions and finding out how a child or young person wished to be addressed, and the committee agreed this would be usual practice and so they included this detail in their recommendations.</p><p>There was evidence from the theme of ‘person not patient’ that children and young people wanted their healthcare practitioners to get to know them as individuals. The committee also highlighted that using people’s names was very important in creating a friendly environment. In particular, the committee agreed that it could be disrespectful or even upsetting if, when talking to other staff, babies, children and young people were referred to using their diagnosis or by a bed number instead of their name. However, there was some concern from the committee that using names of babies, children and young people between healthcare professionals could risk confidentiality in open clinical environments, such as wards, and that some caution may be needed when using both first name and surname.</p><p>There was evidence from the sub-theme of time that children and young people appreciated healthcare professionals having the time to communicate with them, and not appearing too busy to be able to do so. This was raised as a particular concern by the parents of children with communication difficulties, who reported that additional time may be required to communicate effectively with their children. There was evidence from the types of communication theme that listening was as important as talking and that healthcare professionals should take the time to build a rapport, allow children and young people to express views or feelings such as fear or embarrassment without being judged, and that healthcare professionals should respond with empathy, reassuring them that these feelings or concerns were very common. The committee agreed that all these factors were important and included them in their recommendations.</p><p>The sub-theme of insensitivity provided evidence that children and young people wanted communication to be culturally aware, take into account their feelings, and that poor communication could lead to embarrassment and distress.</p><p>Evidence from the sub-theme of age-appropriate showed that children and young people wanted communication to be tailored to their age, needs or ability to understand and the committee agreed that communication may need to change as children got older, with appropriate changes in language and vocabulary. Further evidence from the theme on types of communication showed that different forms of communication were preferred by different children and young people, and that creative and interactive methods could be useful (such as modelling dough, pictures or photos). This may be related to developmental age, but also personal preference. The committee therefore agreed that the recommendations should include discussing how a child or young person wanted to be communicated with. This was particularly important for children who had specific needs relating to communication (for example, if English was not their first language) and those who need to use other forms of communication, such as non-verbal communication, and that in cases such as this a foreign language or sign language interpreter, or other tools and specialist support such as picture boards or computer-based systems may be required. In particular, the committee were aware that for children or young people who did not communicate verbally, identifying how they indicated ‘yes’ or ‘no’ could enable direct conversations and discussions to take place with them. The committee also recognised that some parents or carers may have communication needs of their own which would need to be taken into consideration. The committee also discussed communication with babies and young children and agreed that verbal communication with babies and young children was important and could provide reassurance. Non-verbal communication such as containment holding (placing one hand around baby’s head and the other around their bottom and holding the position very still) could also be used.</p><p>The theme on communication with parents identified some conflicting evidence. Parents wanted healthcare staff to utilise the parents’ knowledge of their children to improve the healthcare experience, especially for children with communication difficulties. However, other parents said it was important for healthcare professionals to learn to communicate with their children in whatever way was necessary, and to not rely on parents or carers always being present. The committee acknowledged the importance of both of these views but did not make a separate recommendation based on this evidence as they agreed it was already covered by the recommendation on identifying the preferred form of communication for each baby, child, young person, parent or carer.</p><p>There was some evidence from the sub-theme of nurse involvement that suggested that children and young people may be more comfortable talking to nurses than doctors, and that nurses may be more patient-focused. The committee discussed that it was necessary for communication to be carried out by the appropriate person, depending on the clinical circumstances, subjects to be discussed, and preferences of the child, young person, parent or carer. The committee also discussed that different staff may have differing competence and expertise at communication, but that all staff should be trained to communicate effectively and should demonstrate competency.</p><p>The sub-theme of behavioural communication provided evidence that children and young people appreciated healthcare professionals who made eye contact, focused on them as a person, and read their behavioural cues. The committee discussed that behavioural and physical cues were important, particularly for babies and younger children or those with communication difficulties, and that healthcare professionals should be aware of these. As part of this discussion the committee also agreed, based on their experience, that parents and carers should be asked what is normal for their child in order to ascertain what non-verbal behaviour is abnormal, and that there may be occasions where children and young people do not wish to communicate, and that this should be respected, but that other multiple opportunities to discuss things should be offered.</p><p>Based on their experience, the committee agreed that children and young people want to speak to the same person whenever possible, and not have to repeatedly share their stories. As such the committee agreed that consistency in who an individual sees is important, and if this cannot be the same person, it should be the same team of healthcare professionals. Professionals should ensure that information is communicated between themselves so that trauma in repeating stories is minimised, helping towards a positive experience and helping trust to be built. However, the committee discussed that recommendations on this topic would fit better on the section of the guideline relating to coordination and continuity of care and so placed these recommendations in that section.</p><p>Over-arching messages from a number of the evidence themes related to communication being friendly, healthcare professionals being kind, and communication being two-way, with a collaborative approach. Evidence from the sub-theme on ‘honest and open communication’ showed that children and young people also appreciated being told things in a transparent and open manner. The committee agreed that communication should be undertaken in a compassionate and respectful manner at all times. The evidence also showed how children and young people appreciate receiving information in an upbeat and positive way, where appropriate. The committee acknowledged this was not always possible, as sometimes bad news must be given, but agreed that even bad news can be given in a kind and compassionate way. The committee highlighted the NICE guideline on End of life care for infants, children and young people with life-limiting conditions: planning and management as this contain recommendations and guidance on communicating with children and young people with life-limiting conditions.</p><p>As well as the evidence from the systematic review, the committee considered evidence from the national surveys of children’s experience. There was mainly positive feedback from children and young people about communication from staff, staff talking directly to them, the ease of asking questions and having them answered, and that staff listened to them. However, children and young people with disabilities recommended that staff should receive more training on how to communicate with them. The committee discussed that this evidence confirmed the evidence from the systematic review, and confirmed the recommendation on ensuring that communication was tailored to an individual’s preferred method and in a way they could understand.</p><p>As there was no systematic review evidence for babies under 1 year, the committee discussed the national survey of parents of babies on neonatal units. This showed that parents were happy that communication with healthcare professionals was good – staff introduced themselves, and were generally available to talk to parents, although the score for the availability of doctors was lower than scores for other aspects of communication. There was also evidence that parents were happy that their babies were called by their first name, which reinforced the committee’s experience. The committee did not make a separate recommendation about communication on the neonatal unit, as the key points were already included in their recommendations, which applied to all ages.</p><p>The committee also reviewed the feedback from the reference groups and focus groups relating to communication. The key messages from all the groups of different ages were that they liked healthcare professionals to be friendly and welcoming. This was mentioned several times and in different ways. They also wanted healthcare professionals to be polite, to say hello, to make eye contact and to make them feel relaxed. They also wanted healthcare professionals to have time, to ask them how they were feeling and to read behavioural cues. The committee agreed that this evidence reinforced the evidence from the systematic review. The evidence also mentioned that children and young people wanted things to be explained in a clear way, using words they could understand, and the committee agreed this had already been covered by their recommendations.</p><p>Finally, the committee discussed potential harms identified by the evidence or from their recommendations. The committee noted that poor communication from unskilled healthcare professionals could lead to a poor experience of healthcare. The committee also noted that using parents to communicate with children and young people, particularly those with communication difficulties, could impact on the privacy of the children and may even lead to safeguarding concerns in some instances.</p></div><div id="niceng204er2.s1.1.12.1.4"><h5>Cost effectiveness and resource use</h5><p>There was no existing economic evidence for this review. The committee discussed that implementing the recommendations would require healthcare professionals to have more time to communicate. In practice, this may require longer consultation times, which could create a resource impact on the health service. However, the committee noted that in many settings the recommendations represented standard practice and this is not expected to result in additional resources. The committee also discussed that ensuring all staff were competent to communicate effectively may require additional resources, although there is already various training available for staff around communication skills in the NHS.</p></div></div><div id="niceng204er2.s1.1.12.2"><h5>Other factors the committee took into account</h5><p>There was some overlap between the evidence for this review and the review on information, as some of the evidence related to the communication of information. For example, there was evidence on the use of written information to supplement verbal, the timing of information (particularly when children were very ill), the amount of information supplied, and the content of information. Recommendations on these areas had already been made by the committee and the committee reviewed these and used the additional evidence from this review to make some minor amendments to the recommendations they had already drafted on access to information.</p></div></div><div id="niceng204er2.s1.1.13"><h4>Recommendations supported by this evidence review</h4><p>This evidence review supports recommendations 1.2.1 to 1.2.16 in the NICE guideline.</p></div><div id="niceng204er2.s1.1.rl.r1"><h4>References</h4><ul class="simple-list"><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref1"><p id="p-437">
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<strong>Arnott 2012</strong>
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</p>Arnott, J., Hesselgreaves, H., Nunn, A. J., Peak, M., Pirmohamed, M., Smyth, R. L., Turner, M. A., Young, B., Enhancing Communication about Paediatric Medicines: Lessons from a Qualitative Study of Parents’; Experiences of Their Child’s Suspected Adverse Drug Reaction, Plos one, 7(10), 2012 [<a href="/pmc/articles/PMC3468607/" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC3468607</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/23071535" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23071535</span></a>]</div></p></li><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref2"><p id="p-438">
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<strong>Boyden 2013</strong>
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</p>Boyden, P., Muniz, M., Laxton-Kane, M., Listening to the views of children with learning disabilities: An evaluation of a learning disability CAMHS service, Journal of Intellectual Disabilities, 17, 51–63, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/23257112" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23257112</span></a>]</div></p></li><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref3"><p id="p-439">
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<strong>Curtis-Tyler 2012</strong>
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</p>Curtis-Tyler, K., Facilitating children’s contributions in clinic? Findings from an in-depth qualitative study with children with Type 1 diabetes, Diabetic medicine, 29, 1303–1310, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/22612727" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22612727</span></a>]</div></p></li><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref4"><p id="p-440">
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<strong>Gibson 2010</strong>
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</p>Gibson, F., Aldiss, S., Horstman, M., Kumpunen, S., Richardson, A., Children and young people’s experiences of cancer care: A qualitative research study using participatory methods, International journal of nursing studies, 47, 1397–1407, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/20430388" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20430388</span></a>]</div></p></li><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref5"><p id="p-441">
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<strong>Heath 2015</strong>
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</p>Heath, G., Greenfield, S., Redwood, S., The meaning of ‘place’ in families’ lived experiences of paediatric outpatient care in different settings: A descriptive phenomenological study, Health and Place, 31, 46–53, 2015 [<a href="https://pubmed.ncbi.nlm.nih.gov/25463917" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25463917</span></a>]</div></p></li><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref6"><p id="p-442">
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<strong>Law 2020</strong>
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</p>Law, H., Gee, B., Dehmahdi, N., Carney, R., Jackson, C., Wheeler, R., Carroll, B., Tully, S., Clarke, T., What does recovery mean to young people with mental health difficulties?-“It’s not this magical unspoken thing, it’s just recovery”, Journal of Mental Health, 2020 [<a href="https://pubmed.ncbi.nlm.nih.gov/32186236" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 32186236</span></a>]</div></p></li><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref7"><p id="p-443">
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<strong>Livesley 2013</strong>
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</p>Livesley, J., Long, T., Children’s experiences as hospital in-patients: Voice, competence and work. Messages for nursing from a critical ethnographic study, International journal of nursing studies, 50, 1292–1303, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/23332686" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23332686</span></a>]</div></p></li><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref8"><p id="p-444">
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<strong>Lowes 2015</strong>
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</p>Lowes, L., Eddy, D., Channon, S., McNamara, R., Robling, M., Gregory, J. W., The experience of living with type 1 diabetes and attending clinic from the perception of children, adolescents and carers: analysis of qualitative data from the DEPICTED study, Journal of pediatric nursing, 30, 54–62, 2015 [<a href="https://pubmed.ncbi.nlm.nih.gov/25308399" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25308399</span></a>]</div></p></li><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref9"><p id="p-445">
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<strong>McCormack 2010</strong>
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</p>McCormack, A., Norrish, S., Parker, L., Frampton, I., Consulting with young people about healthcare. Part 2: Experience of long-term health conditions, Pediatric Health, 4, 167–175, 2010</div></p></li><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref10"><p id="p-446">
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<strong>Robards 2018</strong>
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</p>Robards, F., Kang, M., Usherwood, T., Sanci, L., How Marginalized Young People Access, Engage With, and Navigate Health-Care Systems in the Digital Age: Systematic Review, Journal of Adolescent Health, 365–381, 2018 [<a href="https://pubmed.ncbi.nlm.nih.gov/29429819" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29429819</span></a>]</div></p></li><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref11"><p id="p-447">
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<strong>Sharkey 2016</strong>
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</p>Sharkey, S., Lloyd, C., Tomlinson, R., Thomas, E., Martin, A., Logan, S., Morris, C., Communicating with disabled children when inpatients: barriers and facilitators identified by parents and professionals in a qualitative study, Health expectations : an international journal of public participation in health care and health policy, 19, 738–750, 2016 [<a href="/pmc/articles/PMC5055242/" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5055242</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/25156078" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25156078</span></a>]</div></p></li><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref12"><p id="p-448">
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<strong>Taylor 2010</strong>
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</p>Taylor, S., Haase-Casanovas, S., Weaver, T., Kidd, J., Garralda, E. M., Child involvement in the paediatric consultation: a qualitative study of children and carers’ views, Child: care, health and development, 2010, 678–685, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/20337640" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20337640</span></a>]</div></p></li><li class="half_rhythm"><p><div class="bk_ref" id="niceng204er2.ref13"><p id="p-449">
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<strong>Wood 2018</strong>
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</p>Wood, D., Geoghegan, S., Ramnarayan, P., Davis, P. J., Pappachan, J. V., Goodwin, S., Wray, J., Eliciting the experiences of the adolescent-parent dyad following critical care admission: a pilot study, European Journal of Pediatrics, 177, 747–752, 2018 [<a href="/pmc/articles/PMC5899104/" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5899104</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/29468417" ref="pagearea=cite-ref&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29468417</span></a>]</div></p></li></ul></div></div></div><div id="appendixesappgroup1"><h2 id="_appendixesappgroup1_">Appendices</h2><div id="niceng204er2.appa"><h3>Appendix A. Review protocol</h3><p id="niceng204er2.appa.et1"><a href="/books/NBK574976/bin/niceng204er2-appa-et1.pdf" class="bk_dwnld_icn bk_dwnld_pdf">Review protocol for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</a><span class="small"> (PDF, 315K)</span></p></div><div id="niceng204er2.appb"><h3>Appendix B. Literature search strategies</h3><p id="niceng204er2.appb.et1"><a href="/books/NBK574976/bin/niceng204er2-appb-et1.pdf" class="bk_dwnld_icn bk_dwnld_pdf">Literature search strategies for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</a><span class="small"> (PDF, 324K)</span></p></div><div id="niceng204er2.appc"><h3>Appendix C. Clinical evidence study selection</h3><p id="niceng204er2.appc.et1"><a href="/books/NBK574976/bin/niceng204er2-appc-et1.pdf" class="bk_dwnld_icn bk_dwnld_pdf">Study selection for: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</a><span class="small"> (PDF, 113K)</span></p></div><div id="niceng204er2.appd"><h3>Appendix D. Clinical evidence tables</h3><p id="niceng204er2.appd.et1"><a href="/books/NBK574976/bin/niceng204er2-appd-et1.pdf" class="bk_dwnld_icn bk_dwnld_pdf">Evidence tables for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</a><span class="small"> (PDF, 628K)</span></p></div><div id="niceng204er2.appe"><h3>Appendix E. Forest plots</h3><div id="niceng204er2.appe.s1"><h4>Forest plots for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</h4><p>No meta-analysis was conducted for this review question and so there are no forest plots.</p></div></div><div id="niceng204er2.appf"><h3>Appendix F. GRADE-CERQual tables</h3><p id="niceng204er2.appf.et1"><a href="/books/NBK574976/bin/niceng204er2-appf-et1.pdf" class="bk_dwnld_icn bk_dwnld_pdf">GRADE-CERQual tables for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</a><span class="small"> (PDF, 295K)</span></p></div><div id="niceng204er2.appg"><h3>Appendix G. Economic evidence study selection</h3><div id="niceng204er2.appg.s1"><h4>Economic evidence study selection for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</h4><p>No economic evidence was identified which was applicable to this review question.</p></div></div><div id="niceng204er2.apph"><h3>Appendix H. Economic evidence tables</h3><div id="niceng204er2.apph.s1"><h4>Economic evidence tables for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</h4><p>No evidence was identified which was applicable to this review question.</p></div></div><div id="niceng204er2.appi"><h3>Appendix I. Economic evidence profiles</h3><div id="niceng204er2.appi.s1"><h4>Economic evidence profiles for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</h4><p>No economic evidence was identified which was applicable to this review question.</p></div></div><div id="niceng204er2.appj"><h3>Appendix J. Economic analysis</h3><div id="niceng204er2.appj.s1"><h4>Economic evidence analysis for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</h4><p>No economic analysis was conducted for this review question.