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NCATS Toolkit welcomes your patient group to submit resources that you found helpful at any stage of the therapy development process.
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<div class="sidebar-right"><div class="contact-box"><h4>Contact</h4><p><a href="mailto:ncatstoolkit@nih.gov">NCATS Toolkit</a></p><hr><h4>Tell Us About Your Resource</h4><p><a href="mailto:ncatstoolkit@nih.gov?subject=NCATS Toolkit Resource">Identify the relevant goal for each resource</a></p></div></div><h2>Share Your Resources with the NCATS Toolkit</h2><p>The NCATS Toolkit needs your help to educate and empower patient groups!</p><p>We are looking for resources intended to help patient group leaders get started with research. We plan to include some of these resources in the NCATS Toolkit for Patient-Focused Therapy Development website to share across the rare disease patient community.</p><h2>What are Resources?</h2><p>Resources can be any type of information, such as tools, templates, examples, checklists, guidelines, processes, best practices and frameworks. Templates are preferred when it is possible to make them.</p><p>Resources can be in any format, such as links, Word documents, PDFs, spreadsheets, videos, emails, slide decks and images.</p><p>You can share resources that are already available online or your own resources.</p><h2>We Want Resources for These Goals</h2><p>Build Your Community</p><ul><li>Connect with other patient groups</li><li>Make contact registries</li><li>Provide information about clinical trials and encourage participation</li></ul><p>Advance Research</p><ul><li>Find experts and interact with research partners</li><li>Create scientific and medical advisory boards</li><li>Organize conferences</li><li>Make a biobank</li></ul><h2>How to Share Resources</h2><p>If you have a resource for any of the goals listed above, please send resources to <a href="mailto:ncatstoolkit@nih.gov?subject=NCATS Toolkit Resource">NCATS Toolkit</a>. In your email, please identify the relevant goal for each resource.</p><p>Check back once in a while, because we will update our goals as we build our website.</p><p>Our team will review and select resources to include in the NCATS Toolkit. We may make changes to enable a resource to be more relevant to other patient groups.</p><h2>Our Review Criteria</h2><p>We will use the following review criteria for evaluating resources:</p><ul><li><strong>Generalizability</strong>: Reusable by multiple patient groups</li><li><strong>Customizability</strong>: Adaptable to specific use cases</li><li><strong>Actionability</strong>: Has clear, concrete steps (not applicable to all resources)</li><li><strong>Uniqueness</strong>: Fills a need not already met by other resources and content</li><li><strong>Credibility</strong>: Created by patient groups, created for patient groups, and already used by patient groups</li></ul><p>Thank you in advance for sharing resources! Patient groups like yours make the NCATS Toolkit better for the rare disease patient community.</p>
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