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<div class='syndicate'><h1>Personal Stories</h1><div><h3>On this page</h3>
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<img title="Adine Usher with her grandchildren" height="150" width="150" class="media-element" data-delta="55" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-adine-usher-square.jpg?itok=MP__14bN" alt="Adine Usher with her grandchildren" /> </div>
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<h4 class="teaser-title"><a href="https://www.cancer.gov/news-events/nca50/stories/clinical-trials-network">Clinical Trials Help Build the Future of Medicine</a></h4>
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<p class="teaser-description">Clinical trial outcomes can help inform our understanding of cancer and improve prevention, diagnosis, treatment, and care. But this progress could not happen without the people who choose to participate in and those who connect people with trials.</p>
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</div>
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<div class="teaser teaser-clickable">
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<img alt="Alyssa (McCune-Albright syndrome)" title="Personal story - Alyssa (McCune-Albright syndrome)" height="150" width="150" class="media-element" data-delta="1" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/health-info/clinical-trials/personal-story-alyssa-thumbnail.jpg?itok=V7hPdQ2N" /> </div>
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<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-alyssa-mccune-albright-syndrome"><strong>Alyssa</strong> (McCune-Albright syndrome)</a></h4>
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<p class="teaser-description">As a participant in a longitudinal study about her rare condition, Alyssa has been coming to the NIH every year since she was in elementary school. Researchers have given her and her family updates and guidance about her growth and have gained valuable data about the way the syndrome is expressed as a person ages.</p>
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<div class="content">
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<img alt="Personal story - Annette (mother of a patient)" title="Personal story - Annette (mother of a patient)" height="150" width="150" class="media-element" data-delta="2" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-annette-thumbnail_0.jpg?itok=SjvDhjus" /> </div>
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</div></div>
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<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-annette-mother-patient"><strong>Annette</strong> (mother of a patient)</a></h4>
|
||
|
||
<p class="teaser-description">Annette’s daughter, Lauren, received treatment at NIH for Ewing’s sarcoma, a type of cancer. She shares how her experience at the NIH led her to begin painting hospital windows in the NIH Clinical Center.</p>
|
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<div class="teaser teaser-clickable">
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<div class="content">
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<img alt="Reed Anderson and Caitlin Anderson" title="I’m sad that it’s ending" height="150" width="150" class="media-element" data-delta="3" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/about-nih/im-sad-that-its-ending.JPG?itok=l_fWs65j" /> </div>
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||
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</div>
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|
||
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<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-caitlin-multiple-sclerosis"><strong>Caitlin</strong> (multiple sclerosis)</a></h4>
|
||
|
||
<p class="teaser-description">Caitlin tells about her experience living with multiple sclerosis and her decision to be a part of clinical trial for MS at the National Institutes of Health. The trial has just ended and Caitlin reflects on her fears of deteriorating quickly without treatment and her hopes that her participation will help lead to a treatment or cure one day for others with MS.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-61871" class="file file-image file-image-jpeg">
|
||
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<h2 class="element-invisible"><a href="/clinical-trials/personal-story-chuck-square.jpg">personal-story-chuck-square.jpg</a></h2>
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<div class="content">
|
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<img title="Chuck" height="150" width="150" class="media-element" data-delta="54" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-chuck-square.jpg?itok=7nBdEK1M" alt="Chuck" /> </div>
|
||
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||
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||
</div>
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||
</div></div>
|
||
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||