</p></div></div><div id="niceng204er2.appk"><h3>Appendix K. Excluded studies</h3><div id="niceng204er2.appk.s1"><h4>Excluded studies for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</h4><div id="niceng204er2.appk.s2"><h5>Clinical studies</h5><div class="iconblock whole_rhythm clearfix ten_col table-wrap" id="figniceng204er2appktab1"><a href="/books/NBK574976/table/niceng204er2.appk.tab1/?report=objectonly" target="object" title="Table 12" class="img_link icnblk_img figpopup" rid-figpopup="figniceng204er2appktab1" rid-ob="figobniceng204er2appktab1"><img class="small-thumb" src="/books/NBK574976/table/niceng204er2.appk.tab1/?report=thumb" src-large="/books/NBK574976/table/niceng204er2.appk.tab1/?report=previmg" alt="Table 12. Excluded studies and reasons for their exclusion." /></a><div class="icnblk_cntnt"><h4 id="niceng204er2.appk.tab1"><a href="/books/NBK574976/table/niceng204er2.appk.tab1/?report=objectonly" target="object" rid-ob="figobniceng204er2appktab1">Table 12</a></h4><p class="float-caption no_bottom_margin">Excluded studies and reasons for their exclusion. </p></div></div></div><div id="niceng204er2.appk.s3"><h5>Economic studies</h5><p>No economic evidence was identified for this review. See <a href="/books/NBK574976/bin/niceng204er2_bm8.pdf">supplementary material 6</a> for details</p></div></div></div><div id="niceng204er2.appl"><h3>Appendix L. Research recommendations</h3><div id="niceng204er2.appl.s1"><h4>Research recommendations for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</h4><p>No research recommendations were made for this review question.</p></div></div><div id="niceng204er2.appm"><h3>Appendix M. Evidence from reference groups and focus groups</h3><p id="niceng204er2.appm.et1"><a href="/books/NBK574976/bin/niceng204er2-appm-et1.pdf" class="bk_dwnld_icn bk_dwnld_pdf">Reference group and focus group evidence for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</a><span class="small"> (PDF, 155K)</span></p></div><div id="niceng204er2.appn"><h3>Appendix N. Evidence from national surveys</h3><p id="niceng204er2.appn.et1"><a href="/books/NBK574976/bin/niceng204er2-appn-et1.pdf" class="bk_dwnld_icn bk_dwnld_pdf">Evidence from national surveys for review question: How should healthcare staff communicate with babies, children and young people, and the parents or carers of babies and young children?</a><span class="small"> (PDF, 174K)</span></p></div></div></div><div class="fm-sec"><div><p>Final</p></div><div><p>Evidence reviews underpinning recommendations 1.2.1 to 1.2.16 in the NICE guideline</p><p>These evidence reviews were developed by the National Guideline Alliance which is a part of the Royal College of Obstetricians and Gynaecologists</p></div><div><p><b>Disclaimer</b>: The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, professionals are expected to take this guideline fully into account, alongside the individual needs, preferences and values of their patients or service users. The recommendations in this guideline are not mandatory and the guideline does not override the responsibility of healthcare professionals to make decisions appropriate to the circumstances of the individual patient, in consultation with the patient and/or their carer or guardian.</p><p>Local commissioners and/or providers have a responsibility to enable the guideline to be applied when individual health professionals and their patients or service users wish to use it. They should do so in the context of local and national priorities for funding and developing services, and in light of their duties to have due regard to the need to eliminate unlawful discrimination, to advance equality of opportunity and to reduce health inequalities. Nothing in this guideline should be interpreted in a way that would be inconsistent with compliance with those duties.</p><p>NICE guidelines cover health and care in England. Decisions on how they apply in other UK countries are made by ministers in the <a href="http://wales.gov.uk/" ref="pagearea=body&targetsite=external&targetcat=link&targettype=uri">Welsh Government</a>, <a href="http://www.scotland.gov.uk/" ref="pagearea=body&targetsite=external&targetcat=link&targettype=uri">Scottish Government</a>, and <a href="http://www.northernireland.gov.uk/" ref="pagearea=body&targetsite=external&targetcat=link&targettype=uri">Northern Ireland Executive</a>. All NICE guidance is subject to regular review and may be updated or withdrawn.</p></div><div class="half_rhythm"><a href="/books/about/copyright/">Copyright</a> © NICE 2021.</div><div class="small"><span class="label">Bookshelf ID: NBK574976</span><span class="label">PMID: <a href="https://pubmed.ncbi.nlm.nih.gov/34730915" title="PubMed record of this title" ref="pagearea=meta&targetsite=entrez&targetcat=link&targettype=pubmed">34730915</a></span></div></div><div class="small-screen-prev"></div><div class="small-screen-next"></div></article><article data-type="table-wrap" id="figobniceng204er2tab1"><div id="niceng204er2.tab1" class="table"><h3><span class="label">Table 1</span><span class="title">Summary of the protocol</span></h3><p class="large-table-link" style="display:none"><span class="right"><a href="/books/NBK574976/table/niceng204er2.tab1/?report=objectonly" target="object">View in own window</a></span></p><div class="large_tbl" id="__niceng204er2.tab1_lrgtbl__"><table><tbody><tr><th id="hd_b_niceng204er2.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:middle;">Population</th><td headers="hd_b_niceng204er2.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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<ul><li class="half_rhythm"><div>People <18 years-old who have experience of healthcare</div></li><li class="half_rhythm"><div>Studies that use the views of parents or carers as proxies will be included only if they are responding on behalf of their child or charge, and
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<ul class="circle"><li class="half_rhythm"><div>The baby or child of the parent or carer is under-5 years-old, or</div></li><li class="half_rhythm"><div>There is a clear rationale provided as to why the study is using parents’ or carers’ views on and experiences of healthcare as proxies for their child.</div></li></ul></div></li></ul></td></tr><tr><th id="hd_b_niceng204er2.tab1_1_1_2_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:middle;">Phenomenon of interest</th><td headers="hd_b_niceng204er2.tab1_1_1_2_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Experience of healthcare, in particular communication with healthcare staff</td></tr><tr><th id="hd_b_niceng204er2.tab1_1_1_3_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:middle;">Primary outcome</th><td headers="hd_b_niceng204er2.tab1_1_1_3_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Themes will be identified from the literature. The committee identified the following potential themes (however, not all of these themes may be found in the literature, and additional themes may be identified):
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<ul><li class="half_rhythm"><div>Absence of continuity of communication with staff throughout the healthcare journey in short- or long-term (for example, staff does not explain aim or reasons for emergency procedure)</div></li><li class="half_rhythm"><div>Appropriate and multiple opportunities to ask staff questions about healthcare condition and treatment options,</div></li><li class="half_rhythm"><div>Avoiding use of medical jargon</div></li><li class="half_rhythm"><div>Importance of feeling a personal connection to healthcare staff</div></li><li class="half_rhythm"><div>Lack of consistency in what is communicated</div></li><li class="half_rhythm"><div>Lack of appropriately-trained staff</div></li><li class="half_rhythm"><div>Provision of interpreter</div></li><li class="half_rhythm"><div>Sensitivity of staff to personal and family circumstances</div></li></ul></td></tr></tbody></table></div></div></article><article data-type="fig" id="figobniceng204er2fig1"><div id="niceng204er2.fig1" class="figure bk_fig"><div class="graphic"><a href="/core/lw/2.0/html/tileshop_pmc/tileshop_pmc_inline.html?title=Figure%201.%20Theme%20map.&p=BOOKS&id=574976_niceng204er2f1.jpg" target="tileshopwindow" class="inline_block pmc_inline_block ts_canvas img_link" title="Click on image to zoom"><div class="ts_bar small" title="Click on image to zoom"></div><img data-src="/books/NBK574976/bin/niceng204er2f1.jpg" alt="Figure 1. Theme map." class="tileshop" title="Click on image to zoom" /></a></div><h3><span class="label">Figure 1</span><span class="title">Theme map</span></h3></div></article><article data-type="table-wrap" id="figobniceng204er2tab2"><div id="niceng204er2.tab2" class="table"><h3><span class="label">Table 2</span><span class="title">Summary of included studies</span></h3><p class="large-table-link" style="display:none"><span class="right"><a href="/books/NBK574976/table/niceng204er2.tab2/?report=objectonly" target="object">View in own window</a></span></p><div class="large_tbl" id="__niceng204er2.tab2_lrgtbl__"><table class="no_bottom_margin"><thead><tr><th id="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study</th><th id="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population</th><th id="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Methods</th><th id="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Themes</th></tr></thead><tbody><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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<p>
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<a class="bibr" href="#niceng204er2.ref1" rid="niceng204er2.ref1">Arnott 2012</a>
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</p>
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<p>
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<b>Study design</b>
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</p>
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<p>Semi-structured interview</p>
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<p>
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<b>Aim of the study</b>
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</p>
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<p>To identify unmet information and communication needs of parents whose child has had a suspected adverse drug reaction.</p>
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<p>Liverpool, UK</p>
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</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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<p>N=45 parental proxies of 44 babies, children, or young people
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<ul class="circle"><li class="half_rhythm"><div>Only parents of children under 5 years old are included in this review</div></li></ul></p>
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<p>
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<b>Characteristics</b>
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|
</p>
|
|
<p>Age of child (range): 0–17 years</p>
|
|
<p>Gender of child (M/F): 24/20</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>2 sampling routes
|
|
<ul><li class="half_rhythm"><div>Adverse Drug Reaction programme at UK paediatric centre</div></li><li class="half_rhythm"><div>Yellow Card scheme (UK drug surveillance system)</div></li></ul></p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Semi-structured interviews</p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Modified grounded theory</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Medical information: Co-ordination</div></li><li class="half_rhythm"><div>Medical information: Timing</div></li><li class="half_rhythm"><div>Medical information: Future</div></li><li class="half_rhythm"><div>Types of communication: Written</div></li><li class="half_rhythm"><div>Consultations: clear and Honest</div></li><li class="half_rhythm"><div>Communication with parents: Utilising knowledge of their child</div></li></ul></td></tr><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<a class="bibr" href="#niceng204er2.ref2" rid="niceng204er2.ref2">Boyden 2013</a>
|
|
</p>
|
|
<p>
|
|
<b>Study design</b>
|
|
</p>
|
|
<p>Semi-structured interview</p>
|
|
<p>
|
|
<b>Aim of the study</b>
|
|
</p>
|
|
<p>To explore the experiences of children using a local learning disability-CAMHS service, in order to produce a set of quality standards in line with Department of Health guidelines and national legal requirements.</p>
|
|
<p>Derbyshire, UK</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>N=7 children and young people</p>
|
|
<p>
|
|
<b>Characteristics</b>
|
|
</p>
|
|
<p>Age (range): 11–17 years</p>
|
|
<p>Gender (M/F): 5/2</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>Participants suggested by CAMHS team</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Semi-structured interviews</p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Thematic analysis</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Person not patient: Creating relationships</div></li><li class="half_rhythm"><div>Types of communication: Talking and listening</div></li><li class="half_rhythm"><div>Types of communication: Creative and interactive</div></li><li class="half_rhythm"><div>Types of communication: Behavioural</div></li><li class="half_rhythm"><div>Consultations: Age-appropriate</div></li><li class="half_rhythm"><div>Consultations: First impressions</div></li></ul></td></tr><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<a class="bibr" href="#niceng204er2.ref3" rid="niceng204er2.ref3">Curtis-Tyler 2012</a>
|
|
</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Participatory-based approaches, home visits, discussion groups and observation</p>
|
|
<p>
|
|
<b>Aim of the study</b>
|
|
</p>
|
|
<p>To explore the experiences of children under 10 years who live with Type 1 diabetes.</p>
|
|
<p>London, UK</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>N=17 children</p>
|
|
<p>
|
|
<b>Characteristics</b>
|
|
</p>
|
|
<p>Age (range): 4–11 years</p>
|
|
<p>Gender (M/F): 9/8</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>Convenience sampling where study invitations were sent to children’s homes and outpatient clinics. Participants self-selected to join the study.</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Home visits with participatory-based approaches, clinic appointment observation, passive observation of waiting rooms and discussion groups.</p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Ground theory approach</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Person not patient: Importance of nurse involvement</div></li><li class="half_rhythm"><div>Types of communication: Talking and listening</div></li></ul></td></tr><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<a class="bibr" href="#niceng204er2.ref4" rid="niceng204er2.ref4">Gibson 2010</a>
|
|
</p>
|
|
<p>
|
|
<b>Study design</b>
|
|
</p>
|
|
<p>Participatory-based activities</p>
|
|
<p>
|
|
<b>Aim of the study</b>
|
|
</p>
|
|
<p>To examine the views of children and young peoples on cancer care and to present a conceptual model of communication and information sharing.</p>
|
|
<p>UK (exact location not specified)</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>N=38 children and young people</p>
|
|
<p>
|
|
<b>Characteristics</b>
|
|
</p>
|
|
<p>Age (range): 4–19 years</p>
|
|
<p>Gender (M/F): 18/20</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>Paediatric cancer patients identified by clinicians, notices at parent support groups and posters in clinical areas of 3 UK Principal Cancer Treatment sites</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Three age-appropriate participatory methods used:
|
|
<ul><li class="half_rhythm"><div>Play and puppets (4–5 years old)</div></li><li class="half_rhythm"><div>Drawing and writing techniques (6–12 years old)</div></li><li class="half_rhythm"><div>Activities day and interviews (13–19 years old)</div></li></ul></p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Inductive thematic analysis</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Medical information: Amount</div></li><li class="half_rhythm"><div>Person not patient: Insensitivity</div></li><li class="half_rhythm"><div>Person not patient: Creating relationships</div></li><li class="half_rhythm"><div>Person not Patient: Importance of nurse involvement</div></li><li class="half_rhythm"><div>Types of communication: Talking and listening</div></li><li class="half_rhythm"><div>Types of communication: Behavioural</div></li><li class="half_rhythm"><div>Consultations: Age-appropriate</div></li><li class="half_rhythm"><div>Consultations: Actively promoting involvement</div></li><li class="half_rhythm"><div>Consultations: Clear and honest</div></li><li class="half_rhythm"><div>Communication with parents: Support</div></li></ul></td></tr><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<a class="bibr" href="#niceng204er2.ref5" rid="niceng204er2.ref5">Heath 2015</a>
|
|
</p>
|
|
<p>
|
|
<b>Study design</b>
|
|
</p>
|
|
<p>Semi-structured interview</p>
|
|
<p>
|
|
<b>Aim of the study</b>
|
|
</p>
|
|
<p>To explore babies, children and young people’s (and parents’) views of paediatric outpatient care, focusing on how healthcare setting may impact experiences.</p>
|
|
<p>Birmingham/West Midlands, UK</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>N=14 children and young people
|
|
<ul><li class="half_rhythm"><div>n=8 hospital outpatient</div></li><li class="half_rhythm"><div>n=6 community clinic outpatient</div></li></ul></p>
|
|
<p>
|
|
<b>Characteristics</b>
|
|
</p>
|
|
<p>Not reported</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>Purposive sampling of families in waiting area of paediatric clinic</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Semi-structured interviews</p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Descriptive phenomenology</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Person not patient: Time</div></li><li class="half_rhythm"><div>Person not patient: Insensitivity</div></li><li class="half_rhythm"><div>Consultations: First impressions</div></li><li class="half_rhythm"><div>Communication with parents: Utilising knowledge of their child</div></li></ul></td></tr><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<a class="bibr" href="#niceng204er2.ref6" rid="niceng204er2.ref6">Law 2020</a>
|
|
</p>
|
|
<p>
|
|
<b>Study design</b>
|
|
</p>
|
|
<p>Semi-structured interview</p>
|
|
<p>
|
|
<b>Aim of the study</b>
|
|
</p>
|
|
<p>To understand young people’s concept of mental health recovery.</p>
|
|
<p>East Anglia and Greater Manchester, UK</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>N=23 young people
|
|
<ul><li class="half_rhythm"><div>n=15 <18 years</div></li><li class="half_rhythm"><div>n=8 >18 years
|
|
<ul class="circle"><li class="half_rhythm"><div>Only the views of the young people under 18 years are included in this review.</div></li></ul></div></li></ul></p>
|
|
<p>
|
|
<b>Characteristics</b>
|
|
</p>
|
|
<p>Age (years, n):
|
|
<ul><li class="half_rhythm"><div>14–17=15</div></li><li class="half_rhythm"><div>18–21=5</div></li><li class="half_rhythm"><div>22–25=3</div></li></ul></p>
|
|
<p>Gender (M/F/non-binary): 4/18/1</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>Convenience sampling of 2 regional mental health services.</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Semi-structured interviews</p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Thematic analysis</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Person not patient: Creating relationships</div></li><li class="half_rhythm"><div>Types of communication: Talking and listening</div></li><li class="half_rhythm"><div>Consultations: Actively promoting involvement</div></li></ul></td></tr><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<a class="bibr" href="#niceng204er2.ref7" rid="niceng204er2.ref7">Livesley 2013</a>
|
|
</p>
|
|
<p>
|
|
<b>Study design</b>
|
|
</p>
|
|
<p>Ethnographic, including participatory activities and fieldwork</p>
|
|
<p>
|
|
<b>Aim of the study</b>
|
|
</p>
|
|
<p>To explore children’s experiences of, and knowledge about, being a hospital in-patient.</p>
|
|
<p>North England, UK</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>N=17 children and young people
|
|
<ul><li class="half_rhythm"><div>n=6 phase 1</div></li><li class="half_rhythm"><div>n=9 phase 2</div></li></ul></p>
|
|
<p>
|
|
<b>Characteristics</b>
|
|
</p>
|
|
<p>
|
|
<i>Phase 1</i>
|
|
</p>
|
|
<p>Age (range): 9–15 years</p>
|
|
<p>Gender (M/F/not reported): 3/2/1</p>
|
|
<p>
|
|
<i>Phase 2</i>
|
|
</p>
|
|
<p>Age (range): 5–14 years</p>
|
|
<p>Gender (M/F): 3/7
|
|
<ul><li class="half_rhythm"><div>Study reports that there were 9 participants in Phase 2 but provides details of characteristics for 10 participants.</div></li></ul></p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>Purposive sampling from hospital records and patients admitted to paediatric hospital study ward</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Age-appropriate home-based participatory activities (Phase 1) and subsequent field work on paediatric hospital ward (Phase 2)</p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Constant comparative method</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Person not patient: Creating relationships</div></li><li class="half_rhythm"><div>Person not patient: Time</div></li><li class="half_rhythm"><div>Person not patient: Insensitivity</div></li><li class="half_rhythm"><div>Types of communication: Behavioural</div></li></ul></td></tr><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<a class="bibr" href="#niceng204er2.ref8" rid="niceng204er2.ref8">Lowes 2015</a>
|
|
</p>
|
|
<p>
|
|
<b>Study design</b>
|
|
</p>
|
|
<p>Free-text questionnaire</p>
|
|
<p>
|
|
<b>Aim of the study</b>
|
|
</p>
|
|
<p>To examine experience of children and adolescents living with and managing Type 1 diabetes, and attending specialist paediatric diabetes services</p>
|
|
<p>Nationwide, UK</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>N=518 children and young people completed baseline questionnaires
|
|
<ul class="circle"><li class="half_rhythm"><div>n=259 in intervention group</div></li><li class="half_rhythm"><div>n=259 in control group</div></li></ul></div></li><li class="half_rhythm"><div>N=390 children and young people completed 1 year follow- up questionnaires:
|
|
<ul class="circle"><li class="half_rhythm"><div>n=185 in intervention group</div></li><li class="half_rhythm"><div>n=205 in control group</div></li></ul></div></li></ul>
|
|
<p><b>Characteristics</b></p><p>Age (range): 7–15 years</p><p>Gender: Not reported</p></td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>Participants taking part in DEPICTED cluster-randomised control trial study, who were recruited from 26 secondary and tertiary care paediatric diabetes services</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Age-appropriate free-text questionnaires at baseline and 1-year follow-up</p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Qualitative descriptive analysis</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Medical information: Amount</div></li><li class="half_rhythm"><div>Person not Patient: Importance of nurse involvement</div></li><li class="half_rhythm"><div>Consultations: With and without parents</div></li></ul></td></tr><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<a class="bibr" href="#niceng204er2.ref9" rid="niceng204er2.ref9">McCormack 2010</a>
|
|
</p>
|
|
<p>
|
|
<b>Study design</b>
|
|
</p>
|
|
<p>Semi-structured interview</p>
|
|
<p>
|
|
<b>Aim of the study</b>
|
|
</p>
|
|
<p>To explore the impact of chronic health conditions on young people, their lives, their families and their interactions with healthcare services.</p>
|
|
<p>Cornwall and Devon, UK</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>N=3 young people</p>
|
|
<p>
|
|
<b>Characteristics</b>
|
|
</p>
|
|
<p>Age (range): 12–18 years</p>
|
|
<p>Gender: Not reported</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>Participants taking part in a documentary about the impact of living with chronic illnesses.</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Semi-structured interviews</p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Thematic analysis</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Medical information: Going forward</div></li><li class="half_rhythm"><div>Person not patient: Insensitivity</div></li><li class="half_rhythm"><div>Person not patient: Creating relationships</div></li></ul></td></tr><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<a class="bibr" href="#niceng204er2.ref10" rid="niceng204er2.ref10">Robards 2018</a>
