416 lines
22 KiB
HTML
416 lines
22 KiB
HTML
<!doctype html>
|
||
<html lang="en">
|
||
<head>
|
||
<meta charset="utf-8">
|
||
<meta http-equiv="X-UA-Compatible" content="IE=edge">
|
||
<meta http-equiv="Content-Type" content="text/html; charset=utf-8" />
|
||
<meta http-equiv="X-UA-Compatible" content="IE=edge,chrome=1"/>
|
||
<meta name="viewport" content="width=device-width, initial-scale=1, shrink-to-fit=no">
|
||
<meta name="NLM.Contact.Email" content="oetweb@nih.gov">
|
||
<title>Common Data Elements: Standardizing Data Collection</title>
|
||
<link href="css/nlm_custom_oet.css" rel="stylesheet">
|
||
<link href="css/fontawesome.all.css" rel="stylesheet">
|
||
|
||
<!-- Google Tag Manager -->
|
||
<script>(function(w,d,s,l,i){w[l]=w[l]||[];w[l].push({'gtm.start': new Date().getTime(),event:'gtm.js'});var f=d.getElementsByTagName(s)[0],j=d.createElement(s),dl=l!='dataLayer'?'&l='+l:'';j.async=true;j.src='https://www.googletagmanager.com/gtm.js?id='+i+dl;f.parentNode.insertBefore(j,f);})(window,document,'script','dataLayer','GTM-MT6MLL');</script>
|
||
<!-- End Google Tag Manager -->
|
||
|
||
|
||
</head>
|
||
|
||
<body>
|
||
<div class="container-fluid">
|
||
|
||
<!-- NAVBAR -->
|
||
<div class="row bg-primary">
|
||
|
||
<nav class="navbar navbar-expand-md navbar-light bg-primary p-2">
|
||
<div class="col-xl-3 col-lg-3 col-md-6 col-sm-6 col-9 pb-md-0 pb-2 ms-2">
|
||
<a href="https://www.nlm.nih.gov/"><img src="img/NLM_White.png" class="img-fluid" alt="NLM logo"></a>
|
||
</div>
|
||
|
||
|
||
<button class="navbar-toggler" type="button" data-bs-toggle="collapse" data-bs-target="#navbarSupportedContent" aria-controls="navbarSupportedContent" aria-expanded="false" aria-label="Toggle navigation">
|
||
<span class="navbar-toggler-icon"></span>
|
||
</button>
|
||
|
||
<div class="collapse navbar-collapse" id="navbarSupportedContent">
|
||
<ul class="navbar-nav mr-auto d-xs-flex d-sm-flex d-md-none d-lg-none d-xl-none" style="overflow-y: auto; height: calc(100vh - 68px); border-top: 0px solid #dee2e6;">
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="index.html">Course Home</a>
|
||
</li>
|
||
|
||
<li class="nav-item dropdown">
|
||
<a class="nav-link dropdown-toggle"
|
||
href="#" role="button" data-bs-toggle="dropdown" id="navbarDropdown-1" aria-haspopup="true" aria-expanded="false">
|
||
Why the Need for Common Data Elements?