<h4 class="teaser-title"><a href="https://www.cancer.gov/news-events/nca50/stories/survivorship#prostate-cancer-survivor"><strong>Chuck</strong> (metastatic prostate cancer)</a></h4>
|
||
|
||
<p class="teaser-description">Chuck Rose, creative director at NCI, shares his story about living with metastatic prostate cancer. In addition to emotional and physical effects stemming from their diagnosis and treatment, many survivors experience a new vulnerability as they look ahead.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-69471" class="file file-image file-image-jpeg">
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<div class="content">
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<img title="David" class="media-element" data-delta="60" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-david-thumbnail.jpg?itok=_YEftsZ3" width="150" height="150" alt="David" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="https://nihrecord.nih.gov/2022/07/22/employee-offers-personal-account-nih-supported-clinical-research"><strong>David</strong> (retinitis pigmentosa)</a></h4>
|
||
|
||
<p class="teaser-description">To truly understand someone’s experience, put yourself in their shoes. No doubt, you have heard this adage and it is certainly the case for the many people who participate in clinical research. Many of us who work at NIH regularly say how invaluable clinical study participants are to improving public health, but have you tried on their shoes yet?</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-78606" class="file file-image file-image-jpeg">
|
||
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||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-david-fogel.jpg">personal-story-david-fogel.jpg</a></h2>
|
||
|
||
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||
<div class="content">
|
||
<img title="David Fogel" class="media-element" data-delta="61" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-david-fogel.jpg?itok=DMzFOT9G" width="150" height="150" alt="David Fogel" /> </div>
|
||
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||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="https://ccr.cancer.gov/news/article/six-years-after-preventive-surgery-a-patients-future-without-stomach-cancer"><strong>David</strong> (stomach cancer)</a></h4>
|
||
|
||
<p class="teaser-description">David Fogel thought he would never again be able to enjoy ice cream or chocolate cake after his stomach was removed in 2017. That didn’t matter to him, though, if it meant avoiding stomach cancer, a disease that he and several of his family members were likely to develop. Now, six years following the life-altering procedure, he can down an entire hamburger, with fries.</p>
|
||
</div>
|
||
|
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<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-7701" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/7701">Texas doctor with a strong family history of Alzheimer's becomes advocate for research</a></h2>
|
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|
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<div class="content">
|
||
<img alt="Texas doctor with a strong family history of Alzheimer's becomes advocate for research" height="150" width="150" class="media-element" data-delta="4" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/AqjqMLGcpDU.jpg?itok=jNQxralc" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-dewayne-mild-cognitive-impairment/alzheimers-disease"><strong>Dewayne</strong> (Mild cognitive impairment/Alzheimer’s disease)</a></h4>
|
||
|
||
<p class="teaser-description">Dewayne has a strong family history of Alzheimer's disease and he's always known that it could be in his future. So, he decided to volunteer for a study at UT Southwestern's Alzheimer's Disease Center where he could contribute to research efforts and be monitored for signs of cognitive impairment. His decision to volunteer changed his life and set him on a new course.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-41676" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-dhruv-thumbnail.jpg">personal-story-dhruv-thumbnail.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Dhruv" title="Personal story - Dhruv (Dock8 deficiency)" height="150" width="150" class="media-element" data-delta="5" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-dhruv-thumbnail.jpg?itok=AhNjU5WB" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="https://childrensinn.org/meet-dhruv/"><strong>Dhruv</strong> (Dock8 deficiency)</a></h4>
|
||
|
||
<p class="teaser-description">Dhruv always seemed to have skin infections, and he got sick easily. Doctors in his native India originally believed his skin infections were a type of allergy. But medication wasn’t helping. Bloodwork eventually showed Dhruv had been born with a compromised immune system.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-63671" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-emily-thumbnail.jpg">personal-story-emily-thumbnail.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img title="Emily" height="150" width="150" class="media-element" data-delta="56" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-emily-thumbnail.jpg?itok=aREMNrpZ" alt="Emily" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="https://www.cancer.gov/news-events/nca50/stories/advances-in-treatment-and-care"><strong>Emily</strong> (acute lymphoblastic leukemia [ALL])</a></h4>