|
|
</p>
|
|
<p>
|
|
<b>Study design</b>
|
|
</p>
|
|
<p>Systematic review</p>
|
|
<p>
|
|
<b>Aim of study</b>
|
|
</p>
|
|
<p>To examine how young people who are marginalized access and engage with health services and navigate health-care systems in high-income countries</p>
|
|
<p>Multiple countries</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>K=68 studies</p>
|
|
<p>Range of sample size: N=3 to 1388</p>
|
|
<p>
|
|
<b>Characteristics</b>
|
|
</p>
|
|
<p>Type of study (k):
|
|
<ul><li class="half_rhythm"><div>Qualitative=44</div></li><li class="half_rhythm"><div>Quantitative=16</div></li><li class="half_rhythm"><div>Mixed-methods=8
|
|
<ul class="circle"><li class="half_rhythm"><div>This study incorporated all their results (qualitative and quantitative) into a narrative summary, which was then used in the findings of this review.</div></li></ul></div></li></ul></p>
|
|
<p>Participants (k):
|
|
<ul><li class="half_rhythm"><div>Young people=61</div></li><li class="half_rhythm"><div>Professionals=11 Parents=7
|
|
<ul class="circle"><li class="half_rhythm"><div>Although the study notes that their themes were identified by all the participants in their population (marginalised young people up to age 24 years old, parents and healthcare professionals), views of people > 18 years old, parents and health professionals will also have been included in their results. Our findings have been downgraded for relevance where applicable.</div></li></ul></div></li></ul></p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>Not applicable</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Systematic literature search</p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Data extraction, quality appraisal of studies, and thematic analysis</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Person not patient: Insensitivity</div></li><li class="half_rhythm"><div>Person not patient: Creating relationships</div></li><li class="half_rhythm"><div>Consultations: First impressions</div></li><li class="half_rhythm"><div>Consultations: Actively promoting involvement</div></li><li class="half_rhythm"><div>Types of communication: Listening</div></li><li class="half_rhythm"><div>Medical information: Co-ordination</div></li></ul></td></tr><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<a class="bibr" href="#niceng204er2.ref11" rid="niceng204er2.ref11">Sharkey 2016</a>
|
|
</p>
|
|
<p>
|
|
<b>Study design</b>
|
|
</p>
|
|
<p>Semi-structured interview</p>
|
|
<p>
|
|
<b>Aim of the study</b>
|
|
</p>
|
|
<p>To explore the experiences of healthcare professionals and parents when communicating with children who have ‘communication difficulties’ on a paediatric inpatient ward.</p>
|
|
<p>South West England, UK</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>N=17 parental proxies for children with ‘communication difficulties’</p>
|
|
<p>
|
|
<b>Characteristics</b>
|
|
</p>
|
|
<p>Age of child (range): 5 to 16 years</p>
|
|
<p>Gender of child (M/F): Not reported</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>Researchers identified parents of disabled children admitted to 2 district general hospitals in England and displayed posters in wards and parent rooms</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Semi-structured interviews</p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Framework analysis</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Medical information: Co-ordination</div></li><li class="half_rhythm"><div>Person not patient: Time</div></li><li class="half_rhythm"><div>Person not patient: Creating relationships</div></li><li class="half_rhythm"><div>Types of communication: Creative and interactive</div></li><li class="half_rhythm"><div>Types of communication: Listening</div></li><li class="half_rhythm"><div>Types of communication: Talking</div></li><li class="half_rhythm"><div>Communication with parents: Utilising knowledge of their child</div></li></ul></td></tr><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<a class="bibr" href="#niceng204er2.ref12" rid="niceng204er2.ref12">Taylor 2010</a>
|
|
</p>
|
|
<p>
|
|
<b>Study design</b>
|
|
</p>
|
|
<p>Semi-structured interview</p>
|
|
<p>
|
|
<b>Aim of the study</b>
|
|
</p>
|
|
<p>To explore the views of children and their parents/carers regarding their involvement in paediatric consultations.</p>
|
|
<p>Northampton and London, UK</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>N=43 children, young people and parents
|
|
<ul><li class="half_rhythm"><div>n=20 children and young people</div></li><li class="half_rhythm"><div>n=23 parents
|
|
<ul class="circle"><li class="half_rhythm"><div>Only the views of children and young people included in this review</div></li></ul></div></li></ul></p>
|
|
<p>
|
|
<b>Characteristics</b>
|
|
</p>
|
|
<p>Age [median (range)]: 10 (7–16) years</p>
|
|
<p>Gender of child (M/F): 5/15</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>Consecutive sampling of families attending 1 of 2 paediatric in- and out-patient clinics</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Semi-structured interviews with topic guide</p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Thematic (Framework) analysis by 2 researchers with 3<sup>rd</sup> researcher checking process and methodology</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Medical information: Going forward</div></li><li class="half_rhythm"><div>Medical information: Amount</div></li><li class="half_rhythm"><div>Person not patient: Time</div></li><li class="half_rhythm"><div>Consultations: Actively promoting involvement</div></li><li class="half_rhythm"><div>Consultations: With and without parents</div></li><li class="half_rhythm"><div>Consultations: Age-appropriate</div></li></ul></td></tr><tr><td headers="hd_h_niceng204er2.tab2_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<a class="bibr" href="#niceng204er2.ref13" rid="niceng204er2.ref13">Wood 2018</a>
|
|
</p>
|
|
<p>
|
|
<b>Study design</b>
|
|
</p>
|
|
<p>Semi-structured interview</p>
|
|
<p>
|
|
<b>Aim of the study</b>
|
|
</p>
|
|
<p>To determine whether adolescents and their families can articulate their experiences of their ICU or high dependency unit visit, and to identify the factors that are important to them during such visits.</p>
|
|
<p>UK</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>N=17 young people and parents
|
|
<ul><li class="half_rhythm"><div>n=8 mother-adolescent dyads</div></li><li class="half_rhythm"><div>n=1 mother
|
|
<ul class="circle"><li class="half_rhythm"><div>Views and experiences of the mothers were included in this review as they were reflecting on a period of time when their child may not have been able to participate in healthcare conversations and decisions while in ICU.</div></li></ul></div></li></ul></p>
|
|
<p>
|
|
<b>Characteristics</b>
|
|
</p>
|
|
<p>Age of children (years, n):
|
|
<ul><li class="half_rhythm"><div>14=1</div></li><li class="half_rhythm"><div>15=3</div></li><li class="half_rhythm"><div>16=2</div></li><li class="half_rhythm"><div>17=2</div></li><li class="half_rhythm"><div>19= 1</div></li></ul></p>
|
|
<p>Gender: Not reported.</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_3" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<p>
|
|
<b>Recruitment</b>
|
|
</p>
|
|
<p>Purposive sampling using local specialist nurses</p>
|
|
<p>
|
|
<b>Data collection</b>
|
|
</p>
|
|
<p>Semi-structured interviews</p>
|
|
<p>
|
|
<b>Analysis</b>
|
|
</p>
|
|
<p>Framework thematic analysis</p>
|
|
</td><td headers="hd_h_niceng204er2.tab2_1_1_1_4" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Person not patient: Creating relationships</div></li><li class="half_rhythm"><div>Person not patient: Insensitivity</div></li><li class="half_rhythm"><div>Consultations: Actively promoting involvement</div></li><li class="half_rhythm"><div>Consultations: Age-appropriate</div></li></ul></td></tr></tbody></table></div><div class="tblwrap-foot"><div><dl class="temp-labeled-list small"><dl class="bkr_refwrap"><dt></dt><dd><div><p class="no_margin">CAMHS: Child and Adolescent Mental Health Service; F: Female; ICU: Intensive care unit; M: Male; N: Number; vs; versus</p></div></dd></dl></dl></div></div></div></article><article data-type="table-wrap" id="figobniceng204er2tab3"><div id="niceng204er2.tab3" class="table"><h3><span class="label">Table 3</span><span class="title">Summary of evidence from the reference groups and focus groups</span></h3><p class="large-table-link" style="display:none"><span class="right"><a href="/books/NBK574976/table/niceng204er2.tab3/?report=objectonly" target="object">View in own window</a></span></p><div class="large_tbl" id="__niceng204er2.tab3_lrgtbl__"><table><tbody><tr><th id="hd_b_niceng204er2.tab3_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Age groups</th><td headers="hd_b_niceng204er2.tab3_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div><7 years</div></li><li class="half_rhythm"><div>7–11 years</div></li><li class="half_rhythm"><div>11–14 years</div></li></ul></td></tr><tr><th id="hd_b_niceng204er2.tab3_1_1_2_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Areas covered</th><td headers="hd_b_niceng204er2.tab3_1_1_2_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Qualities of healthcare staff</div></li><li class="half_rhythm"><div>Healthcare staff verbal and non-verbal communication style</div></li></ul></td></tr><tr><th id="hd_b_niceng204er2.tab3_1_1_3_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Illustrative quotes</th><td headers="hd_b_niceng204er2.tab3_1_1_3_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>‘I like it when doctors are friendly and good at their job’</div></li><li class="half_rhythm"><div>‘If it does hurt you, you can tell them and they will listen’</div></li><li class="half_rhythm"><div>‘If they use the complicated words I prefer if they [health professionals] talk to mum and dad but if they use words I understand I prefer them talking to me’</div></li><li class="half_rhythm"><div>‘Don’t know what the instrument is and when I don’t know what it is and then they use it on me, it feels a bit strange and scary’</div></li><li class="half_rhythm"><div>‘Make eye contact’</div></li><li class="half_rhythm"><div>‘Kind staff –explanations, so know what is happening’</div></li></ul></td></tr></tbody></table></div></div></article><article data-type="table-wrap" id="figobniceng204er2tab4"><div id="niceng204er2.tab4" class="table"><h3><span class="label">Table 4</span><span class="title">Summary of the evidence from national surveys</span></h3><p class="large-table-link" style="display:none"><span class="right"><a href="/books/NBK574976/table/niceng204er2.tab4/?report=objectonly" target="object">View in own window</a></span></p><div class="large_tbl" id="__niceng204er2.tab4_lrgtbl__"><table><tbody><tr><th id="hd_b_niceng204er2.tab4_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">National surveys</th><td headers="hd_b_niceng204er2.tab4_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Care Quality Commission. Children and young people’s inpatient and day case survey 2018</div></li><li class="half_rhythm"><div>Child Outcomes Research Consortium. Child- and Parent-reported Outcomes and Experience from Child and Young People’s Mental Health Services 2011–2015</div></li><li class="half_rhythm"><div>National Children’s Bureau. Listening to children’s views on health provision 2012</div></li><li class="half_rhythm"><div>Picker Institute. Paediatric Emergency Department Survey 2015 and Children and Young People’s Outpatient Survey 2015</div></li><li class="half_rhythm"><div>Picker Institute/NHS England/Bliss. Neonatal Survey 2014</div></li><li class="half_rhythm"><div>Word of Mouth Research and Point of Care Foundation. An options appraisal for obtaining feedback on the experiences of children and young people with cancer 2018</div></li></ul></td></tr><tr><th id="hd_b_niceng204er2.tab4_1_1_2_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Areas covered</th><td headers="hd_b_niceng204er2.tab4_1_1_2_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Communication by healthcare staff towards the following groups:
|
|
<ul class="circle"><li class="half_rhythm"><div>Children and young people in hospital as an inpatient or as a day case</div></li><li class="half_rhythm"><div>Young people with disabilities or severe conditions</div></li><li class="half_rhythm"><div>Parents with babies in the neonatal unit</div></li></ul></div></li></ul></td></tr><tr><th id="hd_b_niceng204er2.tab4_1_1_3_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Key findings</th><td headers="hd_b_niceng204er2.tab4_1_1_3_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
<ul><li class="half_rhythm"><div>Children and young people mostly felt listened and understood by healthcare staff, although some felt that doctors didn’t use language they could understand</div></li><li class="half_rhythm"><div>Young people with disabilities felt that there should be more resources and systems in place adapted for those with communication impairments or learning difficulties</div></li><li class="half_rhythm"><div>Parents of babies in the neonatal unit mostly felt supported by healthcare staff</div></li><li class="half_rhythm"><div>Young people with severe conditions felt that they had a positive experience of how the diagnosis and treatment plan was discussed and communicated to them</div></li></ul></td></tr></tbody></table></div></div></article><article data-type="table-wrap" id="figobniceng204er2appktab1"><div id="niceng204er2.appk.tab1" class="table"><h3><span class="label">Table 12</span><span class="title">Excluded studies and reasons for their exclusion</span></h3><p class="large-table-link" style="display:none"><span class="right"><a href="/books/NBK574976/table/niceng204er2.appk.tab1/?report=objectonly" target="object">View in own window</a></span></p><div class="large_tbl" id="__niceng204er2.appk.tab1_lrgtbl__"><table><thead><tr><th id="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:middle;">Study</th><th id="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:middle;">Reason for Exclusion</th></tr></thead><tbody><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aagaard, L., Christensen, A., Hansen, E. H., Information about adverse drug reactions reported in children: A qualitative review of empirical studies, British Journal of Clinical Pharmacology, 70, 481–491, 2010 [<a href="/pmc/articles/PMC2950983/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC2950983</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/20840440" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20840440</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aantaa,R., Sedation in PICU, Acta Anaesthesiologica Scandinavica, Supplement, 53, 3–5, 2009
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aarthun, A., Akerjordet, K., Parent participation in decision-making in health-care services for children: an integrative review, Journal of nursing management, 22, 177–191, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/23406447" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23406447</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aazh, H., Moore, B. C., Lammaing, K., Cropley, M., Tinnitus and hyperacusis therapy in a UK National Health Service audiology department: Patients’ evaluations of the effectiveness of treatments, International journal of audiology, 55, 514–522, 2016 [<a href="/pmc/articles/PMC4950421/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4950421</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/27195947" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27195947</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Abbas, F., Luhar, A., Terry, D., Swallowing medicines: A study of paediatric patients, Archives of disease in childhood, 99 (8), e3, 2014
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Abbott, David, Carpenter, John, “The things that are inside of you are horrible”: Children and young men with Duchenne muscular dystrophy talk about the impact of living with a long-term condition, Child Care in Practice, 21, 67–77, 2015
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - Information too specific to Duchenne Muscular Dystrophy to be generalizable.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Abbott, M., Bernard, P., Forge, J., Communicating a diagnosis of Autism Spectrum Disorder - a qualitative study of parents’ experiences, Clinical Child Psychology and Psychiatry, 18, 370–382, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/22904114" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22904114</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Parental views with age of children 8–15.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Abdelrahim, Z., Dooley, A., Khan, A., Development of a paediatric specialist multidisciplinary down syndrome clinic, Archives of disease in childhood, 103 (Supplement 1), A162–A163, 2018
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Abela, K. M., Wardell, D., Rozmus, C., LoBiondo-Wood, G., Impact of Pediatric Critical Illness and Injury on Families: An Updated Systematic Review, Journal of pediatric nursing, 51, 21–31, 2020 [<a href="https://pubmed.ncbi.nlm.nih.gov/31874458" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31874458</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Abelman, D. D., Mitigating risks of students use of study drugs through understanding motivations for use and applying harm reduction theory: a literature review, Harm reduction journal, 14, 68, 2017 [<a href="/pmc/articles/PMC5639593/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5639593</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28985738" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28985738</span></a>]
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Narrative review</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aberdeen, J. N., Burnett, R. K. F., Stewart, H. F., Greenberg, E., The use of patient reported outcome measures by primary medical providers in the pediatric sports population, Orthopaedic Journal of Sports Medicine. Conference: 6th Annual Meeting of the Pediatric Research in Sports Medicine Society, PRiSM, 7, 2019
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Abhyankar, P., Summers, B. A., Velikova, G., Bekker, H. L., Framing Options as Choice or Opportunity: Does the Frame Influence Decisions?, Medical decision making : an international journal of the Society for Medical Decision Making, 34, 567–582, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/24732048" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 24732048</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Adult women >18 years</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Abrines Jaume, N., Hoffman, J., Wolpert, M., Law, D., Wright, E., Shared decision making in child and adolescent mental health services, Neuropsychiatrie de l’Enfance et de l’Adolescence, 1), S294, 2012
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Abu-Rajab, K., Scoular, A., Church, S., Connell, J., Winter, A., Hart, G., Identifying opportunities for sexually transmitted infection prevention: Analysis of critical points in the care pathways of patients with gonorrhoea, International Journal of STD and AIDS, 20, 170–175, 2009 [<a href="https://pubmed.ncbi.nlm.nih.gov/19255264" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 19255264</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Age 15–66 years with data not presented separately for target population.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Achten, J., Parsons, N. R., Edlin, R. P., Griffin, D. R., Costa, M. L., A randomised controlled trial of total hip arthroplasty versus resurfacing arthroplasty in the treatment of young patients with arthritis of the hip joint, BMC musculoskeletal disorders, 11, 8, 2010 [<a href="/pmc/articles/PMC2826290/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC2826290</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/20074324" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20074324</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Published protocol</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Ackner, S., Skeate, A., Patterson, P., Neal, A., Emotional abuse and psychosis: A recent review of the literature, Journal of Aggression, Maltreatment and Trauma, 22, 1032–1049, 2013
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - Information too specific to child abuse and psychosis to be generalizable.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Actrn,, A randomised controlled trial of a group intervention for family and friends of youth with borderline personality disorder, <a href="http://www.who.int/trialsearch/trial2.aspx?trialid=actrn12616000304437" ref="pagearea=body&targetsite=external&targetcat=link&targettype=uri">Http://www.who.int/trialsearch/trial2.aspx? Trialid=actrn12616000304437</a>, 2016 [<a href="/pmc/articles/PMC6060555/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6060555</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30065842" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30065842</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Ongoing trial - still recruitiung</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Actrn,, A randomized controlled trial comparing knowledge transfer regarding preoperative information to children and parents: interactive web-based format (Anesthesia Web) vs. conventional brochure information, <a href="http://www.who.int/trialsearch/trial2.aspx?trialid=actrn12616000528459" ref="pagearea=body&targetsite=external&targetcat=link&targettype=uri">Http://www.who.int/trialsearch/trial2.aspx? Trialid=actrn12616000528459</a>, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/28393428" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28393428</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Ongoing trial - still rectruiting</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Actrn,, A study of the impact of treating seizures that can be seen and those that can be seen only on a brain monitor in newborn babies, who are having seizures or at high risk of seizures, <a href="http://www.who.int/trialsearch/trial2.aspx?trialid=actrn12611000327987" ref="pagearea=body&targetsite=external&targetcat=link&targettype=uri">Http://www.who.int/trialsearch/trial2.aspx? Trialid=actrn12611000327987</a>, 2011
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Ongoing trial - still recruiting</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Actrn,, Action: pACT. Be Active. Online. A trial to promote physical activity in young people with cystic fibrosis, <a href="http://www.who.int/trialsearch/trial2.aspx?trialid=actrn12617001009303" ref="pagearea=body&targetsite=external&targetcat=link&targettype=uri">Http://www.who.int/trialsearch/trial2.aspx? Trialid=actrn12617001009303</a>, 2017
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Ongoing trial - still recruiting</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Actrn,, HARTI HAUORA TAMARIKI A Randomised Controlled Trial of an Opportunistic, Holistic and Family Centred Approach to Improving Outcomes for Hospitalised Children and their Families, <a href="http://www.who.int/trialsearch/trial2.aspx?trialid=actrn12618001079235" ref="pagearea=body&targetsite=external&targetcat=link&targettype=uri">Http://www.who.int/trialsearch/trial2.aspx? Trialid=actrn12618001079235</a>, 2018
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Ongoing trial - still recruiting</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Actrn,, Mitii ABI: “Move it to improve it”: a randomised trial of novel web-based intervention for children with acquired brain injury, <a href="http://www.who.int/trialsearch/trial2.aspx?trialid=actrn12613000403730" ref="pagearea=body&targetsite=external&targetcat=link&targettype=uri">Http://www.who.int/trialsearch/trial2.aspx? Trialid=actrn12613000403730</a>, 2013