|
||
</a>
|
||
<ul class="dropdown-menu" aria-labelledby="navbarDropdown-1">
|
||
<li><a class="dropdown-item" href="01-100.html">Example: United States Postal Service</a></li>
|
||
<li><a class="dropdown-item" href="01-200.html">Example: Pain Scales</a></li>
|
||
</ul>
|
||
</li>
|
||
|
||
<li class="nav-item dropdown">
|
||
<a class="nav-link dropdown-toggle"
|
||
href="#" role="button" data-bs-toggle="dropdown" id="navbarDropdown-2" aria-haspopup="true" aria-expanded="false">
|
||
FAIR Data
|
||
</a>
|
||
<ul class="dropdown-menu" aria-labelledby="navbarDropdown-2">
|
||
<li><a class="dropdown-item" href="02-100.html">Data Collection and Sharing</a></li>
|
||
<li><a class="dropdown-item" href="02-200.html">Definition of FAIR Data</a></li>
|
||
<li><a class="dropdown-item" href="02-300.html">Librarian’s Role with FAIR Data</a></li>
|
||
</ul>
|
||
</li>
|
||
|
||
<li class="nav-item dropdown">
|
||
<a class="nav-link dropdown-toggle"
|
||
href="#" role="button" data-bs-toggle="dropdown" id="navbarDropdown-3" aria-haspopup="true" aria-expanded="true">
|
||
Common Data Elements (CDEs)
|
||
</a>
|
||
<ul class="dropdown-menu show" aria-labelledby="navbarDropdown-3">
|
||
<li><a class="dropdown-item" href="03-100.html">Definition of CDE</a></li>
|
||
<li><a class="dropdown-item active" href="03-200.html">How are CDEs Identified and Developed?</a></li>
|
||
<li><a class="dropdown-item" href="03-300.html">Examples of Activities and Groups using CDEs</a></li>
|
||
</ul>
|
||
</li>
|
||
|
||
|
||
<li class="nav-item dropdown">
|
||
<a class="nav-link dropdown-toggle"
|
||
href="#" role="button" data-bs-toggle="dropdown" id="navbarDropdown-4" aria-haspopup="true" aria-expanded="false">
|
||
NLM and Common Data Elements
|
||
</a>
|
||
<ul class="dropdown-menu" aria-labelledby="navbarDropdown-4">
|
||
<li><a class="dropdown-item" href="04-100.html">NIH Data Management and Sharing Policy</a></li>
|
||
<li><a class="dropdown-item" href="04-200.html">NIH Common Data Element Repository</a></li>
|
||
<li><a class="dropdown-item" href="04-300.html">CDE Scenarios</a></li>
|
||
</ul>
|
||
</li>
|
||
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="05-000.html">Closing</a>
|
||
</li>
|
||
|
||
<li><div class="dropdown-divider"></div></li>
|
||
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="06-000.html">Tools and Resources</a>
|
||
</li>
|
||
|
||
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="nav.html">How to Navigate This Course</a>
|
||
</li>
|
||
|
||
</ul>
|
||
</div>
|
||
|
||
</nav>
|
||
</div>
|
||
|
||
|
||
<!-- / NAVBAR -->
|
||
|
||
<!-- HEADER/BANNER -->
|
||
<div class="row">
|
||
|
||
<header class="bg-secondary p-3 truncate shadow" style="border-bottom: 1px solid #eee;">
|
||
|
||
<strong>Common Data Elements: Standardizing Data Collection</strong>
|
||
|
||
</header>
|
||
|
||
</div>
|
||
|
||
|
||
<!-- / HEADER/BANNER -->
|
||
|
||
<!-- / BREADCRUMB -->
|
||
<div id="breadcrumb-div" class="container-fluid">
|
||
<div class="breadcrumb-container">
|
||
<nav aria-label="breadcrumb">
|
||
<ol class="breadcrumb mb-0" style="background-color: white;">
|
||
<li class="breadcrumb-item">
|
||
<a href="https://www.nlm.nih.gov/training.html" id="anch_29" target="_blank">Training & Outreach</a>
|
||
</li>
|
||
<li class="breadcrumb-item">
|
||
<a href="https://learn.nlm.nih.gov/" id="anch_30" target="_blank">Learning Resources</a>
|
||
</li>
|
||
</ol>
|
||
</nav>
|
||
</div>
|
||
</div>
|
||
|
||
<!-- / BREADCRUMB -->
|
||
|
||
<div class="row ms-1">
|
||
|
||
<!-- LEFT COL - NAV SIDE -->
|
||
<div class="col col-md-4 col-xl-3 d-none d-md-block p-0">
|
||
<div id="sidebar" class="navbar navbar-light bg-light align-self-start">
|
||
<ul class="nav nav-pills flex-column ps-2 pe-2" style="width: 100%;">
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="index.html">Course Home</a>
|
||
</li>
|
||
|
||
<li class="nav-item">
|
||
<a class="nav-link" data-bs-toggle="collapse" href="#collapse-item-1">Why the Need for Common Data Elements?</a>
|
||