|
||
|
||
<p class="teaser-description">Emily Whitehead had just celebrated her 5th birthday in 2010 when she was diagnosed with acute lymphoblastic leukemia (ALL). More than 90% of children diagnosed with ALL are cured, but Emily relapsed twice.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-7711" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-holden-square.jpg">personal-story-holden-square.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Holden" title="Holden" height="150" width="150" class="media-element" data-delta="6" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-holden-square.jpg?itok=YgBaMyfe" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-holden-crohns-disease"><strong>Holden</strong> (Crohn’s disease)</a></h4>
|
||
|
||
<p class="teaser-description">On the surface, Holden looks like the typical ten-year-old boy — soccer jersey, blonde hair and blue eyes, even freckles. But spend some time with him and you will realize that he is dealing with a chronic illness, Crohn’s disease, that makes his life anything but ordinary.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-29276" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/29276">Women in Clinical Trials: Jamie’s Story</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Women in Clinical Trials: Jamie’s Story" height="150" width="150" class="media-element" data-delta="7" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/DZD_E2QnUfY.jpg?itok=pEBiMfW_" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-jamie-cardiac-defect-called-tetralogy-fallot"><strong>Jamie</strong> (cardiac defect called tetralogy of Fallot)</a></h4>
|
||
|
||
<p class="teaser-description">Jamie Gentille was born with a cardiac defect called tetralogy of Fallot, which required surgery when she was 3 years old. During that surgery, Jamie received a blood transfusion that was infected with HIV. Hear Jamie tell her story about participating in clinical research.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-7716" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/7716">Clinical Trials in Parkinson's Disease</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Clinical Trials in Parkinson's Disease" height="150" width="150" class="media-element" data-delta="8" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/SI9AJUjsdA4.jpg?itok=isueX6-a" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-jean-parkinsons-disease"><strong>Jean</strong> (Parkinson’s disease)</a></h4>
|
||
|
||
<p class="teaser-description">Before me, there were hundreds and thousands of other people with Parkinson's who participated in clinical trials that gave me the ability to have the medications that I take today. If people today do not participate in clinical trials, there will be no cure. There will be no new medications.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-30581" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/30581">John and ALS: Participating in an NIH Clinical Study with Dr. Nath</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="John and ALS: Participating in an NIH Clinical Study with Dr. Nath" height="150" width="150" class="media-element" data-delta="12" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/B5xLsxkD2XI.jpg?itok=QA04untm" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-john-amyotrophic-lateral-sclerosis-als"><strong>John</strong> (amyotrophic lateral sclerosis (ALS))</a></h4>
|
||
|
||
<p class="teaser-description">NINDS Clinical Director Dr. Avindra Nath meets with clinical trial participant Mr. John Michael. Dr. Nath and his research team are conducting an NIH study to better understand amyotrophic lateral sclerosis or ALS. In the video, Mr. Michael shares his experience as a trial participant while Dr. Nath discusses his research.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-31076" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/31076">Women in Clinical Trials: Juliana’s Story</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Women in Clinical Trials: Juliana’s Story" height="150" width="150" class="media-element" data-delta="13" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/h8bCmAgHpvE.jpg?itok=xiz-Q_R2" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-juliana-sickle-cell"><strong>Juliana</strong> (sickle cell)</a></h4>
|
||
|
||
<p class="teaser-description">Juliana was born with sickle cell anemia, a condition in which the body’s red blood cells are sickle-shaped. It slows or blocks blood flow to parts of the body, causing intense pain called "crisis." Hear Juliana tell her story about how participating in a clinical trial saved her life.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-82816" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-justin.jpg">personal-story-justin.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img title="Justin" class="media-element" data-delta="64" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-justin.jpg?itok=-LRSL99i" width="150" height="150" alt="Justin" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="https://www.cancer.gov/research/leading-progress/stories/justin-pa"><strong>Justin</strong> (B-cell lymphoma)</a></h4>