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Ongoing trial - still recruiting</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Actrn,, Patient navigators in children with chronic kidney disease, <a href="http://www.who.int/trialsearch/trial2.aspx?trialid=actrn12618001152213" ref="pagearea=body&targetsite=external&targetcat=link&targettype=uri">Http://www.who.int/trialsearch/trial2.aspx? Trialid=actrn12618001152213</a>, 2018
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Ongoing trial - still recruiting</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Adams, C., Lockton, E., Freed, J., Gaile, J., Earl, G., McBean, K., Nash, M., Green, J., Vail, A., Law, J., The Social Communication Intervention Project: a randomized controlled trial of the effectiveness of speech and language therapy for school-age children who have pragmatic and social communication problems with or without autism spectrum disorder, International journal of language & communication disorders / Royal College of Speech & Language Therapists, 47, 233–244, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/22512510" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22512510</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Adams, C., Lockton, E., Gaile, J., Earl, G., Freed, J., Implementation of a manualized communication intervention for school-aged children with pragmatic and social communication needs in a randomized controlled trial: the Social Communication Intervention Project, International journal of language & communication disorders / Royal College of Speech & Language Therapists, 47, 245–256, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/22512511" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22512511</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Adams, N., Churchill, R., Eve, E., Chronic widespread pain in adolescents: A primary care based study, European Journal of Pain Supplements, 5 (1), 146, 2011
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Adewumi, A. D., Hollingworth, S. A., Maravilla, J. C., Connor, J. P., Alati, R., Prescribed Dose of Opioids and Overdose: A Systematic Review and Meta-Analysis of Unintentional Prescription Opioid Overdose, CNS Drugs, 32, 101–116, 2018 [<a href="https://pubmed.ncbi.nlm.nih.gov/29498021" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29498021</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aebi, M., Kuhn, C., Banaschewski, T., Grimmer, Y., Poustka, L., Steinhausen, H. C., Goodman, R., The contribution of parent and youth information to identify mental health disorders or problems in adolescents, Child and adolescent psychiatry and mental health, 11 (1) (no pagination), 2017 [<a href="/pmc/articles/PMC5408828/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5408828</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28465720" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28465720</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aebi, Marcel, Kuhn, Christine, Metzke, Christa Winkler, Stringaris, Argyris, Goodman, Robert, Steinhausen, Hans-Christoph, The use of the development and well-being assessment (DAWBA) in clinical practice: A randomized trial, European child & adolescent psychiatry, 21, 559–567, 2012 [<a href="/pmc/articles/PMC3866649/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC3866649</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/22722664" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22722664</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ager, A., Zimmerman, C., Unlu, K., Rinehart, R., Nyberg, B., Zeanah, C., Hunleth, J., Bastiaens, I., Weldy, A., Bachman, G., Blum, A. B., Strottman, K., What strategies are appropriate for monitoring children outside of family care and evaluating the impact of the programs intended to serve them?, Child Abuse & Neglect, 36, 732–42, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/23083900" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23083900</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Agnew, T., Shared experience, Nursing Standard, 26, 22–4, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/22953402" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22953402</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Narrative article, not study results</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Agrawal, S., Morris, K., Whitehouse, W. P., Parent’s views about drug trials in children with refractory convulsive status epilepticus, Developmental Medicine and Child Neurology, 1), 16, 2009
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Agwu, C. J., Scanlon, J., McCrea, K., Raffeeq, P., Kershaw, M., Broomhead, S., Eminson, J., Peer review: A tool to improve paediatric diabetes services, Hormone Research in Paediatrics, 1), 213, 2013
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ahmed, M., Boyd, C., Vavilikolanu, R., Rafique, B., Visual symptoms and childhood migraine: Qualitative analysis of duration, location, spread, mobility, colour and pattern, Cephalalgia, 38, 2017–2025, 2018 [<a href="https://pubmed.ncbi.nlm.nih.gov/29629600" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29629600</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ahmed, S. A., Arasu, A., Another ethical dilemma in neonatology, Archives of Disease in Childhood, 96, A72, 2011
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ahmed, S. A., Arasu, A., Ethical dilemma in neonatology, Archives of Disease in Childhood, 97, A300, 2012
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ahmed, S., Ihe, C., Findings from a pre-clinic questionnaire given prior consultation at an NHS paediatric diabetes outpatient service in England-the patient’s perspective: A survey of patient/carer experience of a paediatric diabetes outpatient service, Pediatric Diabetes, 17 (Supplement 24), 127–128, 2016
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ainsworth, S., Ainsworth, J., Preston, J., Stones, S., Challinor, R., Rowe, M., Introducing RAiISE-raising awareness of invisible illnesses in schools and education, Pediatric Rheumatology, 15 (Supplement 2), 67–68, 2017
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ainsworth, S., Raiising awareness of invisible illnesses in schools and education, Annals of the rheumatic diseases, 77 (Supplement 2), 10, 2018
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Akhtar, M. A., Honeyman, C., Aziz, F., Greenough, C., Kalyan, R., Hekal, W., The sky’s the limit: Raising the quality and scope of communication for children with scoliosis and their families using digital and social media, British journal of neurosurgery, 30 (2), 177, 2016
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Al Maghaireh, Dua’a Fayiz, Abdullah, Khatijah Lim, Chan, Chong Mei, Piaw, Chua Yan, Al Kawafha, Mariam Mofleh, Systematic review of qualitative studies exploring parental experiences in the Neonatal Intensive Care Unit, Journal of Clinical Nursing, 25, 2745–2756, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/27256250" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27256250</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aladangady, N., Shaw, C., Gallagher, K., Stokoe, E., Marlow, N., Short-Term outcome of treatment limitation discussions for newborn infants, a multicentre prospective observational cohort study, Archives of Disease in Childhood: Fetal and Neonatal Edition, 102, F104–F109, 2017 [<a href="https://pubmed.ncbi.nlm.nih.gov/27852667" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27852667</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Alan, D., Woolner, A. F., Skinner, R., King, D., Evaluation of infection control advice for patients at risk of chemotherapy-induced neutropaenia in two paediatric oncology centres in south africa and the United Kingdom, Pediatric Blood and Cancer, 57 (5), 846–847, 2011
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Alderson, H., Brown, R., Copello, A., Kaner, E., Tober, G., Lingam, R., McGovern, R., The key therapeutic factors needed to deliver behavioural change interventions to decrease risky substance use (drug and alcohol) for looked after children and care leavers: a qualitative exploration with young people, carers and front line workers, BMC medical research methodology, 19, 38–, 2019 [<a href="/pmc/articles/PMC6385417/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6385417</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30791874" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30791874</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Age 15–19 years with data not presented separately for target population</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Alderson, H., Brown, R., Smart, D., Lingam, R., Dovey-Pearce, G., ‘You’ve come to children that are in care and given us the opportunity to get our voices heard’: The journey of looked after children and researchers in developing a Patient and Public Involvement group, Health expectations : an international journal of public participation in health care and health policy., 21, 2019 [<a href="/pmc/articles/PMC6737768/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6737768</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/31115138" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31115138</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Alexakis, C., Davies, G., Stephens, J., Clark, S., Rogers, S., Poullis, A., Perspectives and attitudes of young patients with inflammatory bowel disease: Symptoms, burden of disease and communication with their healthcare professionals, Frontline Gastroenterology, 5, 197–202, 2014 [<a href="/pmc/articles/PMC5369726/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5369726</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28839770" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28839770</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Alexakis, C., Nash, A., Lloyd, M., Brooks, F., Lindsay, J. O., Poullis, A., Inflammatory bowel disease in young patients: challenges faced by black and minority ethnic communities in the UK, Health & Social Care in the Community, 23, 665–672, 2015 [<a href="https://pubmed.ncbi.nlm.nih.gov/25660726" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25660726</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population and phenomenon of interest not in protocol - No themes relating to communication with healthcare staff in participants < 18 years</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Alexander, R., Walter, L. K., Progressive techniques to effectively prepare children for radiotherapy: A supportive framework combining informative films with a miniature working model LINAC, Pediatric Blood and Cancer, 62 (Supplement 4), S209, 2015
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Alexander, S., Bath, L., McDonald, M., Adolescent diabetic outpatient clinics-more than just an HbA1c, Archives of disease in childhood, 101 (Supplement 1), A275–A277, 2016
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Al-Gamal, Ekhlas, Long, Tony, The MM-CGI Cerebral Palsy: Modification and pretesting of an instrument to measure anticipatory grief in parents whose child has cerebral palsy, Journal of clinical nursing, 23, 1810–1819, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/24131422" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 24131422</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Al-Harthy, Z. S., Cowling, J. P., Mann, G. K., Salama, M., Medical intervention for children with medical complexity (MICMAC), Archives of disease in childhood, 3), A127–A128, 2015
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ali, Nasreen, McLachlan, Niel, Kanwar, Shama, Randhawa, Gurch, Pakistani young people’s views on barriers to accessing mental health services, International Journal of Culture and Mental Health, 10, 33–43, 2017
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Alifrangis, C., Koizia, L., Rozario, A., Rodney, S., Harrington, M., Somerville, C., Peplow, T., Waxman, J., The experiences of cancer patients, Qjm, 104, 1075–81, 2011 [<a href="https://pubmed.ncbi.nlm.nih.gov/21835781" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21835781</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - People aged ≥ 21 years.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aljafari, A. K., Scambler, S., Gallagher, J. E., Hosey, M. T., Parental views on delivering preventive advice to children referred for treatment of dental caries under general anaesthesia: A qualitative investigation, Community dental health, 31, 75–79, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/25055603" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25055603</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Unclear population - Views of parents with no way of discerning age of children.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Allcock, D., Smith, K., Exploring parent views of community matrons, Nursing Times, 110, 21–23, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/24834602" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 24834602</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Unclear population - Questionnaires sent to parents with no way of discerning child age.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Allen, D., Gillen, E., Rixson, L., The Effectiveness of Integrated Care Pathways for Adults and Children in Health Care Settings: A Systematic Review, JBI Library of Systematic Reviewis, 7, 80–129, 2009 [<a href="https://pubmed.ncbi.nlm.nih.gov/27820426" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27820426</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Allen, D., Scarinci, N., Hickson, L., The Nature of Patient- and Family-Centred Care for Young Adults Living with Chronic Disease and their Family Members: A Systematic Review, International Journal of Integrated Care [Electronic Resource]Int J Integr Care, 18, 14, 2018 [<a href="/pmc/articles/PMC6095060/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6095060</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30127698" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30127698</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Allen, Kimberly A., Parental decision-making for medically complex infants and children: An integrated literature review, International Journal of Nursing Studies, 51, 1289–1304, 2014 [<a href="/pmc/articles/PMC4125505/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4125505</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/24636443" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 24636443</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Almunef, M., Mason, J., Curtis, C., Jalal, Z., Management of chronic illness in young people aged 10–24 years: A systematic review to explore the role of primary care pharmacists, Archives of Disease in Childhood, 104, 2019
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Almunef, M., Mason, J., Curtis, C., Jalal, Z., The role of primary care pharmacist in the management of chronic illnesses in young people aged 10–24 years: A systematic review, International Journal of Pharmacy Practice, 27, 48–49, 2019
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Poster abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Alvi, S., Priestley, J., Whitehead, A., Walker, J., Mushtaq, T., The impact on families of receiving a diagnosis of congenital hypothyroidism, Hormone Research in Paediatrics, 1), 549, 2015
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Al-Zawaadi, M., Kayyali, R., Kelly, P., Evaluation of a pharmacist-led health intervention in a primary school, International journal of pharmacy practice, 27 (Supplement 1), 8–9, 2019
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ambrogi, V., Tezenas Du Montcel, S., Collin, E., Coutaux, A., Bourgeois, P., Bourdillon, F., Care-related pain in hospitalized patients: Severity and patient perception of management, European journal of pain (united kingdom), 19, 313–321, 2015 [<a href="https://pubmed.ncbi.nlm.nih.gov/25055764" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25055764</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ames, C. S., Richardson, J., Payne, S., Smith, P., Leigh, E., Mindfulness-based cognitive therapy for depression in adolescents, Child and Adolescent Mental Health, 19, 74–78, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/32878358" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 32878358</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - Information too specific to psychological treatment for depression/anxiety to be generalizable.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ames, K., Rennick, J., & Baillargeon, S., A qualitative interpretive study exploring parents’ perception of the parental role in the paediatric intensive care unit., Intensive & Critical Care Nursing, 27, 143–150, 2011 [<a href="https://pubmed.ncbi.nlm.nih.gov/21511474" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21511474</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Views of parents of children 0–17 years with data not presented separately for target population.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Amin, A., Oragui, E., Khan, W., Puri, A., Psychosocial considerations of perioperative care in children, with a focus on effective management strategies, Journal of perioperative practice, 20, 198–202, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/20586358" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20586358</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Narrative review</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Amsalem, D., Hasson-Ohayon, I., Gothelf, D., Roe, D., Subtle ways of stigmatization among professionals: The subjective experience of consumers and their family members, Psychiatric rehabilitation journal, 41, 163–168, 2018 [<a href="https://pubmed.ncbi.nlm.nih.gov/29985015" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29985015</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Unclear population - No way of identifying age of participant</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Anderson, C., Lupfer, A., Shattuck, P. T., Barriers to receipt of services for young adults with autism, Pediatrics, 141, S300–S305, 2018 [<a href="https://pubmed.ncbi.nlm.nih.gov/29610411" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29610411</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Young adults with autism who had left high school in the past 15 years.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Anderson, C., Roy, T., Patient experiences of taking antidepressants for depression: A secondary qualitative analysis, Research in Social and Administrative Pharmacy, 9, 884–902, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/23219056" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23219056</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population and study design not in protocol - No qualitative data for under 18s</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Anderson, E. S., Ford, J. S., Learning to listen: A patient led innovation to improve student’s communication with patient feedback, Medical education, supplement, 2), 118–119, 2011
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Angelopoulou, M. V., Oulis, C. J., Kavvadia, K., School-based oral health-education program using experiential learning or traditional lecturing in adolescents: a clinical trial, International dental journal, 64, 278–284, 2014 [<a href="/pmc/articles/PMC9376399/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC9376399</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/25142752" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25142752</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Angold, A., Erkanli, A., Copeland, W., Goodman, R., Fisher, P. W., Costello, E. J., Psychiatric diagnostic interviews for children and adolescents: A comparative study, Journal of the American Academy of Child and Adolescent Psychiatry, 51, 506–517, 2012 [<a href="/pmc/articles/PMC3336098/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC3336098</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/22525957" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22525957</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Anonymous,, The development and analysis of feedback from a pilot chronic pain group at the Royal Manchester Children’s Hospital, Rheumatology (united kingdom), 56 (Supplement 7), vii30, 2017
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ansmann, L., Kowalski, C., Ernstmann, N., Ommen, O., Pfaff, H., Patients’ perceived support from physicians and the role of hospital characteristics, International Journal for Quality in Health Care, 24, 501–8, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/22864106" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22864106</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Antao, V., Evaluation of post-diagnostic support to families and children with autism spectrum disorder, Developmental medicine and child neurology, 4), 69, 2010
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Anttila, A., Rappaport, D. I., Tijerino, J., Zaman, N., Sharif, I., Interpretation Modalities Used on Family-Centered Rounds: Perspectives of Spanish-Speaking Families, Hospital Pediatrics, 7, 492–498, 2017 [<a href="https://pubmed.ncbi.nlm.nih.gov/28705913" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28705913</span></a>]
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Unclear population - Views of parents with age of children not reported.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Arai, L., Bettany-Saltikov, J., Hamilton, S., Findings from a small-scale, exploratory content analysis of information provided to AIS patients and their parents from NHS Scoliosis Hospital Clinics, Scoliosis. Conference: 9th International Conference on Conservative Management of Spinal Deformities SOSORT, 8, 2012
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Archibald, Mandy, Scott, Shannon, Hartling, Lisa, Mapping the waters: A scoping review of the use of visual arts in pediatric populations with health conditions, Arts & Health: An International Journal of Research, Policy and Practice, 6, 5–23, 2014
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Scoping review. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Arheiam, A., Albadri, S., Laverty, L., Harris, R., Reasons for low adherence to diet-diaries issued to pediatric dental patients: A collective case study, Patient Preference and Adherence, 12, 1401–1411, 2018 [<a href="/pmc/articles/PMC6078093/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6078093</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30122905" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30122905</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population and study design not in protocol - No qualitative data for participants under 18 years</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Arheiam, A., Brown, S. L., Burnside, G., Higham, S. M., Albadri, S., Harris, R. V., The use of diet diaries in general dental practice in England, Community dental health, 33, 267–273, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/28537363" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28537363</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Views of healthcare professionals only.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Armitage, S., Swallow, V., Kolehmainen, N., Ingredients and change processes in occupational therapy for children: a grounded theory study, Scandinavian journal of occupational therapy, 24, 208–213, 2017 [<a href="https://pubmed.ncbi.nlm.nih.gov/27454899" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27454899</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Armoiry, Xavier, Sturt, Jackie, Phelps, Emma Elizabeth, Walker, Clare-Louise, Court, Rachel, Taggart, Frances, Sutcliffe, Paul, Griffiths, Frances, Atherton, Helen, Digital clinical communication for families and caregivers of children or young people with short- or long-term conditions: Rapid review, Journal of Medical Internet Research Vol 20(1), 2018, ArtID e5, 20, 2018 [<a href="/pmc/articles/PMC5775486/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5775486</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/29305339" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29305339</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Armoogum, J., Cathcart, E., Cazenove, E., Knott, C., Mathambo, N., Tompsitt, L., Vevers, J., Wall, M., Bridging the gap: Giving information to young people undergoing bone marrow transplants using modern media, Bone Marrow Transplantation, 1), S421, 2011