<div id="collapse-item-1" class="collapse">
|
||
<ul class="nav flex-column ps-3">
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="01-100.html">Example: United States Postal Service</a>
|
||
</li>
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="01-200.html">Example: Pain Scales</a>
|
||
</li>
|
||
</ul>
|
||
</div>
|
||
</li>
|
||
|
||
<li class="nav-item">
|
||
<a class="nav-link" data-bs-toggle="collapse" href="#collapse-item-2">FAIR Data</a>
|
||
<div id="collapse-item-2" class="collapse">
|
||
<ul class="nav flex-column ps-3">
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="02-100.html">Data Collection and Sharing</a>
|
||
</li>
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="02-200.html">Definition of FAIR Data</a>
|
||
</li>
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="02-300.html">Librarian’s Role with FAIR Data</a>
|
||
</li>
|
||
</ul>
|
||
</div>
|
||
</li>
|
||
|
||
<li class="nav-item">
|
||
<a class="nav-link" data-bs-toggle="collapse" href="#collapse-item-3">Common Data Elements (CDEs)</a>
|
||
<div id="collapse-item-3" class="collapse show">
|
||
<ul class="nav flex-column ps-3">
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="03-100.html">Definition of CDEs</a>
|
||
</li>
|
||
<li class="nav-item">
|
||
<a class="nav-link active" href="03-200.html">How are CDEs Identified and Developed?</a>
|
||
</li>
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="03-300.html">Examples of Activities and Groups using CDEs</a>
|
||
</li>
|
||
</ul>
|
||
</div>
|
||
</li>
|
||
|
||
<li class="nav-item">
|
||
<a class="nav-link" data-bs-toggle="collapse" href="#collapse-item-4">NLM and Common Data Elements</a>
|
||
<div id="collapse-item-4" class="collapse">
|
||
<ul class="nav flex-column ps-3">
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="04-100.html">NIH Data Management and Sharing Policy</a>
|
||
</li>
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="04-200.html">NIH Common Data Element Repository</a>
|
||
</li>
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="04-300.html">CDE Scenarios</a>
|
||
</li>
|
||
</ul>
|
||
</div>
|
||
</li>
|
||
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="05-000.html">Closing</a>
|
||
</li>
|
||
|
||
<li style="height: auto; line-height: 0;"><hr></li>
|
||
<li class="nav-item">
|
||
<a class="nav-link" href="06-000.html">Tools and Resources</a>
|
||
</li>
|
||
|
||
<li class="nav-item">
|
||
<a class="nav-link" data-bs-toggle="modal" data-bs-target="#navModal">How to Navigate This Course</a>
|
||
</li>
|
||
|
||
</ul>
|
||
</div>
|
||
</div>
|
||
<!-- Modal -->
|
||
<div class="modal fade" id="navModal" tabindex="-1" role="dialog" aria-labelledby="navModalLabel" aria-hidden="true">
|
||
<div class="modal-dialog" role="document">
|
||
<div class="modal-content">
|
||
<div class="modal-header">
|
||
<h5 class="modal-title" id="navModalLabel">How to Navigate This Course</h5>
|
||
<button type="button" class="btn-close" data-bs-dismiss="modal" aria-label="Close">
|
||
</button>
|
||
</div>
|
||
<div class="modal-body">
|
||
<p>
|
||
There are a variety of ways you can navigate this course. You can:</p>
|
||
<ul>
|
||
<li>Click the Back and Next buttons at the bottom of each page to move through the material</li>
|
||
<li>Use the main navigation with dropdown subsections featured on all pages</li>
|
||
<li>Use a combination of the above methods to explore the course contents</li>
|
||
</ul>
|
||
<br>
|
||
</div>
|
||
<div class="modal-footer">
|
||
<button type="button" class="btn btn-secondary" data-bs-dismiss="modal">Close</button>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
|
||
<!-- / LEFT COL - NAV SIDE -->
|
||
|
||
<!-- RIGHT COL -->
|
||
<div class="col col-md-8 col-xl-9 p-0 px-3">
|
||
|
||
<!-- MAIN CONTENT AREA -->
|
||
<div class="row justify-content-center">
|
||
<div class="container-fluid">
|
||
|
||
<!-- MAIN CONTENT - SINGLE COL -->
|
||
<div class="col col-12">
|
||
|
||
|
||
<!-- Section -->
|
||