|
||
|
||
<p class="teaser-description">After four standard treatments for non-Hodgkin lymphoma did not work, Justin enrolled in NCI’s 5-drug treatment called ViPOR.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-29831" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/29831">LaZann Allen / Giant Cell Arteritis</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="LaZann Allen / Giant Cell Arteritis" height="150" width="150" class="media-element" data-delta="14" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/vImzlVxAQ6I.jpg?itok=6WaV4vu3" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-lazann-vasculitis"><strong>LaZann</strong> (vasculitis)</a></h4>
|
||
|
||
<p class="teaser-description">NIH patient, Liliana, shares her experience living with lupus and how participating in NIH clinical research has helped her.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-57211" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-leonard-thumbnail.jpg">personal-story-leonard-thumbnail.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img title="Leonard and Doris Gardner, in the early days" height="150" width="150" class="media-element" data-delta="53" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-leonard-thumbnail.jpg?itok=fxW_YZ87" alt="Leonard and Doris Gardner, in the early days" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="https://nihrecord.nih.gov/2020/08/21/ultimate-survivor-recalls-cc-study-65-years-ago"><strong>Len</strong> (nephrosis)</a></h4>
|
||
|
||
<p class="teaser-description">Several years past his WWII military service at Pearl Harbor, following a routine visit to the doctor, Leonard Gardner once again faced imminent mortality—but he didn’t know it until many months later.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-25206" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/25206">Liliana Chavez / lupus (SLE)</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Liliana Chavez / lupus (SLE)" height="150" width="150" class="media-element" data-delta="15" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/zgBZCYKTzio.jpg?itok=Q3i60LSc" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-liliana-systemic-lupus-erythematosis-sle"><strong>Liliana</strong> (systemic lupus erythematosis (SLE))</a></h4>
|
||
|
||
<p class="teaser-description">NIH patient, Liliana, shares her experience living with lupus and how participating in NIH clinical research has helped her.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-7736" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-lisa-square.jpg">personal-story-lisa-square.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Lisa" title="Lisa" height="150" width="150" class="media-element" data-delta="16" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-lisa-square.jpg?itok=TyJ0x854" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-lisa-hormonal-changes-midlife-healthy-volunteer"><strong>Lisa</strong> (hormonal changes at midlife — healthy volunteer)</a></h4>
|
||
|
||
<p class="teaser-description">Participating in this clinical trial gave me some insights into how quality clinical research is done. Both the doctor and nurses answered any questions I had about the overall study and what they were finding, making me feel part of a larger effort to help women who experience severe difficulties with this phase of life.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-4836" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/4836">Lydia's Story</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Lydia's Story" height="150" width="150" class="media-element" data-delta="17" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/Uf9jn6agAis.jpg?itok=91DTYK_x" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-lydia-hypoparathyroidism"><strong>Lydia</strong> (hypoparathyroidism)</a></h4>
|
||
|
||
<p class="teaser-description">As a side effect of a past surgery, Lydia developed hypoparathyroidism, a disorder that inhibits her body’s ability to manufacture enough of a particular hormone. Through a clinical study, Lydia works with researchers to manage the condition’s effects on her bones, and scientists gain useful information about the effects of using a synthetic replacement version of the hormone she lacks.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-video_thumbnail"><div id="file-7746" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-maddie-square.jpg">personal-story-maddie-square.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Maddie" title="Maddie" height="150" width="150" class="media-element" data-delta="18" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/health-info/clinical-trials/personal-story-maddie-square_0.jpg?itok=LdLbx7NI" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-maddie-studying-people-who-get-hives-when-exposed-cold-healthy-volunteer"><strong>Maddie</strong> (hives when exposed to cold — healthy volunteer)</a></h4>