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Arnab, Sylvester, Brown, Katherine, Clarke, Samantha, Dunwell, Ian, Lim, Theodore, Suttie, Neil, Louchart, Sandy, Hendrix, Maurice, de Freitas, Sara, The development approach of a pedagogically-driven serious game to support Relationship and Sex Education (RSE) within a classroom setting, Computers & Education, 69, 15–30, 2013
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Description of health education tool development</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Arnott, J., Nunn, A. J., Mannix, H., Peak, M., Pirmohamed, M., Smyth, R. L., Turner, M. A., Young, B., Communicating with parents following a suspected adverse drug reaction in a child: Who says what and when?, Archives of disease in childhood, 3), A10–A11, 2015
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Arnott, J., Turner, M. A., Hesselgreave, H., Nunn, A. J., Peak, M., Pirmohamed, M., Smyth, R. L., Young, B., Parents’ experiences of adverse drug reations in children: Qualitative study, Pharmacoepidemiology and Drug Safety, 21 (1), 112, 2012
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aronson, P. L., Shapiro, E. D., Niccolai, L. M., Fraenkel, L., Shared Decision-Making with Parents of Acutely Ill Children: A Narrative Review, Academic pediatrics, 18, 3–7, 2018 [<a href="/pmc/articles/PMC5756675/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5756675</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28723588" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28723588</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Narrative review. Included studies checked for possible inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ashcraft, L. E., Asato, M., Houtrow, A. J., Kavalieratos, D., Miller, E., Ray, K. N., Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies, Patient, 12, 199–212, 2019 [<a href="/pmc/articles/PMC6397702/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6397702</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30328069" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30328069</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aslam, A., Children’s preference in selecting an emollient of their choice, British journal of dermatology, 1), 116, 2009
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Astbury, R., Shepherd, A., Cheyne, H., Working in partnership: the application of shared decision-making to health visitor practice, Journal of Clinical Nursing, 26, 215–224, 2017 [<a href="https://pubmed.ncbi.nlm.nih.gov/27459947" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27459947</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aston, Hermione J., Lambert, Nathan, Young people’s views about their involvement in decision-making, Educational Psychology in Practice, 26, 41–51, 2010
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Setting not in protocol - Shared decision making in education only</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aston, J., Terry, D., Nusgen, U., Champaneri, N., Prescribed antimicrobial therapy: What parents/carers are told and what they would like to know, Archives of Disease in Childhood. Conference: 18th Neonatal and Paediatric Pharmacists Group, NPPG Annual Conference. Liverpool United Kingdom. Conference Publication:, 98, 2013
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aston, J., Wilson, K. A., Terry, D. R. P., The treatment-related experiences of parents, children and young people with regular prescribed medication, International journal of clinical pharmacy, 41, 113–121, 2019 [<a href="/pmc/articles/PMC6394506/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6394506</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30478490" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30478490</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Unclear population - Views of parents with no way of discerning age of children</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aston, J., Wilson, K., Terry, D., Starting a new medicine study, Archives of disease in childhood, 101 (9), A28, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/27540240" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27540240</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Atkins, E., Colville, G., John, M., Finding the way to a ‘new normal’: Families’ recovery in the year after a paediatric intensive care admission, Pediatric critical care medicine, 1), A3–A4, 2011
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Aubugeau-Williams, P., Brierley, J., Consent in paediatric intensive care: A qualitative study of parental & professional views, Archives of Disease in Childhood. Conference: Great Ormond Street Hospital Conference, GOSH, 102, 2017
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Audrey, S., Batista Ferrer, H., Ferrie, J., Evans, K., Bell, M., Yates, J., Roderick, M., Macleod, J., Hickman, M., Impact and acceptability of self-consent procedures for the school-based human papillomavirus vaccine: A mixed-methods study protocol, BMJ open, 8 (3) (no pagination), 2018 [<a href="/pmc/articles/PMC5879539/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5879539</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/29502095" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29502095</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Published protocol</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Azevedo, Avds, Lanconi, A. C.
|
|
Junior, Crepaldi, M. A., Nursing team, family and hospitalized child interaction: an integrative review, Ciencia & Saude ColetivaCienc, 22, 3653–3666, 2017 [<a href="https://pubmed.ncbi.nlm.nih.gov/29211171" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29211171</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Azzopardi, L. M., Serracino-Inglott, A., Zarb-Adami, M., Portanier, F. S., Evaluation of patient information leaflets for non-prescription medicines, International journal of pharmacy practice, 2), 81–82, 2010
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Babbage, C., Jackson, G. M., Nixon, E., Desired Features of a Digital Technology Tool for Self-Management of Well-Being in a Nonclinical Sample of Young People: Qualitative Study, JMIR Mental Health, 5, e10067, 2018 [<a href="/pmc/articles/PMC6315233/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6315233</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30563820" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30563820</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Badri, P., Saltaji, H., Flores-Mir, C., Amin, M., Factors affecting children’s adherence to regular dental attendance: a systematic review, Journal of the American Dental Association (1939), 145, 817–828, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/25082930" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25082930</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Bailey, J. V., Webster, R., Hunter, R., Freemantle, N., Rait, G., Michie, S., Estcourt, C., Anderson, J., Gerressu, M., Stephenson, J., et al.,, The Men’s Safer Sex (MenSS) trial: protocol for a pilot randomised controlled trial of an interactive digital intervention to increase condom use in men, BMJ open, 5, e007552, 2015 [<a href="/pmc/articles/PMC4336456/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4336456</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/25687900" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25687900</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Published protocol</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Baird, Jennifer, Davies, Betty, Hinds, Pamela S., Baggott, Christina, Rehm, Roberta S., What impact do hospital and unit-based rules have upon patient and family-centered care in the pediatric intensive care unit?, Journal of pediatric nursingJ Pediatr Nurs, 30, 133–142, 2015 [<a href="/pmc/articles/PMC4405525/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4405525</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/25450441" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25450441</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Age >18 years.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Baker, Erika, Baibazarova, Eugenia, Ktistaki, Georgia, Shelton, Katherine H., van Goozen, Stephanie H., Development of fear and guilt in young children: Stability over time and relations with psychology, Development and psychopathology, 24, 833–845, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/22781857" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22781857</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Balato, N., Megna, M., Di Costanzo, L., Balato, A., Ayala, F., Educational and motivational support service: a pilot study for mobile-phone-based interventions in patients with psoriasis, British journal of dermatology, 168, 201–205, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/23240729" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23240729</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Bancroft, V., Ganesan, V., Pistrang, N., Murphy, T., How adolescents and their parents understand and manage paediatric stroke, Developmental Medicine and Child Neurology, 3), 14–15, 2010
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
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Banks, J., Cramer, H., Sharp, D. J., Shield, J. P., Turner, K. M., Identifying families’ reasons for engaging or not engaging with childhood obesity services: a qualitative study, Journal of child health care, 18, 101–110, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/23728931" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23728931</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Parental views of children >5 years old. Children present in some interviews but no way of identifying which themes used data from them</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Barber, S., Bekker, H., Marti, J., Pavitt, S., Khambay, B., Meads, D., Development of a Discrete-Choice Experiment (DCE) to Elicit Adolescent and Parent Preferences for Hypodontia Treatment, Patient, 12, 137–148, 2019 [<a href="/pmc/articles/PMC6335368/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6335368</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30367434" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30367434</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Description of questionnaire development with no qualitative data presented.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Barber, S., Pavitt, S., Meads, D., Khambay, B., Bekker, H., Assessment of information resources for people with hypodontia, Bdj Open, 4, 18001, 2018 [<a href="/pmc/articles/PMC5844244/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5844244</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/29607094" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29607094</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Views of healthcare professionals only.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Barber, S., Pavitt, S., Meads, D., Khambay, B., Bekker, H., Can the current hypodontia care pathway promote shared decision-making?, Journal of orthodontics, 46, 126–136, 2019 [<a href="https://pubmed.ncbi.nlm.nih.gov/31060465" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31060465</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Brodsgaard, A., Pedersen, J. T., Larsen, P., Weis, J., Parents’ and nurses’ experiences of partnership in neonatal intensive care units: A qualitative review and meta-synthesis, Journal of Clinical Nursing, 28, 3117–3139, 2019 [<a href="https://pubmed.ncbi.nlm.nih.gov/31112337" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31112337</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Brown, Freddy Jackson, Guvenir, Jane, The experiences of children with learning disablilities, their carers and staff during a hospital admission, British Journal of Learning Disabilities, 37, 110–115, 2009
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Byron
|
|
et al, “You learn from each other”: LGBTIQ Young People’s Mental Health Help-seeking and the RAD Australia Online Directory. , 2016
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Australia</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Cameron, M. A., Schleien, C. L., Morris, M. C., Parental presence on pediatric intensive care unit rounds, J Pediatr, 155, 522–8, 2009 [<a href="https://pubmed.ncbi.nlm.nih.gov/19555968" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 19555968</span></a>]
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: USA</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
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Can text messages increase safer sex behaviours in young people? Intervention development and pilot randomized controlled trial, Health technology assessment. 20 (57) (pp 1–81), 2016. Date of publication: august 2016., 2016 [<a href="/pmc/articles/PMC4983705/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4983705</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/27483185" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27483185</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Chaturvedi, Surabhi, Accessing psychological therapies: Homeless young people’s views on barriers and facilitators, Counselling and Psychotherapy Research, 16, 54–63, 2016
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Age 16–25 years with data not presented separately for target population.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Coker, T. R., Sareen, H. G., Chung, P. J., Kennedy, D. P., Weidmer, B. A., Schuster, M. A., Improving access to and utilization of adolescent preventive health care: the perspectives of adolescents and parents, J Adolesc Health, 47, 133–42, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/20638005" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20638005</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: USA</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Comp, D., Improving parent satisfaction by sharing the inpatient daily plan of care: an evidence review with implications for practice and research, Pediatric nursing, 37, 237–242, 2011 [<a href="https://pubmed.ncbi.nlm.nih.gov/22132568" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22132568</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Coyne, I., Amory, A., Kiernan, G., Gibson, F., Children’s participation in shared decision-making: children, adolescents, parents and healthcare professionals’ perspectives and experiences, Eur J Oncol Nurs, 18, 273–80, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/24629505" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 24629505</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Ireland</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Coyne, I., Children, parents, and healthcare professional’s perspectives on children’s participation in shared decision making, European Journal of Oncology, 15, 275–276, 2011
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Coyne, I., Gallagher, P., Participation in communication and decision-making: children and young people’s experiences in a hospital setting, J Clin Nurs, 20, 2334–43, 2011 [<a href="https://pubmed.ncbi.nlm.nih.gov/21410571" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21410571</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Ireland</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Coyne, I., Kirwan, L., Ascertaining children’s wishes and feelings about hospital life, J Child Health Care, 16, 293–304, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/23027522" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23027522</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Ireland</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Crowley, Making it matter: improving the health of homeless young people., 2012
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Age 16–25 with data not presented separately for target population.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Daley, A. M., Polifroni, E. C., Sadler, L. S., “Treat Me Like a Normal Person!” A Meta-Ethnography of Adolescents’ Expectations of Their Health Care Providers, Journal of pediatric nursing, 36, 70–83, 2017 [<a href="https://pubmed.ncbi.nlm.nih.gov/28888515" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28888515</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Daniels, Karen, Cultural agents creating texts: A collaborative space adventure, Literacy, 48, 103–111, 2014
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Davey, A., Asprey, A., Carter, M., Campbell, J. L., Trust, negotiation, and communication: young adults’ experiences of primary care services, BMC family practice, 14, 202, 2013 [<a href="/pmc/articles/PMC3880848/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC3880848</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/24373254" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 24373254</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Participants aged 18–25 years.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Davies, Adam, Randall, Duncan, Perceptions of children’s participation in their healthcare: A critical review, Issues in comprehensive pediatric nursing, 38, 202–221, 2015 [<a href="https://pubmed.ncbi.nlm.nih.gov/26331450" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26331450</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Davies, E. B., Buchanan, H., An exploratory study investigating children’s perceptions of dental behavioural management techniques, International journal of paediatric dentistry, 23, 297–309, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/23163933" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23163933</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Davies, Karen E., Marshall, Julie, Brown, Laura J., Goldbart, Juliet, Co-working: Parents’ conception of roles in supporting their children’s speech and language development, Child Language Teaching and Therapy, 33, 171–185, 2017
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Davies-House, A., Ball, N., Balmer, C., Meeting and greeting in the clinical setting - are we doing what patients want?, British dental journal, 222, 457–461, 2017 [<a href="https://pubmed.ncbi.nlm.nih.gov/28336989" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28336989</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Day, E. R., Jones, L., Langner, R., Stirling, L. C., Hough, R., Bluebond-Langner, M., Teenagers’ perspectives on their decisional involvement in the context of interactions with healthcare professionals, Archives of disease in childhood, 102 (Supplement 1), A2, 2017
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Day, Emma, Jones, Louise, Langner, Richard, Bluebond-Langner, Myra, Current understanding of decision-making in adolescents with cancer: A narrative systematic review, Palliative Medicine, 30, 920–934, 2016 [<a href="/pmc/articles/PMC5117127/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5117127</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/27160700" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27160700</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
de Anstiss and Ziaian, Mental health help-seeking and refugee adolescents: Qualitative findings from a mixed-methods investigation, Aust Psychol, 45, 29–37, 2010
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Australia</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
De Vries
|
|
MC, Bresters
|
|
D, Kaspers
|
|
GJL, et al, What constitutes the best interest of a child? Views of parents, children, and physicians in a pediatric oncology setting., AJOB Prim Res, 4, 1–10, 2012
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: The Netherlands</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Dean, L. A., An exploration of the experiences of young people who have been nursed on adult wards, Archives of disease in childhood, 1), A76, 2012
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Dean, L., Black, S., Exploring the experiences of young people nursed on adult wards, British journal of nursing (Mark Allen Publishing), 24, 229–236, 2015 [<a href="https://pubmed.ncbi.nlm.nih.gov/25723268" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25723268</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Deldar, K., Bahaadinbeigy, K., Tara, S. M., Teleconsultation and clinical decision making: A systematic review, Acta Informatica Medica, 24, 286–292, 2016 [<a href="/pmc/articles/PMC5037984/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5037984</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/27708494" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27708494</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Focus on medical professional views</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
DeLemos, D., Chen, M., Romer, A., Brydon, K., Kastner, K., Anthony, B., Hoehn, K. S., Building trust through communication in the intensive care unit: HICCC, Pediatric Critical Care Medicine, 11, 378–384, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/19770787" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 19770787</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Unclear population - Population is parents with no way of ascertaining age of child.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Dewlett, S., Polychronakis, T., Ng, G. Y. T., Look who’s talking: How well are we communicating with parents in the neonatal unit? A patient survey, Intensive Care Medicine, 37, S419–S420, 2011
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Dhital, R., Whittlesea, C. M., Norman, I. J., Milligan, P., Community pharmacy service users’ views and perceptions of alcohol screening and brief intervention, Drug and Alcohol Review, 29, 596–602, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/20973842" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20973842</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Unclear population - Age of respondents not given.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Diagnosis, assessment, and treatment of childhood eczema in primary care: crosssectional study, BJGP open, 1, 2017 [<a href="/pmc/articles/PMC6169955/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6169955</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30564671" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30564671</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Dibley, L., Czuber-Dochan, W., Duncan, J., Artom, M., Burch, J., Wade, T., Verjee, A., Cann, D., Warusavitarne, J., Norton, C., Decision-making about emergency and planned stoma surgery for IBD: A qualitative exploration of patient and clinician perspectives, Journal of Crohn’s and Colitis, 11 (Supplement 1), S487–S488, 2017 [<a href="https://pubmed.ncbi.nlm.nih.gov/29361098" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29361098</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Dickens, G., Picchioni, M., A systematic review of the terms used to refer to people who use mental health services: user perspectives, The International journal of social psychiatry, 58, 115–122, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/21339236" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21339236</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Dodoo, T., Murhad, Y., Batchelor, H. K., Stirling, H. F., Supporting young people to take their medication, Archives of Disease in Childhood, 102, A51, 2017
