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</div><div><span>Craniosynostosis</span></div></div>
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</noscript></div><div class="main"><div id="ency_summary"><p>Craniosynostosis is a birth defect in which one or more sutures on a baby's head closes earlier than usual.</p><p>The skull of an infant or young child is made up of bony plates that are still growing. The borders at which these plates intersect are called <a test="test" href="./003308.htm">sutures</a> or suture lines. The sutures allow for growth of the skull. They normally close ("fuse") by the time the child is 2 or 3 years old.</p><p>Early closing of a suture causes the baby to have an abnormally shaped head. This may limit brain growth.</p></div><section><div class="section"><div class="section-header"><div class="section-title"><h2>Causes</h2></div><div class="section-button"><button type="submit" aria-controls="section-1" role="button" title="Expand/Collapse section"><span class="icon icon-section-action">
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</div></div><div class="section-body" id="section-1"><p>The cause of craniosynostosis is not known. Genes may play a role, but there is usually no family history of the condition. It may be caused by external pressure on a baby's head before birth. Abnormal development of the base of the skull and the membranes around the skull bones is believed to affect the movement and position of the bones as they grow.</p><p>In cases when this is passed down through families, it may occur with other health problems, such as seizures, decreased intelligence, and blindness. Genetic disorders commonly linked to craniosynostosis include Crouzon, Apert, Carpenter, Saethre-Chotzen, and Pfeiffer syndromes.</p><p>However, most children with craniosynostosis are otherwise healthy and have normal intelligence.</p></div></div></section><section><div class="section"><div class="section-header"><div class="section-title"><h2>Symptoms</h2></div><div class="section-button"><button type="submit" aria-controls="section-2" role="button" title="Expand/Collapse section"><span class="icon icon-section-action">
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</div></div><div class="section-body" id="section-2"><p>Symptoms depend on the type of craniosynostosis. They may include:</p><ul><li>No "soft spot" (fontanelle) on the newborn's skull</li><li>A raised hard ridge along the affected sutures</li><li>Unusual head shape</li><li>Slow or no increase in the head size over time as the baby grows</li></ul><p>Types of craniosynostosis are:</p><ul><li>Sagittal synostosis (scaphocephaly) is the most common type. It affects the main suture on the very top of the head. The early closing forces the head to grow long and narrow, instead of wide. Babies with this type tend to have a broad forehead. It is more common in boys than girls.</li><li>Frontal plagiocephaly is the next most common type. It affects the suture that runs from ear to ear on the top of the head. It usually occurs on just one side, causing a flattened forehead, raised eyebrow, and prominent ear on that side. The baby's nose may also appear to be pulled toward that side. This is more common in girls than in boys.</li><li>Metopic synostosis is a rare form that affects the suture close to the forehead. The child's head shape may be described as trigonocephaly, because the top of the head appears triangular, with a narrow or pointed forehead. It may range from mild to severe.</li></ul></div></div></section><section><div class="section"><div class="section-header"><div class="section-title"><h2>Exams and Tests</h2></div><div class="section-button"><button type="submit" aria-controls="section-3" role="button" title="Expand/Collapse section"><span class="icon icon-section-action">
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</div></div><div class="section-body" id="section-3"><p>The health care provider will feel the infant's head and perform a physical exam.</p><p>The following tests may be done:</p><ul><li>Measuring the circumference of the infant's head</li><li><a test="test" href="./003802.htm">X-rays</a> of the skull</li><li><a test="test" href="./003786.htm">CT scan</a> of the head</li></ul><p>Well-child visits are an important part of your child's health care. They allow the provider to regularly check the growth of your infant's head over time. This will help identify any problems early.</p></div></div></section><section><div class="section"><div class="section-header"><div class="section-title"><h2>Treatment</h2></div><div class="section-button"><button type="submit" aria-controls="section-4" role="button" title="Expand/Collapse section"><span class="icon icon-section-action">
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</div></div><div class="section-body" id="section-4"><p>Surgery is usually needed. It is done while the baby is still an infant. The goals of surgery are:</p><ul><li>Relieve any pressure on the brain.</li><li>Make sure there is enough room in the skull to allow the brain to properly grow.</li><li>Improve the appearance of the child's head.</li></ul></div></div></section><section><div class="section"><div class="section-header"><div class="section-title"><h2>Outlook (Prognosis)</h2></div><div class="section-button"><button type="submit" aria-controls="section-5" role="button" title="Expand/Collapse section"><span class="icon icon-section-action">