|
||
|
||
<p class="teaser-description">I actually work in research as well, and I know how important it is to get healthy volunteers, so I thought it would be nice to kind of give back.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-65141" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-marilyn-thumbnail.jpg">personal-story-marilyn-thumbnail.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img title="Marilyn" height="150" width="150" class="media-element" data-delta="59" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-marilyn-thumbnail.jpg?itok=oGqUREQC" alt="Marilyn" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="https://www.cancer.gov/research/annual-plan/stories/marilyn"><strong>Marilyn</strong> (participating in a colon cancer trial using telemedicine)</a></h4>
|
||
|
||
<p class="teaser-description">While COVID-19 surged in the United States in 2020, a colonoscopy revealed that Marilyn had stage III colon cancer. “I had no symptoms of colon cancer, so I was surprised to hear I had it,” Marilyn said. She’s glad she listened to her doctor and had the cancer screening test.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-79881" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-mel-square.jpg">personal-story-mel-square.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img title="Mel and Dr. Brian Druker" class="media-element" data-delta="62" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-mel-square.jpg?itok=RVsZ512V" width="150" height="150" alt="Mel and Dr. Brian Druker" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="https://www.cancer.gov/research/participate/stories/mel"><strong>Mel</strong> (chronic myeloid leukemia)</a></h4>
|
||
|
||
<p class="teaser-description">Mel was diagnosed with chronic myeloid leukemia and was running out of time when he enrolled in a clinical trial studying Gleevec, a targeted therapy developed by Dr. Brian Druker.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-8141" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-melanie-square.jpg">personal-story-melanie-square.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Melanie" title="Melanie" height="150" width="150" class="media-element" data-delta="19" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-melanie-square.jpg?itok=Vk1niARM" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-melanie-no-disease-identified-healthy-volunteer"><strong>Melanie</strong> (no disease identified — healthy volunteer)</a></h4>
|
||
|
||
<p class="teaser-description">I had a sister who died of cancer, so I believe it is very important for healthy people to help. We have a role to play in helping find new, more effective treatments that can save lives. What could be better than that?</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-video_thumbnail"><div id="file-7766" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-nicholas-square.jpg">personal-story-nicholas-square.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Nicholas" title="Nicholas" height="150" width="150" class="media-element" data-delta="20" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/health-info/clinical-trials/personal-story-nicholas-square.jpg?itok=mopt87Xm" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-nicholas-sickle-cell-disease"><strong>Nicholas</strong> (sickle cell disease)</a></h4>
|
||
|
||
<p class="teaser-description">Nicholas was diagnosed with sickle cell disease soon after he was born. He suffered from hand-feet syndrome as a baby ("He cried and scooted around a lot because of pain in his hands and feet," recalls his mother, Bridget) and had his gallbladder and spleen taken out at age 5.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-29826" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/29826">Nicole Jackson-Taylor / Lupus (SLE)</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Nicole Jackson-Taylor / Lupus (SLE)" height="150" width="150" class="media-element" data-delta="21" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/_xOtcGVjqww.jpg?itok=6HA2a4R2" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-nicole-systemic-lupus-erythematosis-sle"><strong>Nicole</strong> (systemic lupus erythematosus (SLE))</a></h4>
|
||
|
||
<p class="teaser-description">Nicole talks about her diagnosis of systemic lupus erythematosus (SLE) and subsequent treatment at the National Institutes of Health (NIH).</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-29886" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/about-nih/i-know-there-strength-me.jpg">i-know-there-is-strength-in-me.JPG</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Olivia Wein and Harrison Wein" title="I know there is strength in me" height="150" width="150" class="media-element" data-delta="22" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/about-nih/i-know-there-is-strength-in-me.JPG?itok=4HLQ3i7M" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-olivia-stage-4-non-hodgkins-lymphoma"><strong>Olivia</strong> (stage-4 non-Hodgkin’s lymphoma)</a></h4>
|
||
|
||