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Donnellan, D., Murray, C., Harrison, J., An investigation into adolescents’ experience of cognitive behavioural therapy within a child and adolescent mental health service, Clinical Child Psychology and Psychiatry, 18, 199–213, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/22669971" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22669971</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - Information too specific to cognitive behaviour therapy to be generalizable.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Dovey-Pearce, Gail, Price, Christine, Wood, Helen, Scott, Tracy, Cookson, Jennifer, Corbett, Sally, Young people (13 to 21) with disabilities in transition from childhood to adulthood: An exploratory, qualitative study of their developmental experiences and health care needs, Educational and Child Psychology, 29, 86–100, 2012
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Age 13–21 years (82% over 16) with results not presented separately for target population.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Downing, J., Gleeson, H., Clayton, P. E., Davis, J. R. E., Dimitri, P., Wales, J., Young, B., Callery, P., Communication with young people in paediatric and adult endocrine consultations: an intervention development and feasibility study, BMC Endocrine Disorders, 17, 33, 2017 [<a href="/pmc/articles/PMC5472891/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5472891</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28619024" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28619024</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - Information too specific to forensic interview protocol aids to be generalizable.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Drake, E. K., Urquhart, R., The Experiences of Young Adults Living with Metastatic/Advanced Cancer: A Scoping Review, Journal of Adolescent and Young Adult Oncology, 9, 145–156, 2020 [<a href="https://pubmed.ncbi.nlm.nih.gov/31692403" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31692403</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Scoping review. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Drewett, O., Hann, G., Price, N., Tipper, C., Devereux, E., A qualitative study to explore the use of the RCPCH epilepsy passport, Archives of disease in childhood, 102 (Supplement 1), A150, 2017
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Duckett, Paul, Kagan, Carolyn, Sixsmith, Judith, Consultation and participation with children in healthy schools: Choice, conflict and context, American Journal of Community Psychology, 46, 167–178, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/20526665" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20526665</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - Educational experiences of children and young adults.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Dugdale, E., Gerrard, G., Priestley, L., Mariappan, L., Choong, E. S., Follow up of low risk thyroid cancer patients by specialist nurse phone consultations rather than via clinic visits, European Thyroid Journal, 1), 165–166, 2014
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Dunne, A., Carolan, R., Swords, L., Fortune, G., Patient and family perspectives of paediatric psychogenic non-epileptic seizures: A systematic review, Seizure, 71, 279–285, 2019 [<a href="https://pubmed.ncbi.nlm.nih.gov/31493680" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31493680</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Duran, C., Curtis-Tyler, K., Exploring children’s healthcare experiences of haematopoietic stem cell transplantation (HSCT)-a small scale study for service improvement, Bone Marrow Transplantation, 1), S257, 2016
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Edbrooke-Childs, J., Edridge, C., Averill, P., Delane, L., Hollis, C., Craven, M. P., Martin, K., Feltham, A., Jeremy, G., Deighton, J., Wolpert, M., A Feasibility Trial of Power Up: Smartphone App to Support Patient Activation and Shared Decision Making for Mental Health in Young People, JMIR MHealth and UHealth, 7, e11677, 2019 [<a href="/pmc/articles/PMC6682268/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6682268</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/31165709" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31165709</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Edbrooke-Childs, J., Jacob, J., Argent, R., Patalay, P., Deighton, J., Wolpert, M., The relationship between child- and parent-reported shared decision making and child-, parent-, and clinician-reported treatment outcome in routinely collected child mental health services data, Clinical Child Psychology & Psychiatry, 21, 324–38, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/26104790" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26104790</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Edwards, M., Lawson, C., Rahman, S., Conley, K., Phillips, H., Uings, R., What does quality healthcare look like to adolescents and young adults? Ask the experts!, Clinical Medicine, Journal of the Royal College of Physicians of London, 16, 146–151, 2016 [<a href="/pmc/articles/PMC4952968/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4952968</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/27037384" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27037384</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Age of participants 17–25 with data not presented separately for target population.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Egbunike, J. N., Shaw, C., Porter, A., Button, L. A., Kinnersley, P., Hood, K., Bowden, S., Bale, S., Snooks, H., Edwards, A., Streamline triage and manage user expectations: lessons from a qualitative study of GP out-of-hours services, British Journal of General Practice, 60, e83–97, 2010 [<a href="/pmc/articles/PMC2828862/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC2828862</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/20202350" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20202350</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Unclear population - No way of determining age source of data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
El Miedany, Y., Lotfy, H., El Aroussy, N., Mekkawy, D., Nasef, S. I., Hassan, W., El Deriny, G., Farag, Y., Eissa, M., Almedany, S., El Gaafary, M., Facilitating patient centred care: The development of illustrated multidimensional patient reported outcome measure for children with juvenile idiopathic arthritis, Annals of the rheumatic diseases, 77 (Supplement 2), 502, 2018
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Elwell, L., Grogan, S., Coulson, N., Adolescents living with cancer: the role of computer-mediated support groups, Journal of health psychology, 16, 236–248, 2011 [<a href="https://pubmed.ncbi.nlm.nih.gov/20733012" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20733012</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Unclear population - Age of study population not reported.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ely, B., Chen Lim, M., Becker, E., Wilson
|
|
Jr, B., The pain experience of hospitalized youth: Assessment and management preferences, Journal of Pain, 1), S3, 2016
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ely, E., Chen-Lim, M. L., Carpenter, K. M., Wallhauser, E., Friedlaender, E., Pain Assessment of Children with Autism Spectrum Disorders, Journal of developmental and behavioral pediatrics : JDBP, 37, 53–61, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/26703326" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26703326</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Epstein, E. G., Arechiga, J., Dancy, M., Simon, J., Wilson, D., Alhusen, J. L., Integrative Review of Technology to Support Communication With Parents of Infants in the NICU, 46, 357–366, 2017 [<a href="/pmc/articles/PMC5441555/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5441555</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28263727" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28263727</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Duplicate</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Epstein, Elizabeth G., Arechiga, Jaqueline, Dancy, Margaret, Simon, Jordan, Wilson, Daniel, Alhusen, Jeanne L., Integrative review of technology to support communication with parents of infants in the NICU, Journal of Obstetric, Gynecologic, & Neonatal Nursing: Clinical Scholarship for the Care of Women, Childbearing Families, & Newborns, 46, 357–366, 2017 [<a href="/pmc/articles/PMC5441555/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5441555</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28263727" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28263727</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Epstein, Elizabeth Gingell, Sherman, Jessica, Blackman, Amy, Sinkin, Robert A., Testing the feasibility of Skype and FaceTime updates with parents in the neonatal intensive care unit, American Journal of Critical Care, 24, 290–296, 2015 [<a href="https://pubmed.ncbi.nlm.nih.gov/26134328" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26134328</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Evans, J., Rose, D., Flach, C., Csipke, E., Glossop, H., McCrone, P., Craig, T., Wykes, T., VOICE: developing a new measure of service users’ perceptions of inpatient care, using a participatory methodology, Journal of Mental Health, 21, 57–71, 2012 [<a href="/pmc/articles/PMC4018995/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4018995</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/22257131" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22257131</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Outcome not in protocol - Validity study of experience measure. No qualitative data presented.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Evans, N., Experiences of a child and adolescent mental health service, Nursing Children and Young People, 29, 41–45, 2017 [<a href="https://pubmed.ncbi.nlm.nih.gov/28604203" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28604203</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Everley, S., Children’s understanding of physical activity and health, Obesity facts, 10 (Supplement 1), 227, 2017
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Fangstrom, Karin, Sarkadi, Anna, Lucas, Steven, Calam, Rachel, Eriksson, Maria, “And they gave me a shot, it really hurt”-Evaluative content in investigative interviews with young children, Children and Youth Services Review, 82, 434–443, 2017
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - Information too specific to forensic interview protocol aids to be generalizable.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Fawcett, R., Porritt, K., Stern, C., Carson-Chahhoud, K., Experiences of parents and carers in managing asthma in children: A qualitative systematic review, JBI Database of Systematic Reviews and Implementation Reports, 17, 793–984, 2019 [<a href="https://pubmed.ncbi.nlm.nih.gov/31090652" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31090652</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Fazel, M., Garcia, J., Stein, A., The right location? Experiences of refugee adolescents seen by school-based mental health services, Clinical Child Psychology and Psychiatry, 21, 368–380, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/26907460" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26907460</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Flett, A. M., Hall, M., McCarthy, C., Marshman, Z., Benson, P. E., Does the British Orthodontic Society orthognathic DVD aid a prospective patient’s decision making? A qualitative study, Journal of orthodontics, 41, 88–97, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/24521747" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 24521747</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Flynn,D., Knoedler,M.A., Hess,E.P., Murad,M.H., Erwin,P.J., Montori,V.M., Thomson,R.G., Engaging patients in health care decisions in the emergency department through shared decision-making: A systematic review, Academic Emergency Medicine, 19, 959–967, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/22853804" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22853804</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Fortier, M. A., Chorney, J. M., Rony, R. Y. Z., Perret-Karimi, D., Rinehart, J. B., Camilon, F. S., Kain, Z. N., Children’s desire for perioperative information, Anesthesia and Analgesia, 109, 1085–1090, 2009 [<a href="/pmc/articles/PMC2910260/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC2910260</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/19762736" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 19762736</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Foster, M. J., Whitehead, L., Maybee, P., Cullens, V., The parents’, hospitalized child’s, and health care providers’ perceptions and experiences of family centered care within a pediatric critical care setting: a metasynthesis of qualitative research, Journal of Family Nursing, 19, 431–468, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/23884697" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23884697</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Foster, Mandie Jane, Whitehead, Lisa, Maybee, Patricia, Cullens, Victoria, The parents’, hospitalized child’s, and health care providers’ perceptions and experiences of family centered care within a pediatric critical care setting: A metasynthesis of qualitative research, Journal of Family Nursing, 19, 431–468, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/23884697" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23884697</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Franck, L. S., Oulton, K., Bruce, E., Parental involvement in neonatal pain management: an empirical and conceptual update, J Nurs Scholarsh, 44, 45–54, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/22339845" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22339845</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Franck, L. S., Oulton, K., Nderitu, S., Lim, M., Fang, S., Kaiser, A., Parent involvement in pain management for NICU infants: A randomized controlled trial, PediatricsPediatrics, 128, 510–518, 2011 [<a href="https://pubmed.ncbi.nlm.nih.gov/21859919" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21859919</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Freer, Y., McIntosh, N., Teunisse, S., Anand, K. J., Boyle, E. M., More information, less understanding: a randomized study on consent issues in neonatal research, Pediatrics, 123, 1301–1305, 2009 [<a href="https://pubmed.ncbi.nlm.nih.gov/19403495" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 19403495</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Gates, M., Shulhan-Kilroy, J., Featherstone, R., MacGregor, T., Scott, S. D., Hartling, L., Parent experiences and information needs related to bronchiolitis: A mixed studies systematic review, Patient Education and Counseling, 102, 864–878, 2019 [<a href="https://pubmed.ncbi.nlm.nih.gov/30573297" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30573297</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Giambra, B. K., Stiffler, D., Broome, M. E., An integrative review of communication between parents and nurses of hospitalized technology-dependent children, Worldviews on evidence-based nursing / Sigma Theta Tau International, Honor Society of Nursing, 11, 369–375, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/25230724" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25230724</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Gondek, D., Edbrooke-Childs, J., Velikonja, T., Chapman, L., Saunders, F., Hayes, D., Wolpert, M., Facilitators and Barriers to Person-centred Care in Child and Young People Mental Health Services: A Systematic Review, Clinical Psychology & Psychotherapy, 24, 870–886, 2017 [<a href="https://pubmed.ncbi.nlm.nih.gov/27910173" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27910173</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Graham, R., Pemstein, D., & Curley, M. , Experiencing the pediatric intensive care unit: Perspective from parents of children with severe antecedent disabilities. , Critical Care Medicine, 37, 2064–2070, 2009 [<a href="https://pubmed.ncbi.nlm.nih.gov/19384200" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 19384200</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: USA</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Grainger, H., Joyce, C., Beuschel, S., Davies, A., Shreeve, K., Super blood! development of a child patient information leaflet, Transfusion Medicine, 2), 45, 2014
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Grealish, A., Tai, S., Hunter, A., Morrison, A. P., Qualitative exploration of empowerment from the perspective of young people with psychosis, Clinical Psychology & Psychotherapy, 20, 136–148, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/21882298" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21882298</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Gregory, J. W., UK: Communication in patient-centered care, Pediatric diabetes, 18), 8, 2013
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Grist, Rebecca, Porter, Joanna, Stallard, Paul, Mental health mobile apps for preadolescents and adolescents: A systematic review, Journal of medical internet research, 19, 153–166, 2017 [<a href="/pmc/articles/PMC5465380/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5465380</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28546138" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28546138</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Guest, J., Cheal, H., Welcome to Ward 3 at the Great North children’s hospital-a fun guide to your first two days with us (DVD format patient family information), Bone Marrow Transplantation, 1), S519, 2016
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Gund
|
|
A, Sjoqvist
|
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BA, Wigert
|
|
H, Hentz
|
|
E, Lindecrantz
|
|
K, Bry
|
|
K, A randomized controlled study about the use of eHealth in the home health care of premature infants, Neonatal Intensive Care, 26, 42–50, 2013 [<a href="/pmc/articles/PMC3583709/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC3583709</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/23394465" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23394465</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Sweden</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Gurung, G., Richardson, A., Wyeth, E., Edmonds, L., Derrett, S., Child/youth, family and public engagement in paediatric services in high-income countries: A systematic scoping review, Health expectations : an international journal of public participation in health care and health policy, 23, 261–273, 2020 [<a href="/pmc/articles/PMC7104655/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC7104655</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/31981295" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31981295</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Scoping review. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Gutman, T., Hanson, C. S., Bernays, S., Craig, J. C., Sinha, A., Dart, A., Eddy, A. A., Gipson, D. S., Bockenhauer, D., Yap, H. K., Groothoff, J., Zappitelli, M., Webb, N. J. A., Alexander, S. I., Goldstein, S. L., Furth, S., Samuel, S., Blydt-Hansen, T., Dionne, J., Michael, M., Wenderfer, S. E., Winkelmayer, W. C., Currier, H., McTaggart, S., Walker, A., Ralph, A. F., Ju, A., James, L. J., Carter, S., Tong, A., Child and Parental Perspectives on Communication and Decision Making in Pediatric CKD: A Focus Group Study, American Journal of Kidney Diseases, 72, 547–559, 2018 [<a href="https://pubmed.ncbi.nlm.nih.gov/29980375" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29980375</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Countries: Australia, Canada and USA</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Hajivassiliou, E. C., Hajivassiliou, C. A., Informed consent in primary dental care: patients’ understanding and satisfaction with the consent process, British dental journal, 219, 221–224, 2015 [<a href="https://pubmed.ncbi.nlm.nih.gov/26361123" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26361123</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Adults with capacity.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Hamama, Liat, Ronen, Tammie, Children’s drawings as a self-report measurement, Child & Family Social Work, 14, 90–102, 2009
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Israel</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Hamann, J., Kohl, S., McCabe, R., Buhner, M., Mendel, R., Albus, M., Bernd, J., What can patients do to facilitate shared decision making? A qualitative study of patients with depression or schizophrenia and psychiatrists, Social psychiatry and psychiatric epidemiology, 51, 617–625, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/26155899" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26155899</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Adult population only aged 18–65 years.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Harper, B., Dickson, J. M., Bramwell, R., Experiences of young people in a 16–18 Mental Health Service, Child and Adolescent Mental Health, 19, 90–96, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/32878383" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 32878383</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Harper, Ben, Dickson, Joanne M., Bramwell, Ros, Experiences of young people in a 16-18 Mental Health Service, Child and Adolescent Mental Health, 19, 90–96, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/32878383" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 32878383</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Duplicate</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Hartling, L., Scott, S., Pandya, R., Johnson, D., Bishop, T., Klassen, T. P., Storytelling as a communication tool for health consumers: development of an intervention for parents of children with croup. Stories to communicate health information, BMC pediatrics, 10, 64, 2010 [<a href="/pmc/articles/PMC2940891/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC2940891</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/20813044" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20813044</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Narrative description of intervention development.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Harvey, M. E., Redshaw, M. E., Analysis of audio-recordings of discussions between parents and clinicians regarding scanning results, Archives of Disease in Childhood: Fetal and Neonatal Edition, 99, A57, 2014
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Heinemann, A. B., Hellstrom-Westas, L., Hedberg Nyqvist, K., Factors affecting parents’ presence with their extremely preterm infants in a neonatal intensive care room, Acta Paediatr, 102, 695–702, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/23590800" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23590800</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Sweden</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Hemsley, B., Bastock, K., Baladin, S., Davidson, B., Scarinci, N., Worrall, L., Communication during hospitalization: The path to better healthcare for children and adults with cerebral palsy, Developmental Medicine and Child Neurology, 54, 31–32, 2012
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Hill, C., Knafl, K. A., Santacroce, S. J., Family-Centered Care From the Perspective of Parents of Children Cared for in a Pediatric Intensive Care Unit: An Integrative Review, Journal of pediatric nursing., 16, 2017 [<a href="/pmc/articles/PMC5955783/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5955783</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/29153934" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29153934</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Hill, J., Masding, M. G., The development of an innovative mobile phone App for Type 1 diabetes alcohol education, Diabetic medicine, 1), 112, 2013