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</div></div><div class="section-body" id="section-5"><p>How well a child does depends on:</p><ul><li>How many sutures are involved</li><li>The child's overall health </li></ul><p>Children with this condition who have surgery do well in most cases, especially when the condition is not associated with a genetic syndrome.</p></div></div></section><section><div class="section"><div class="section-header"><div class="section-title"><h2>Possible Complications</h2></div><div class="section-button"><button type="submit" aria-controls="section-6" role="button" title="Expand/Collapse section"><span class="icon icon-section-action">
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</div></div><div class="section-body" id="section-6"><p>Craniosynostosis results in head deformity that can be severe and permanent if it is not corrected. Complications may include:</p><ul><li>Increased <a test="test" href="./000793.htm">intracranial pressure</a></li><li><a test="test" href="./003200.htm">Seizures</a></li><li>Developmental delay</li></ul></div></div></section><section><div class="section"><div class="section-header"><div class="section-title"><h2>When to Contact a Medical Professional</h2></div><div class="section-button"><button type="submit" aria-controls="section-7" role="button" title="Expand/Collapse section"><span class="icon icon-section-action">
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</div></div><div class="section-body" id="section-7"><p>Contact your child's provider if your child has:</p><ul><li>Unusual head shape</li><li>Problems with growth</li><li>Unusual raised ridges on the skull</li></ul></div></div></section><section><div class="section"><div class="section-header"><div class="section-title"><h2>Alternative Names</h2></div><div class="section-button"><button type="submit" aria-controls="section-Alt" role="button" title="Expand/Collapse section"><span class="icon icon-section-action">
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</div></div><div class="section-body" id="section-Alt"><p>Premature closure of sutures; Synostosis; Plagiocephaly; Scaphocephaly; Fontanelle - craniosynostosis; Soft spot - craniosynostosis</p></div></div></section><section><div class="section sec-mb"><div class="section-header"><div class="section-title"><h2>Patient Instructions</h2></div><div class="section-button"><button type="submit" aria-controls="section-carepnt" role="button" title="Expand/Collapse section"><span class="icon icon-section-action">
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</div></div><div name="Patient Instructions" class="section-body" id="section-carepnt"><ul class="side-nav"><li><a href="../patientinstructions/000067.htm">Craniosynostosis repair - discharge </a></li>
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<li><img src="//medlineplus.gov/ency/images/ency/tnails/1127t.jpg" alt="Skull of a newborn" title="Skull of a newborn" class="side-img"/><a href="../imagepages/1127.htm">Skull of a newborn</a></li>
</ul></div></div></section><section><div class="section"><div class="section-header"><div class="section-title"><h2>References</h2></div><div class="section-button"><button type="submit" aria-controls="section-Ref" role="button" title="Expand/Collapse section"><span class="icon icon-section-action">
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</div></div><div class="section-body" id="section-Ref"><p>Centers for Disease Control and Prevention website. Birth defects. Craniosynostosis. <a href="https://www.cdc.gov/birth-defects/about/craniosynostosis.html" target="_blank">www.cdc.gov/birth-defects/about/craniosynostosis.html</a>. Updated May 16, 2024. Accessed June 19, 2024.</p><p>Graham JM, Sanchez-Lara PA. Craniosynostosis: general. In: Graham JM, Sanchez-Lara PA, eds. <em>Smith's Recognizable Patterns of Human Deformation. </em>5th ed. Philadelphia, PA: Elsevier; 2025:chap 29.</p><p>Mandela R, Bellew M, Chumas P, Nash H. Impact of surgery timing for craniosynostosis on neurodevelopmental outcomes: a systematic review. <em>J Neurosurg Pediatr.</em> 2019;23(4):442-454. PMID: 30684935 <a href="https://pubmed.ncbi.nlm.nih.gov/30684935/" target="_blank">pubmed.ncbi.nlm.nih.gov/30684935/</a>.</p><p>Trowbridge SK, Yang E, Yuskaitis CJ. Congenital anomalies of the central nervous system. In: Kliegman RM, St. Geme JW, Blum NJ, et al, eds. <em>Nelson Textbook of Pediatrics.</em> 22nd ed. Philadelphia, PA: Elsevier; 2025:chap 631.</p></div></div></section>
<section><div class="section"><div class="section-header"><div class="section-title"><h2>Review Date 12/31/2023</h2></div><div class="section-button"><button type="submit" aria-controls="section-version" role="button" title="Expand/Collapse section"><span class="icon icon-section-action">
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<div id="section-version" class="section-body"><p>Updated by: Mary J. Terrell, MD, IBCLC, Neonatologist, Cape Fear Valley Medical Center, Fayetteville, NC. Review provided by VeriMed Healthcare Network. Also reviewed by David C. Dugdale, MD, Medical Director, Brenda Conaway, Editorial Director, and the A.D.A.M. Editorial team.</p>
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