<p class="teaser-description">Olivia was diagnosed with stage-4 non-Hodgkin’s lymphoma when she was just 15 years old. It was a rare diagnosis for a teenager, and she was treated in an adult ward. Now almost 50, she returned to the NIH, where Harrison, her husband of 25 years now works, to reflect on how facing her mortality at a young age has affected her life since.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-44231" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-sarah-rosenfeld.jpg">personal-story-sarah-rosenfeld.jpeg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Sarah Rosenfeld with her husband and two daughters" title="Sarah Rosenfeld with her husband and two daughters" height="150" width="150" class="media-element" data-delta="24" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-sarah-rosenfeld.jpg?itok=_ScHaDKa" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="https://ccr.cancer.gov/news/article/fighting-a-rare-central-nervous-system-tumor-with-research-and-optimism"><strong>Sarah</strong> (myxopapillary ependymoma)</a></h4>
|
||
|
||
<p class="teaser-description">In January 2016, Sarah Rosenfeld had such severe pain shooting down her legs she couldn’t walk, sleep or care for her young daughters. After weeks of physical therapy for what she thought was sciatica, she had an MRI. Thirty-seven-year-old Rosenfeld learned she had something far worse: myxopapillary ependymoma, a rare cancerous tumor in her spinal cord.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-25201" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/25201">Shirley Aviles / lupus (SLE)</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Shirley Aviles / lupus (SLE)" height="150" width="150" class="media-element" data-delta="25" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/MPv-V5p_xBs.jpg?itok=TWRotE-M" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-shirley-systemic-lupus-erythematosis-sle"><strong>Shirley</strong> (systemic lupus erythematosis (SLE))</a></h4>
|
||
|
||
<p class="teaser-description">Two years after Shirley’s mother passed away from systemic lupus erythematosis (SLE), Shirley was diagnosed with SLE. She shares her story of her diagnosis and subsequent treatment at the National Institutes of Health (NIH).</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-52206" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-samantha-square.jpg">personal-story-samantha-square.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img title="Samantha Seinfeld" height="150" width="150" class="media-element" data-delta="52" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-samantha-square.jpg?itok=DXxk8RK7" alt="Samantha Seinfeld" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="https://twitter.com/hashtag/samanthasjourneytoccr"><strong>Samantha </strong> (metastatic breast cancer )</a></h4>
|
||
|
||
<p class="teaser-description">In a series of Twitter posts, NCI’s Center for Cancer Research (CCR) shares the story of Samantha Seinfeld, a metastatic breast cancer survivor who participated in a CCR first-in-human clinical trial over 10 years ago. Since then, she has remained cancer-free.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-7781" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-socrates-square.jpg">personal-story-socrates-square.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Socrates" title="Socrates" height="150" width="150" class="media-element" data-delta="26" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-socrates-square.jpg?itok=WQ_2ZObP" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-socrates-hiv/aids-vaccine-research"><strong>Socrates</strong> (HIV/AIDS vaccine research)</a></h4>
|
||
|
||
<p class="teaser-description">I was born and raised in Culiacan, Mexico, the third of four siblings. I grew up in a very matriarchal family. I contracted hepatitis A when I was 7 years old, and though I made it through, I considered it a curse. I could not donate blood, and that always made me unhappy.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-29281" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/29281">Women in Clinical Trials: Sue’s Story</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Women in Clinical Trials: Sue’s Story" height="150" width="150" class="media-element" data-delta="27" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/pLqnD-iMP_g.jpg?itok=fE3WOrIN" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-sue-cervical-cancer"><strong>Sue</strong> (cervical cancer)</a></h4>
|
||
|
||
<p class="teaser-description">Sue Scott was diagnosed with stage 1B2 cervical cancer in 2011. She went through the standard course of prescribed treatment, which works for 65% of people with cervical cancer. Unfortunately, she was part of the 35% for whom it did not work. Hear Sue tell her story about how participating in a clinical trial saved her life.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-video_thumbnail"><div id="file-27361" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-julia.jpg">personal-story-julia.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Julia" title="Julia" height="150" width="150" class="media-element" data-delta="28" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/health-info/clinical-trials/personal-story-julia.jpg?itok=Tv1c2qOa" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-victoria-julia-niemann-pick-disease-type-c"><strong>Victoria and Julia</strong> (Niemann-Pick Disease Type C)</a></h4>