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Hinton, D., Kirk, S., Paediatric multiple sclerosis: A qualitative study of families’ diagnosis experiences, Archives of disease in childhood, 100, 623–629, 2015 [<a href="https://pubmed.ncbi.nlm.nih.gov/25552262" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25552262</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Hughes, B., O’Brien, M. R., Flynn, A., Knighting, K., The engagement of young people in their own advance care planning process: A systematic narrative synthesis, Palliative Medicine, 32, 1147–1166, 2018 [<a href="https://pubmed.ncbi.nlm.nih.gov/29720032" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29720032</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Hughes, V. C., Phillips, S., Exploring the pre-hospitalisation needs of parents of children with cystic fibrosis, Journal of Cystic Fibrosis, 13, S115, 2014
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Hunt, A., Brown, E., Coad, J., Staniszewska, S., Hacking, S., Chesworth, B., Chambers, L., ‘Why does it happen like this?’ Consulting with users and providers prior to an evaluation of services for children with life limiting conditions and their families, Journal of child health care : for professionals working with children in the hospital and community, 19, 320–333, 2015 [<a href="/pmc/articles/PMC4561454/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4561454</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/24270996" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 24270996</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ignatowicz, Agnieszka, Slowther, Anne-Marie, Elder, Patrick, Bryce, Carol, Hamilton, Kathryn, Huxley, Caroline, Forjaz, Vera, Sturt, Jackie, Griffiths, Frances, Ethical implications of digital communication for the patient-clinician relationship: Analysis of interviews with clinicians and young adults with long term conditions (the LYNC study), BMC Medical Ethics Vol 19
|
|
2018, ArtID 11, 19, 2018 [<a href="/pmc/articles/PMC5824603/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5824603</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/29475437" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29475437</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Clinicians and patients (aged 16-24 years) with data not presented separately for target population.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ion, R., Cropper, J., Walters, H., Involving young people in decision making about sequential cochlear implantation, Cochlear Implants International, 14, S44–S47, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/24533764" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 24533764</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Jacob, J., Edbrooke-Childs, J., Holley, S., Law, D., Wolpert, M., Horses for courses? A qualitative exploration of goals formulated in mental health settings by young people, parents, and clinicians, Clinical child psychology and psychiatry, 21, 208–223, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/25810417" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25810417</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - Information too specific to individual goal examples to be generalizable.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Jacob, J., Edbrooke-Childs, J., Law, D., Wolpert, M., Measuring what matters to patients: Using goal content to inform measure choice and development, Clinical Child Psychology and Psychiatry, 22, 170–186, 2017 [<a href="https://pubmed.ncbi.nlm.nih.gov/26721283" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26721283</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Jansen, R., Reid, M., Caregivers of adolescents with mental health issues using communication technology: a systematic review, JMIR mHealth and uHealth, 2020 [<a href="/pmc/articles/PMC7468639/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC7468639</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/32663143" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 32663143</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Jefferies, K., Haest, J., Edge, J., Admission pack for newly diagnosed diabetes: Help or hindrance?, Archives of disease in childhood, 1), A120, 2012
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Jenkins, Peter, Having confidence in therapeutic work with young people: Constraints and challenges to confidentiality, British Journal of Guidance & Counselling, 38, 263–274, 2010
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Narrative review. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Joanne, C., Deepa, P., Emily, W., Vanessa, M., An evaluation of the views of adolescent patients with a learning disability and their carers on a medicines information leaflet, Archives of Disease in Childhood. Conference: 22nd Annual Conference of the Neonatal and Paediatric Pharmacists Group. United Kingdom, 103, 2018
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Jobbins, A., Baily, C., Wilkinson, G., Menzies, J., Mildner, R., Adolescents in PICU: Are we meeting their needs?, Pediatric critical care medicine, 1), A37–A38, 2011
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Kean, S., Children and young people visiting an adult intensive care unit, Journal of advanced nursing, 66, 868–877, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/20423374" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20423374</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - Reports experiences of children visiting family members in intensive care.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Kerri, O., Byron, P., Improving strategies to better support adolescents with cancer: The creation of an “adolescent-friendly oncology ward”, Pediatric Blood and Cancer, 53 (5), 751–752, 2009
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Kew, K. M., Malik, P., Aniruddhan, K., Normansell, R., Shared decision-making for people with asthma, Cochrane Database of Systematic Reviews, 2017 [<a href="/pmc/articles/PMC6485676/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6485676</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28972652" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28972652</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Duplicate paper</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Kew, K. M., Malik, P., Aniruddhan, K., Normansell, R., Shared decision-making for people with asthma, Cochrane Database of Systematic Reviews, 2017 (10) (no pagination), 2017 [<a href="/pmc/articles/PMC6485676/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6485676</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28972652" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28972652</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Latour, Jos M., van Goudoever, Johannes B., Schuurman, Beatrix Elink, Albers, Marcel J. I. J., van Dam, Nicolette A. M., Dullaart, Eugenie, van Heerde, Marc, Verlaat, Carin W. M., van Vught, Elise M., Hazelzet, Jan A., A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units, Intensive care medicineIntensive Care Med, 37, 319–325, 2011 [<a href="/pmc/articles/PMC3028069/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC3028069</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/21063674" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21063674</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: The Netherlands</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Lawrence, M., Young adults’ experience of stroke: a qualitative review of the literature, British journal of nursing (Mark Allen Publishing), 19, 241–248, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/20220675" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20220675</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Adults 18–65 years</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Lawton, J., Waugh, N., Noyes, K., Barnard, K., Harden, J., Bath, L., Stephen, J., Rankin, D., Improving communication and recall of information in paediatric diabetes consultations: A qualitative study of parents’ experiences and views, BMC pediatrics, 15 (1) (no pagination), 2015 [<a href="/pmc/articles/PMC4460975/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4460975</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/26054649" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26054649</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Unclear population - Parents of children with Type 1 diabetes with no way of discerning age of children.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Lea, S., Martins, A., Morgan, S., Cargill, J., Taylor, R. M., Fern, L. A., Online information and support needs of young people with cancer: A participatory action research study, Adolescent Health, Medicine and Therapeutics, 9, 121–135, 2018 [<a href="/pmc/articles/PMC6167089/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6167089</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30310338" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30310338</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not protocol - Ages 13–24 years with data not presented separately for target population.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Lerch, Matthew F., Thrane, Susan E., Arnett, Babler
|
|
Baucom Bishay Borus Dashiff Gaston Heath Hilliard Kayle King Knopf Miller Polfuss Sanders Sawicki Seiffge-Krenke Skinner Stevens Vygotsky Williams, Adolescents with chronic illness and the transition to self-management: A systematic review, Journal of Adolescence, 72, 152–161, 2019 [<a href="https://pubmed.ncbi.nlm.nih.gov/30903932" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30903932</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Levin, A. B., Fisher, K. R., Cato, K. D., Zurca, A. D., October, T. W., An Evaluation of Family-Centered Rounds in the PICU: Room for Improvement Suggested by Families and Providers, Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care SocietiesPediatr Crit Care Med, 16, 801–7, 2015 [<a href="https://pubmed.ncbi.nlm.nih.gov/26181298" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26181298</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: USA</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
LGBT Youth Scotland
|
|
et al, Life in Scotland for LGBT young people: Health Report, 2013
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Grey literature survey</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Lindberg, Birgitta, Axelsson, Karin, Öhrling, Kerstin, Taking care of their baby at home but with nursing staff as support: The use of videoconferencing in providing neonatal support to parents of preterm infants, Journal of Neonatal Nursing, 15, 47–55, 2009
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Sweden</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Lion, K. C., Kieran, K., Desai, A., Hencz, P., Ebel, B. E., Adem, A., Forbes, S., Kraus, J., Gutman, C., Horn, I., Audio-Recorded Discharge Instructions for Limited English Proficient Parents: A Pilot Study, Joint Commission Journal on Quality and Patient Safety, 45, 98–107, 2019 [<a href="/pmc/articles/PMC6378142/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6378142</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30126714" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30126714</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Liossi, C., Noble, G., Franck, L. S., How parents make sense of their young children’s expressions of everyday pain: A qualitative analysis, European journal of pain (united kingdom), 16, 1166–1175, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/22344633" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22344633</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Lipstein, E. A., Brinkman, W. B., Britto, M. T., What is known about parents’ treatment decisions? A narrative review of pediatric decision making, Medical decision making : an international journal of the Society for Medical Decision Making, 32, 246–258, 2012 [<a href="/pmc/articles/PMC3756486/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC3756486</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/21969136" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21969136</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Narrative review. Included studies checked for possible inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Little, P., White, P., Kelly, J., Everitt, H., Gashi, S., Bikker, A., Mercer, S., Verbal and non-verbal behaviour and patient perception of communication in primary care: An observational study, British journal of general practice, 65, e357–e365, 2015 [<a href="/pmc/articles/PMC4439825/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4439825</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/26009530" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26009530</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Loewenstein, K., Barroso, J., Phillips, S., The Experiences of Parents in the Neonatal Intensive Care Unit: An Integrative Review of Qualitative Studies Within the Transactional Model of Stress and Coping, The Journal of perinatal & neonatal nursing, 33, 340–349, 2019 [<a href="https://pubmed.ncbi.nlm.nih.gov/31651628" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31651628</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Macdonald, M. E., Liben, S., Carnevale, F. A., Cohen, S. R., An office or a bedroom? Challenges for family-centered care in the pediatric intensive care unit, J Child Health Care, 16, 237–49, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/22308544" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22308544</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Canada</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Martin-Kerry, J. M., Knapp, P., Atkin, K., Bower, P., Watt, I., Stones, C., Higgins, S., Sheridan, R., Preston, J., Horton Taylor, D., Baines, P., Young, B., Supporting children and young people when making decisions about joining clinical trials: Qualitative study to inform multimedia website development, BMJ open, 9 (1) (no pagination), 2019 [<a href="/pmc/articles/PMC6340013/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6340013</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30782720" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30782720</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Age 6–19 years with data not presented separately for target population.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Masoumi, M., Shahhosseini, Z., Self-care challenges in adolescents: A comprehensive literature review, International Journal of Adolescent Medicine and Health, 31, 0152, 2019 [<a href="https://pubmed.ncbi.nlm.nih.gov/28599383" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28599383</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Mc Manus, V., Savage, E., Cultural perspectives of interventions for managing diabetes and asthma in children and adolescents from ethnic minority groups, Child: Care, Health and Development, 36, 612–622, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/20533918" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20533918</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
McKenna, K., Collier, J., Hewitt, M., Blake, H., Parental involvement in paediatric cancer treatment decisions, Eur J Cancer Care (Engl), 19, 621–30, 2010 [<a href="/pmc/articles/PMC3178788/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC3178788</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/19807776" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 19807776</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
McMillan, S. S., Wilson, B., Stapleton, H., Wheeler, A. J., Young people’s experiences with mental health medication: A narrative review of the qualitative literature, Journal of Mental Health, 2020 [<a href="https://pubmed.ncbi.nlm.nih.gov/32031034" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 32031034</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Narrative review. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
McPherson, G., Jefferson, R., Kissoon, N., Kwong, L., Rasmussen, K., Toward the inclusion of parents on pediatric critical care unit rounds, Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care SocietiesPediatr Crit Care Med, 12, e255–61, 2011 [<a href="https://pubmed.ncbi.nlm.nih.gov/21057363" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21057363</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Canada</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Miller, V. A., Parent-child collaborative decision making for the management of chronic illness: a qualitative analysis, Fam Syst Health, 27, 249–66, 2009 [<a href="/pmc/articles/PMC2844115/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC2844115</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/19803619" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 19803619</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: USA</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Mimmo, L., Harrison, R., Taking time to care: Meta narrative review of the experience of parents with a child with intellectual disability in hospital, Journal of Intellectual Disability Research, 63, 812, 2019
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Mimmo, L., Woolfenden, S., Travaglia, J., Harrison, R., Partnerships for safe care: A meta-narrative of the experience for the parent of a child with Intellectual Disability in hospital, Health Expectations, 22, 1199–1212, 2019 [<a href="/pmc/articles/PMC6882263/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6882263</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/31560839" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31560839</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Mitchell, Wendy, Parents’ accounts: Factors considered when deciding how far to involve their son/daughter with learning disabilities in choice-making, Children and Youth Services Review, 34, 1560–1569, 2012
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Nair, T., Savulescu, J., Everett, J., Tonkens, R., Wilkinson, D., Settling for second best: when should doctors agree to parental demands for suboptimal medical treatment?, Journal of medical ethics, 43, 831–840, 2017 [<a href="/pmc/articles/PMC5827708/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5827708</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28947505" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28947505</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - Empirical and ethical analyses only</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Neill, S. J., Jones, C. H., Lakhanpaul, M., Roland, D. T., Thompson, M. J., Parents’ help-seeking behaviours during acute childhood illness at home: A contribution to explanatory theory, Journal of child health care : for professionals working with children in the hospital and community, 20, 77–86, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/25296933" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25296933</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Neill, S. J., Jones, C. H., Lakhanpaul, M., Roland, D. T., Thompson, M. J., Parent’s information seeking in acute childhood illness: what helps and what hinders decision making?, Health expectations : an international journal of public participation in health care and health policy, 18, 3044–3056, 2015 [<a href="/pmc/articles/PMC5810715/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5810715</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/25327454" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25327454</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Neill, S., Roland, D., Jones, C. H. D., Thompson, M., Lakhanpaul, M., Information resources to aid parental decision-making on when to seek medical care for their acutely sick child: A narrative systematic review, BMJ open, 5 (12) (no pagination), 2015 [<a href="/pmc/articles/PMC4691730/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4691730</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/26674495" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26674495</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Nelson, P. A., Kirk, S. A., Parents’ perspectives of cleft lip and/or palate services: A qualitative interview, Cleft Palate-Craniofacial Journal, 50, 275–285, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/22849641" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22849641</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - Information too specific to cleft lip palate and/or services to be generalizable.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ngo-Metzger, Q., Hayes, G. R., Yunan, Chen, Cygan, R., Garfield, C. F., Improving communication between patients and providers using health information technology and other quality improvement strategies: focus on low-income children, Medical Care Research & ReviewMed Care Res Rev, 67, 246S–267S, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/20675346" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20675346</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Nicholls, S. G., Southern, K. W., Parental selection and use of information when learning about newborn bloodspot screening, Pediatric Pulmonology, 46, 427, 2011
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Nik-Hussin, N. M. H., Saleem, Y., Sivayoham, E., Rothera, M. P., A survey of parent’s attitudes towards viewing intraoperative photographs used as an educational tool, International journal of pediatric otorhinolaryngology, 73, 585–588, 2009 [<a href="https://pubmed.ncbi.nlm.nih.gov/19250689" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 19250689</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Obeysekera, M., Tanney, K., Picture books to improve the quality of communication in newborn intensive care, Archives of Disease in Childhood, 102, A88, 2017
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Ochieng, B. M., Black African migrants: the barriers with accessing and utilizing health promotion services in the UK, European Journal of Public Health, 23, 265–269, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/22683768" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22683768</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - >18 years old.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
October, Tessie W., Fisher, Kiondra R., Feudtner, Chris, Hinds, Pamela S., The parent perspective: “being a good parent” when making critical decisions in the PICU, Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care SocietiesPediatr Crit Care Med, 15, 291–298, 2014 [<a href="/pmc/articles/PMC4353698/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4353698</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/24583502" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 24583502</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: USA</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
O’Hare, L., Santin, O., Winter, K., McGuinness, C., The reliability and validity of a Child and Adolescent Participation in Decision-Making Questionnaire, Child: care, health and development, 42, 692–698, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/27345443" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27345443</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
O’Reilly, M., Karim, K., Taylor, H., Dogra, N., Parent and child views on anonymity: ‘I’ve got nothing to hide’, International Journal of Social Research Methodology: Theory & Practice, 15, 211–223, 2012
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Oulton, K., Wray, J., Carr, L., Hassiotis, A., Jewitt, C., Kerry, S., Tuffrey-Wijne, I., Gibson, F., Pay More Attention: a national mixed methods study to identify the barriers and facilitators to ensuring equal access to high-quality hospital care and services for children and young people with and without learning disabilities and their families, BMJ open, 6, 2016 [<a href="/pmc/articles/PMC5168702/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5168702</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/27940626" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27940626</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Published protocol with no experimental data</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Page, C. J., Dunkley, L., Edgerton, J., Hawley, D., Tattersall, R. S., Don’t lose your HEADSS in the adolescent clinic: An evaluation of how an adolescent rheumatology service counsels young people’s issues, Rheumatology (United Kingdom), 3), iii6, 2014