<section id="item-1" class="row"><!-- Do not include class pt-3 on first section -->
|
||
<div class="col-lg-12">
|
||
<div class="px-2 mb-5 bg-default">
|
||
<!-- Header -->
|
||
<h2>Common Data Elements (CDEs)
|
||
</h2>
|
||
|
||
<hr>
|
||
|
||
|
||
<h3>How are CDEs Identified and Developed?</h3>
|
||
<br>
|
||
|
||
<div class="row">
|
||
|
||
<div class="col-lg-12">
|
||
|
||
<p>Usually, common data elements are identified in a top-down process by an NIH institute or other organization. Subject matter experts provide input for the selection of common data elements. They decide how questions should be asked and make recommendations for CDE format. Then the organization may require or recommend that their researchers use these CDEs.</p>
|
||
|
||
<p>Still, it can be hard for prospective researchers to figure out which "common" data element is the one they should use, and for working groups to identify high quality CDEs for reuse. Here are a few examples of NIH groups that have developed CDEs.</p>
|
||
</div>
|
||
|
||
|
||
<div class="mx-auto col-lg-10">
|
||
<div class="graphic">
|
||
<a href="img/07CDE.png" target="_blank"><img class="img-fluid" src="img/07CDE.png" alt="Graphic containing a list of NIH institutes that use CDEs: National Institute of Nursing Research (NINR); Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD); National Institute of Neurological Disorders and Stroke (NINDS); National Cancer Institute (NCI); National Eye Institute (NEI); National Heart, Lung, and Blood Institute (NHLBI)"></a>
|
||
</div>
|
||
|
||
</div>
|
||
|
||
|
||
<div class="col-lg-12">
|
||
|
||
|
||
|
||
<p>Another way that CDEs come to exist is when researchers and organizations coalesce around a recommended standard. The <a href="https://www.healthit.gov/isa/united-states-core-data-interoperability-uscdi" title="U.S. Core Data for Interoperability (USCDI)" target="_blank">U.S. Core Data for Interoperability (USCDI)</a> list we mentioned earlier was created from a partnership with the Office of the National Coordinator for Health Information Technology (ONC), Duke Clinical Research Institute (DCRI), The Pew Charitable Trusts (Pew) and input from many healthcare organizations, such as the American Academy of Ophthalmology, Cystic Fibrosis Foundation, and Society of Thoracic Surgeons, among many others.</p>
|
||
|
||
<h4>NIH CDE Repository</h4>
|
||
|
||
<p>Some groups have their own repositories for their CDEs, but, in order to make CDEs more findable for NIH-funded researchers, NLM hosts the <a href="https://cde.nlm.nih.gov/home" title="NIH CDE Repository" target="_blank">NIH CDE Repository</a>. This provides a central access point to many NIH CDEs, including a growing selection of NIH-endorsed CDEs, which have been reviewed and approved by the NIH CDE Governance Committee. Additionally, the NIH CDE Repository serves as the primary home for CDEs from institutes that do not have their own CDE platform.</p>
|
||
|
||
</div>
|
||
|
||
</div>
|
||
|
||
</div>
|
||
</div>
|
||
</section>
|
||
|
||
|
||
</div>
|
||
<!-- / MAIN CONTENT - LEFT COL -->
|
||
|
||
</div>
|
||
<!-- / MAIN CONTENT AREA -->
|
||
|
||
<div class="row justify-content-center pt-3">
|
||
<div class="col-12 text-center">
|
||
<div class="row">
|
||
<div class="col-6 text-start">
|
||
<a href="03-100.html" class="btn btn-primary"><span class="fas fa-chevron-left"></span> Prev</a>
|
||
</div>
|
||
<div class="col-6 text-end">
|
||
<a href="03-300.html" class="btn btn-primary">Next <span class="fas fa-chevron-right"></span></a>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
<!-- / RIGHT COL -->
|
||
|
||
</div>
|
||
<!-- -->
|
||
</div>
|
||
|
||
<!-- FOOTER -->
|
||
<footer class="row mt-4 bg-primary text-white">
|
||
<div class="container-fluid">
|
||
<div class="container pt-5">
|
||
<div class="row mt-3">
|
||
<div class="col-md-3 col-sm-6 col-6">
|
||
<p class="mb-0"><a href="https://www.nlm.nih.gov/socialmedia/index.html" target="_blank" class="text-white">Connect with NLM</a></p>
|
||
<ul class="list-inline">
|
||
