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Why the Need for Common Data Elements?
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FAIR Data
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Common Data Elements (CDEs)
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<strong>Common Data Elements: Standardizing Data Collection</strong>
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<h2>Why the Need for Common Data Elements?
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</h2>
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<hr>
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<h3>Example: Pain Scales</h3>
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<br>
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<div class="row">
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<div class="col-lg-12">
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<p>Let’s look at an example of data gathering from healthcare. These are two pain scales:</p>
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<br>
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<h4>1) 0 - 10 Numeric Pain Rating Scale</h4>
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<div class="col-lg-10">
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<div class="graphic">
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<a href="img/02CDE.png" target="_blank"><img class="img-fluid text-center" src="img/02CDE.png" alt="X-Axis scale ranging from 0 or none, 1-3 or mild, 4-6 or moderate, and 7-10 severe"></a>
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<br>
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<h4>2) Categorical Scale</h4>
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<div class="graphic">
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<a href="img/03CDE.png" target="_blank"><img class="img-fluid text-center" src="img/03CDE.png" alt="Images of 6 faces ranging from No Pain, Hurts a Little, Hurts a Little More, Hurts Even More, Hurts a Whole Lot, and Hurts Most"></a>
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</div>
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</div>
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<p>They both ask the patient to self-report their pain severity on a linear scale, and you might even say that these things are more alike than they are different.</p>
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<br>
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<div class="row">
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<div class="col-lg-7">
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<div>
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<p>To demonstrate, consider the following scenario:</p>
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<blockquote class="blockquote">
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<p class="m-b-0">
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You’ve been experiencing some knee pain whenever you put weight on your right side.</p>
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<p class="m-b-0">Your general practitioner (GP) uses the Numeric Pain Rating Scale, and you rate your pain as 5 (Moderate). But the specialist you are referred to uses the Categorical Scale.</p>
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<p><strong>How would you translate your first pain rating to the second scale?</strong></p>
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<p><strong>What issues do you notice when trying to do that?</strong></p>
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</blockquote>
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</div>
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</div>
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<div class="col-sm-3">
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<div class="graphic">
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<img class="img-fluid shadow" src="img/knee.jpg" alt="Senior sportswoman with knee pain standing in park stock photo">
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</div>
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<div class="text-center">
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<p>
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<em><small>(Image Source: iStock Photos, boggy22©)</small></em>
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</p>
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</div>
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<br>
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<div class="col-lg-12">
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<p>There is a problem translating responses between these two scales. One has 11 possible responses. The other has six. What if you were a researcher who wanted to analyze a large set of data, but one data set used one scale and the other data set used the other?</p>
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