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Palatability of hypoallergenic formulas for cow’s milk allergy and healthcare professional recommendation, Pediatric allergy and immunology, 29, 857–862, 2018 [<a href="https://pubmed.ncbi.nlm.nih.gov/30192414" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30192414</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Views of healthcare providers only</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Pallotta-Chiarolli, Maria, Martin, Erik, “Which Sexuality? Which Service?”: Bisexual Young People’s Experiences with Youth, Queer and Mental Health Services in Australia, Journal of LGBT Youth, 6, 199–222, 2009
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Australia</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Pellerin-Leblanc, A. A., Derynck, M., Dow, K., Improving communication in the NICU: Parental perceptions and knowledge about resident physicians, Paediatrics and Child Health (Canada), 23 (Supplement 1), e47–e48, 2018
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Pepper,D., Rempel,G., Austin,W., Ceci,C., Hendson,L., More than information: a qualitative study of parents’ perspectives on neonatal intensive care at the extremes of prematurity, Advances in Neonatal Care, 12, 303–309, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/22964607" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22964607</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Canada</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Petrie, K., McArdle, A., Cookson, J., Powell, E., Poblete, X., ‘Let us speak’-children’s opinions of doctors, Archives of Disease in Childhood, 102 (Supplement 1), A200–A201, 2017
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Pini, S., Education mentoring for teenagers and young adults with cancer, British journal of nursing (Mark Allen Publishing), 18, 1316–1319, 2009 [<a href="https://pubmed.ncbi.nlm.nih.gov/20081681" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20081681</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Pyke-Grimm, Kimberly A., Franck, Linda S., Kelly, Katherine Patterson, Halpern-Felsher, Bonnie, Goldsby, Robert E., Kleiman, Ari, Rehm, Roberta S., Albritton, Alsous
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Barakat Bhatia Bhatia Bleyer Bluebond-Langner Britto Britto Broome Broome Butow Coccia Coyne Coyne Coyne Coyne Day de Vries Dunsmore Ellis Hinds Jacobs Joffe Kelly Knopf Lyon Martenson Masera Miller Miller Miller Miller Moher Noblit Pace Pearce Pluye Read Ruhe Ruhe Smith Snethen Spinetta Stegenga Stewart Tenniglo Unguru Unguru Weaver Whittemore Young Zwaanswijk Zwaanswijk, Treatment decision-making involvement in adolescents and young adults with cancer, Oncology Nursing Forum, 46, E22–E37, 2019
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Pyke-Grimm, Kimberly A., Franck, Linda S., Kelly, Katherine Patterson, Halpern-Felsher, Bonnie, Goldsby, Robert E., Kleiman, Ari, Rehm, Roberta S., Treatment decision-making involvement in adolescents and young adults with cancer, Oncology Nursing Forum, 46, E22–E37, 2019 [<a href="/pmc/articles/PMC7384435/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC7384435</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/30547960" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30547960</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Duplicate record - Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Read, N., Schofield, A., Autism: are mental health services failing children and parents?, The journal of family health care, 20, 120–124, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/21053660" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21053660</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population and study design not in protocol - No qualitative data for under 18s.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Redley, M., Prince, E., Bateman, N., Pennington, M., Wood, N., Croudace, T., Ring, H., The involvement of parents in healthcare decisions where adult children are at risk of lacking decision-making capacity: A qualitative study of treatment decisions in epilepsy, Journal of intellectual disability research, 57, 531–538, 2013 [<a href="https://pubmed.ncbi.nlm.nih.gov/22533531" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 22533531</span></a>]
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - Parents’ views with no way of discerning age of child</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Rennick, J., Lambert, S., Childerhose, J., Campbell-Yeo, M., Filion, F., & Johnston, C. , Mothers’ experiences of a touch and talk nursing intervention to optimize pain management in the PICU: A qualitative descriptive study. , Intensive & Critical Care Nursing, 27, 151–157, 2011 [<a href="https://pubmed.ncbi.nlm.nih.gov/21511475" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21511475</span></a>]
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Canada</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Richards, C. A., Starks, H., O’Connor, M. R., Doorenbos, A. Z., Elements of Family-Centered Care in the Pediatric Intensive Care Unit: An Integrative Review, Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, 19, 238–246, 2017 [<a href="/pmc/articles/PMC5421392/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5421392</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28496382" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28496382</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Richardson, C., Paslakis, G., Men’s experiences of eating disorder treatment: A qualitative systematic review of men-only studies, Journal of psychiatric and mental health nursing, 2020 [<a href="https://pubmed.ncbi.nlm.nih.gov/32608115" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 32608115</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Riddell, R., Lewis, A., Tuthill, D., PN for children-information leaflet, Archives of disease in childhood, 101 (9), A13, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/27540204" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27540204</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Robert, Marie, Leblanc, Line, Boyer, Thierry, When satisfaction is not directly related to the support services received: Understanding parents’ varied experiences with specialised services for children with developmental disabilities, British Journal of Learning Disabilities, 43, 168–177, 2015
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Canada</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Robertson, A. O., Tadic, V., Rahi, J. S., Transition from paediatric to adult ophthalmology services: what matters most to young people with visual impairment, Eye, 32, 406–414, 2018 [<a href="/pmc/articles/PMC5811720/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5811720</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28937148" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28937148</span></a>]
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - Child to adult healthcare transition.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Rosenthal, S. A., Nolan, M. T., A Meta-Ethnography and Theory of Parental Ethical Decision Making in the Neonatal Intensive Care Unit, Jognn-Journal of Obstetric Gynecologic and Neonatal Nursing, 42, 492–502, 2013 [<a href="/pmc/articles/PMC8979647/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC8979647</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/23773116" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23773116</span></a>]
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Rubin,S.E., McKee,M.D., Campos,G., O’Sullivan,L.F., Delivery of confidential care to adolescent males, Journal of the American Board of Family Medicine: JABFM, 23, 728–735, 2010 [<a href="/pmc/articles/PMC3986269/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC3986269</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/21057068" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21057068</span></a>]
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: USA</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Russell, G., Sawyer, A., Rabe, H., Abbott, J., Gyte, G., Duley, L., Ayers, S., Parents’ views on care of their very premature babies in neonatal intensive care units: a qualitative study, BMC Pediatrics, 14, 230, 2014 [<a href="/pmc/articles/PMC4190336/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4190336</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/25216714" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25216714</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - Experiences focus strongly on parent’s views only. Not a good proxy for unders 5s.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Saaltink, R., MacKinnon, G., Owen, F., Tardif-Williams, C., Protection, participation and protection through participation: young people with intellectual disabilities and decision making in the family context, J Intellect Disabil Res, 56, 1076–86, 2012 [<a href="https://pubmed.ncbi.nlm.nih.gov/23106751" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23106751</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Canada</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Sanders, C., Pritchard, E., Bray, L., McKenna, J., Exploring young people’s expectations and experiences of discussing sexual and relationship health with professionals in a children’s hospital, Journal of clinical nursing, 20, 1705–1712, 2011 [<a href="https://pubmed.ncbi.nlm.nih.gov/21457379" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21457379</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Sayal, Kapil, Mills, Jonathan, White, Kate, Merrell, Christine, Tymms, Peter, Predictors of and barriers to service use for children at risk of ADHD: Longitudinal study, European child & adolescent psychiatry, 24, 545–552, 2015 [<a href="https://pubmed.ncbi.nlm.nih.gov/25201055" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25201055</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Schaeuble, K., Haglund, K., Vukovich, M., Adolescents’ preferences for primary care provider interactions, J Spec Pediatr Nurs, 15, 202–10, 2010 [<a href="https://pubmed.ncbi.nlm.nih.gov/20618634" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 20618634</span></a>]
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: USA</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Scholefield, B., Gosney, J., Callens, C., Duncan, H., Morris, K., Draper, H., Consultation with children regarding deferred consent in emergency care research, Pediatric critical care medicine, 1), A44, 2011
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Sherratt, F. C., Beasant, L., Crawley, E. M., Hall, N. J., Young, B., Enhancing communication, informed consent and recruitment in a paediatric urgent care surgical trial: A qualitative study, BMC Pediatrics, 20, 140, 2020 [<a href="/pmc/articles/PMC7106711/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC7106711</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/32228534" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 32228534</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Sime, D., ‘I think that Polish doctors are better’: Newly arrived migrant children and their parents’ experiences and views of health services in Scotland, Health and Place, 30, 86–93, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/25237717" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25237717</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Sisson, Helen, Jones, Catriona, Williams, Rhona, Lachanudis, Lisa, Metaethnographic synthesis of fathers’ experiences of the neonatal intensive care unit environment during hospitalization of their premature infants, Journal of Obstetric, Gynecologic, & Neonatal Nursing: Clinical Scholarship for the Care of Women, Childbearing Families, & Newborns, 44, 471–480, 2015 [<a href="https://pubmed.ncbi.nlm.nih.gov/26017337" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26017337</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Smith, L. A. M., Critoph, D. J., Hatcher, H. M., How Can Health Care Professionals Communicate Effectively with Adolescent and Young Adults Who Have Completed Cancer Treatment? A Systematic Review, Journal of Adolescent and Young Adult Oncology, 2020 [<a href="https://pubmed.ncbi.nlm.nih.gov/31934804" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31934804</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Stafford, V., Hutchby, I., Karim, K., O’Reilly, M., “Why are you here?” Seeking children’s accounts of their presentation to Child and Adolescent Mental Health Service (CAMHS), Clinical child psychology and psychiatry, 21, 3–18, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/25062687" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25062687</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Starkman, Harold, Fisher, Kathleen, Pilek, Nicole L., Lopez-Henriquez, Gloria, Lynch, Laura, Bilkins-Morgis, Briana L., Listening to adolescents with uncontrolled diabetes, their parents and medical team, Families, systems & health : the journal of collaborative family healthcare, 37, 30–37, 2019 [<a href="https://pubmed.ncbi.nlm.nih.gov/30920261" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 30920261</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country not in protocol: USA</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Stenberg, U., Haaland-Overby, M., Koricho, A. T., Trollvik, A., Kristoffersen, L. G. R., Dybvig, S., Vagan, A., How can we support children, adolescents and young adults in managing chronic health challenges? A scoping review on the effects of patient education interventions, Health expectations : an international journal of public participation in health care and health policy, 2019 [<a href="/pmc/articles/PMC6803408/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC6803408</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/31131527" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 31131527</span></a>]
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|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Scoping review. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
|
|
Stickney, C. A., Ziniel, S. I., Brett, M. S., Truog, R. D., Family participation during intensive care unit rounds: goals and expectations of parents and health care providers in a tertiary pediatric intensive care unit, J Pediatr, 165, 1245–1251.e1, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/25241179" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 25241179</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: USA</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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|
Sullivan, V., de Sa, J., Hamlyn, E., Baraitser, P.
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How can we facilitate online disclosure of safeguarding concerns in under 18s to support transition from online to face-to-face care?, International journal of STD & AIDS, 31(6), 553–559, 2020. [<a href="https://pubmed.ncbi.nlm.nih.gov/32295476" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 32295476</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Sunderland, E., Wood, K., Barwick, S., What do looked after young people think about the specialist health services they use?, Archives of disease in childhood, 3), A184, 2015
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Sutcliffe, P., Martin, S., Sturt, J., Powell, J., Griffiths, F., Adams, A., Dale, J., Systematic review of communication technologies to promote access and engagement of young people with diabetes into healthcare, BMC endocrine disorders, 11 (no pagination), 2011 [<a href="/pmc/articles/PMC3024230/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC3024230</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/21210964" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21210964</span></a>]
|
|
</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Svirydzenka, N., Ronzoni, P., Dogra, N., Meaning and barriers to quality care service provision in Child and Adolescent Mental Health Services: Qualitative study of stakeholder perspectives, BMC health services research, 17, 151, 2017 [<a href="/pmc/articles/PMC5319051/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5319051</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/28219392" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 28219392</span></a>]
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Templeton, Lorna, Novak, Claire, Wall, Sarah, Young people’s views on services to help them deal with parental substance misuse, Drugs: Education, Prevention & Policy, 18, 172–178, 2011
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Ulph, F., Cullinan, T., Qureshi, N., Kai, J., Informing children of their newborn screening carrier result for sickle cell or cystic fibrosis: qualitative study of parents’ intentions, views and support needs, Journal of Genetic Counseling, 23, 409–20, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/24306142" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 24306142</span></a>]
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Van Cleave, A., Roosen-Runge, M., Miller, A., Karkazis, K., Magnus, D., Quality of communication in interpreted versus non-interpreted pediatric ICU family meetings, Critical Care Medicine, 1), A177, 2013
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Van De Vijver, M., Bertaud, S., Nailor, S., Marais, G., Baby diaries: A tool to improve parental communication in the neonatal unit, Archives of Disease in Childhood, 99, A81–A82, 2014
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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van de Vijver, M., Evans, M., A tool to improve communication in the neonatal unit, BMJ Quality Improvement ReportsBMJ qual, 4, 2015 [<a href="/pmc/articles/PMC4645918/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4645918</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/26734365" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26734365</span></a>]
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - Close ended, yes/no questionnaire</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Waite-Jones, J. M., Majeed-Ariss, R., Smith, J., Stones, S. R., Van Rooyen, V., Swallow, V., Young People’s, Parents’, and Professionals’ Views on Required Components of Mobile Apps to Support Self-Management of Juvenile Arthritis: Qualitative Study, JMIR MHealth and UHealth, 6, e25, 2018 [<a href="/pmc/articles/PMC5797289/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC5797289</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/29351898" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 29351898</span></a>]
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Wales, Jackie, Brewin, Nicola, Raghavan, Raghu, Arcelus, Jon, Exploring barriers to South Asian help-seeking for eating disorders, Mental Health Review Journal, 22, 40–50, 2017
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population not in protocol - >18 years old</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Walsh, J., Scaife, V., Notley, C., Dodsworth, J., Schofield, G., Perception of need and barriers to access: The mental health needs of young people attending a Youth Offending Team in the UK, Health and Social Care in the Community, 19, 420–428, 2011 [<a href="https://pubmed.ncbi.nlm.nih.gov/21366758" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 21366758</span></a>]
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Watts, R., Zhou, H., Shields, L., Taylor, M., Munns, A., Ngune, I., Family-centered care for hospitalized children aged 0–12 years: A systematic review of qualitative studies, JBI Database of Systematic Reviews and Implementation Reports, 12, 204–283, 2014 [<a href="https://pubmed.ncbi.nlm.nih.gov/27820513" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 27820513</span></a>]
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest not in protocol - No themes relating to communication with healthcare staff</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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White, B., Tuschl, K., Walker, J., Segal, T., Viner, R. M., Confidentiality, consent and privacy: A challenge even in a specialist young person unit, Archives of disease in childhood, 1), A65, 2010
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Conference abstract</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Whittingham,Koa, Boyd,Roslyn N., Sanders,Matthew R., Colditz,Paul, Parenting and prematurity: Understanding parent experience and preferences for support, Journal of Child and Family Studies, 23, 1050–1061, 2014
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Australia</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Wiering, B. M., Noordman, J., Tates, K., Zwaanswijk, M., Elwyn, G., De Bont, E. S. J. M., Beishuizen, A., Hoogerbrugge, P. M., Van Dulmen, S., Sharing decisions during diagnostic consultations; an observational study in pediatric oncology, Patient Education and Counseling, 99, 61–67, 2016 [<a href="https://pubmed.ncbi.nlm.nih.gov/26298218" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 26298218</span></a>]
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Study design not in protocol - No qualitative data.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Wong
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et al, Risk discourse and sexual stigma: Barriers to STI testing, treatment and care among young heterosexual women in disadvantaged neighbourhoods in Toronto, Can J Hum Sex, 21, 75–89, 2012
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Country: Canada</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Wyatt, K. D., Prutsky Lopez, G., Domecq Garces, J. P., Erwin, P., Brinkman, W. B., Montori, V. M., LeBlanc, A., Study protocol: a systematic review of pediatric shared decision making, Systematic reviews, 2, 48, 2013 [<a href="/pmc/articles/PMC3708782/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC3708782</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/23816266" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 23816266</span></a>]
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Published protocol for quantitative systematic review.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Yamaji, Noyuri, Suto, Maiko, Takemoto, Yo, Suzuki, Daichi, Lopes, Katharina da Silva, Ota, Erika, Supporting the Decision Making of Children With Cancer: A Meta-synthesis, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses, 1043454220919711, 2020 [<a href="https://pubmed.ncbi.nlm.nih.gov/32456542" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 32456542</span></a>]
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Phenomenon of interest of included studies not in protocol. Included studies checked for inclusion.</td></tr><tr><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_1" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">
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Ye, Jiali, Rust, George, Fry-Johnson, Yvonne, Strothers, Harry, E-mail in patient-provider communication: A systematic review, Patient Education and Counseling, 80, 266–273, 2010 [<a href="/pmc/articles/PMC4127895/" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pmc">PMC free article<span class="bk_prnt">: PMC4127895</span></a>] [<a href="https://pubmed.ncbi.nlm.nih.gov/19914022" ref="pagearea=body&targetsite=entrez&targetcat=link&targettype=pubmed">PubMed<span class="bk_prnt">: 19914022</span></a>]
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</td><td headers="hd_h_niceng204er2.appk.tab1_1_1_1_2" rowspan="1" colspan="1" style="text-align:left;vertical-align:top;">Population of included studies not in protocol. Included studies checked for inclusion.</td></tr></tbody></table></div></div></article></div><div id="jr-scripts"><script src="/corehtml/pmc/jatsreader/ptpmc_3.22/js/libs.min.js"> </script><script src="/corehtml/pmc/jatsreader/ptpmc_3.22/js/jr.min.js"> </script></div></div>
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