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Why the Need for Common Data Elements?
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FAIR Data
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<h2>FAIR Data
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<h3>Definition of FAIR Data</h3>
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<br>
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<div class="row">
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<div class="col-lg-12">
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<p>To make data easier to share and reuse, researchers and data scientists try to align with the FAIR data principles.</p>
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<div class="mx-auto col-sm-8">
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<a href="img/06aCDE.png" target="_blank"><img class="img-fluid text-center" src="img/06aCDE.png" alt="Image of FAIR acronymn with FAIR = Findable, Accessible, Interoperable, Reusable"></a>
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<div class="col-lg-12">
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<br>
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<p>FAIR data is:</p>
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<ul>
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<li><strong>Findable</strong>: For data to be findable there must be sufficient metadata; there must be a unique and persistent identifier; and the data must be registered or indexed in a searchable resource.</li>
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<li><strong>Accessible</strong>: To be accessible, metadata and data should be readable by humans and by machines, and it must reside in a trusted repository.</li>
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<li><strong>Interoperable</strong>: Data must share a common structure, and metadata must use recognized, formal terminologies for description.</li>
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<li><strong>Reusable</strong>: Data and collections must have clear usage licenses and clear provenance, and meet relevant community standards for the domain.</li>
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</ul>
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</div>
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<br>
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<h4><i class="fas fa-user-edit"></i> Exercises</h4>
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<div>
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<p>Which is the main FAIR principle demonstrated by the below practices?</p>
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<div class="card shadow-sm">
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<div class="card-body">
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<ol class="pubmed-numbers p-l-0">
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<li class="mb-2">Describing the subjects in a biomedical dataset using Medical Subject Headings (MeSH) or SNOMED.
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<div class="row">
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<div class="custom-control custom-radio custom-control-inline">
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<input type="radio" id="customRadioInline1" name="customRadioInline1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline1">Findable</label>
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</div>
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<div class="custom-control custom-radio custom-control-inline">
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<input type="radio" id="customRadioInline2" name="customRadioInline1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline2">Accessible</label>
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</div>
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<div class="custom-control custom-radio custom-control-inline">
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<input type="radio" id="customRadioInline3" name="customRadioInline1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline3">Interoperable</label>
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</div>
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<div class="custom-control custom-radio custom-control-inline">
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<input type="radio" id="customRadioInline4" name="customRadioInline1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline4">Reusable</label>
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</div> </div>
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</li>
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<li class="mb-2">Submitting the description of a clinical trial to ClinicalTrials.gov.
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<div class="row">
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<div class="custom-control custom-radio custom-control-inline">
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<div class="custom-control custom-radio custom-control-inline"><input type="radio" id="customRadioInline2.1" name="customRadioInline2.1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline2.1">Findable</label>
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</div>
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<div class="custom-control custom-radio custom-control-inline">
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<input type="radio" id="customRadioInline2.2" name="customRadioInline2.1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline2.2">Accessible</label>
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</div>
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<div class="custom-control custom-radio custom-control-inline">
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<input type="radio" id="customRadioInline2.3" name="customRadioInline2.1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline2.3">Interoperable</label>
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</div>
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<div class="custom-control custom-radio custom-control-inline">
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<input type="radio" id="customRadioInline2.4" name="customRadioInline2.1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline2.4">Reusable</label>
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</div>
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</div>
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</div>
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</li>
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<li class="mb-2">Using a well-known data repository like GenBank or PubChem.
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<div class="row">
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<div class="custom-control custom-radio custom-control-inline">
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||
<input type="radio" id="customRadioInline3.1" name="customRadioInline3.1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline3.1">Findable</label>
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||
</div>
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||
<div class="custom-control custom-radio custom-control-inline">
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||
<input type="radio" id="customRadioInline3.2" name="customRadioInline3.1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline3.2">Accessible</label>
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</div>
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<div class="custom-control custom-radio custom-control-inline">
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<input type="radio" id="customRadioInline3.3" name="customRadioInline3.1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline3.3">Interoperable</label>
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</div>
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<div class="custom-control custom-radio custom-control-inline">
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<input type="radio" id="customRadioInline3.4" name="customRadioInline3.1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline3.4">Reusable</label>
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</div> </div>
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</li>
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<li class="mb-2">Clearly stating and posting the usage permissions with a dataset.
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<div class="row">
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||
<div class="custom-control custom-radio custom-control-inline">
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||
<input type="radio" id="customRadioInline4.1" name="customRadioInline4.1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline4.1">Findable</label>
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||
</div>
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||
<div class="custom-control custom-radio custom-control-inline">
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||
<input type="radio" id="customRadioInline4.2" name="customRadioInline4.1" class="custom-control-input">
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||
<label class="custom-control-label" for="customRadioInline4.2">Accessible</label>
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||
</div>
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||
<div class="custom-control custom-radio custom-control-inline">
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||
<input type="radio" id="customRadioInline4.3" name="customRadioInline4.1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline4.3">Interoperable</label>
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</div>
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||
<div class="custom-control custom-radio custom-control-inline">
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||
<input type="radio" id="customRadioInline4.4" name="customRadioInline4.1" class="custom-control-input">
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<label class="custom-control-label" for="customRadioInline4.4">Reusable</label>
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</div> </div>
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</li>
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||
|
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|
||
</ol>
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||
</div>
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<li>Describing the subjects in a biomedical dataset using Medical Subject Headings (MeSH) or SNOMED. (Interoperable)</li>
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<li>Submitting the description of a clinical trial to ClinicalTrials.gov. (Findable or Accessible)</li>
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<li>Using a well-known data repository like GenBank or PubChem. (Accessible)</li>
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<li>Clearly stating and posting the usage permissions with a dataset. (Reusable)</li>
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<p class="small">Wilkinson, M. D. et al. (2016). The FAIR Guiding Principles for scientific data management and stewardship. <em>Scientific Data</em>, 3, 160018. doi:10.1038/sdata.2016.18</p>
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