<li class="list-inline-item me-2 social_media"><a title="External link: please review our privacy policy." href="https://www.facebook.com/nationallibraryofmedicine"><img src="img/facebook.svg" class="img-fluid bg-secondary" alt="Facebook"></a></li>
|
||
<li class="list-inline-item me-2 social_media"><a title="External link: please review our privacy policy." href="https://www.linkedin.com/company/national-library-of-medicine-nlm/"><img src="img/linkedin.svg" class="img-fluid bg-secondary" alt="LinkedIn"></a></li>
|
||
<li class="list-inline-item me-2 social_media"><a title="External link: please review our privacy policy." href="https://twitter.com/NLM_NIH"><img src="img/twitter.svg" class="img-fluid bg-secondary" alt="Twitter"></a></li>
|
||
<li class="list-inline-item me-2 social_media"><a title="External link: please review our privacy policy." href="https://www.youtube.com/user/NLMNIH"><img src="img/youtube.svg" class="img-fluid bg-secondary" alt="You Tube"></a></li>
|
||
<li class="list-inline-item me-2 social_media"><a title="External link: please review our privacy policy." href="https://public.govdelivery.com/accounts/USNLMOCPL/subscriber/new?preferences=true"><img src="img/mail.svg" class="img-fluid bg-secondary" alt="Government Delivery"></a></li>
|
||
</ul>
|
||
</div>
|
||
<div class="col-md-3 col-sm-6 col-6">
|
||
<p class="address_footer text-white"> National Library of Medicine <br>
|
||
<a href="https://www.google.com/maps/place/8600+Rockville+Pike,+Bethesda,+MD+20894/@38.9959508,-77.101021,17z/data=!3m1!4b1!4m5!3m4!1s0x89b7c95e25765ddb:0x19156f88b27635b8!8m2!3d38.9959508!4d-77.0988323" target="_blank" class="text-white" id="anch_71"> 8600 Rockville Pike <br>
|
||
Bethesda, MD 20894 </a></p>
|
||
</div>
|
||
<div class="col-md-3 col-sm-6 col-6">
|
||
<p><a href="https://www.nlm.nih.gov/web_policies.html" target="_blank" class="text-white" id="anch_72"> Web Policies </a><br>
|
||
<a href="https://www.nih.gov/institutes-nih/nih-office-director/office-communications-public-liaison/freedom-information-act-office" target="_blank" class="text-white" id="anch_73"> FOIA </a> <br>
|
||
<a href="https://www.hhs.gov/vulnerability-disclosure-policy/index.html" class="text-white">HHS Vulnerability Disclosure</a>
|
||
</p>
|
||
</div>
|
||
<div class="col-md-3 col-sm-6 col-6">
|
||
<p><a href="https://support.nlm.nih.gov/?from=https://www.nlm.nih.gov/" target="_blank" class="supportLink text-white" id="anch_75"> NLM Support Center </a> <br>
|
||
<a href="https://www.nlm.nih.gov/accessibility.html" target="_blank" class="text-white" id="anch_76"> Accessibility </a><br>
|
||
<a href="https://www.nlm.nih.gov/careers/careers.html" target="_blank" class="text-white" id="anch_77"> Careers </a></p>
|
||
</div>
|
||
</div>
|
||
<div class="row">
|
||
<div class="col-lg-12">
|
||
<p class="mt-2 text-center"> <a href="https://www.nlm.nih.gov/" target="_blank" class="text-white" id="anch_78">NLM</a> | <a href="https://www.nih.gov/" target="_blank" class="text-white" id="anch_79">NIH</a> | <a href="https://www.hhs.gov/" target="_blank" class="text-white" id="anch_80">HHS</a> | <a href="https://www.usa.gov/" target="_blank" class="text-white" id="anch_81">USA.gov</a></p>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</footer>
|
||
<!-- / FOOTER -->
|
||
|
||
|
||
</div>
|
||
<!-- / MAIN CONTAINER -->
|
||
|
||
<!-- JAVASCRIPT -->
|
||
<script src="js/jquery-latest.min.js"></script>
|
||
<script src="js/jquery-migrate-latest.min.js"></script>
|
||
<script src="js/bootstrap.bundle.min.js"></script>
|
||
<script src="js/oet-custom.js"></script>
|
||
|
||
|
||
<noscript style="text-align:center;font-size:24px;">Enable Javascript support in the browser.</noscript>
|
||
|
||
<!-- Google Tag Manager -->
|
||
<noscript><iframe src="https://www.googletagmanager.com/ns.html?id=GTM-MT6MLL" height="0" width="0" style="display:none;visibility:hidden" title="googletagmanager"></iframe></noscript>
|
||
<!-- End Google Tag Manager -->
|
||
|
||
|
||
</body>
|
||
</html>
|
||
|
||
|