|
||
|
||
<p class="teaser-description">Niemann-Pick disease type C, or NPC, is a rare childhood disease that gradually impairs brain function and movement. Researchers at the National Institutes of Health conduct NPC research, including clinical trials that test promising therapies.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-7786" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/7786">Volunteering For An Alzheimer's Disease Clinical Trial</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Volunteering For An Alzheimer's Disease Clinical Trial" height="150" width="150" class="media-element" data-delta="29" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/pzF0OyEKGs8.jpg?itok=dwiaClwp" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-warner-alzheimers-disease"><strong>Warner</strong> (Alzheimer’s disease)</a></h4>
|
||
|
||
<p class="teaser-description">Warner decided to volunteer for the Alzheimer's Disease Neuroimaging Initiative (ADNI) clinical trial for two reasons: his trust in the physician running the trial and a family history of the disease. He relates his personal experience participating in a trial, describing the various tests he takes and the benefits he perceives for his own health.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-82276" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-will-square.jpg">personal-story-will-square.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img title="Will with his mother" class="media-element" data-delta="63" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-will-square.jpg?itok=SvdBsOlo" width="150" height="150" alt="Will with his mother" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/personal-stories/volunteer-story-will-alzheimers-caregiver"><strong>Will</strong> (Alzheimer’s caregiver)</a></h4>
|
||
|
||
<p class="teaser-description">When both of Will’s parents developed dementia, he and his wife moved back into his childhood home to be full-time caregivers. He discusses how participating in a clinical trial helped him take better care of himself physically and receive emotional support from other caregivers in his community.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-7796" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-zenovia-square.jpg">personal-story-zenovia-square.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Zenovia" title="Zenovia" height="150" width="150" class="media-element" data-delta="30" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-zenovia-square.jpg?itok=BcmTUNYp" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/volunteer-story-zenovia-hiv-study-healthy-volunteer"><strong>Zenovia </strong> (HIV study — healthy volunteer)</a></h4>
|
||
|
||
<p class="teaser-description">I had never knowingly encountered anyone who was HIV positive until I was a sophomore in high school. It was then that I learned that my uncle had contracted the virus and his health was rapidly failing. I was really surprised that my family never talked about his HIV or how he may have contracted the virus.</p>
|
||
</div>
|
||
</div>
|
||
|
||
<h2><a id="volunteer" name="researcher"></a>Researcher Stories</h2>
|
||
|
||
<div class="teaser-list teaser-list-no-grid">
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-63691" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/researcher-story-advances-cancer-treatment-care.jpg-0">researcher-story-advances-cancer-treatment-care.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img title="Drs. Deborah Mayer and Arti Hurria" height="150" width="150" class="media-element" data-delta="58" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/researcher-story-advances-cancer-treatment-care_0.jpg?itok=xHWzT5QW" alt="Drs. Deborah Mayer and Arti Hurria" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="https://www.cancer.gov/news-events/nca50/stories/advances-in-treatment-and-care#ui-id-1">Advances in Cancer Treatment and Care</a></h4>
|
||
|
||
<p class="teaser-description">Dr. Deborah Mayer is an oncology nurse who shaped policies and services to improve survivorship care, and Dr. Arti Hurria is a world leader in geriatric oncology.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-43991" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/personal-story-building-bodily-cancer-defences-square.jpg">personal-story-building-bodily-cancer-defences-square.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Dr. James Gulley" title="Dr. James Gulley" height="150" width="150" class="media-element" data-delta="31" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/thumbnail/public/health-info/clinical-trials/personal-story-building-bodily-cancer-defences-square.jpg?itok=uXuBk3QO" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="https://irp.nih.gov/our-research/research-in-action/building-bodily-cancer-defenses">Building Bodily Cancer Defenses</a></h4>
|
||
|
||
<p class="teaser-description">James Gulley provides new tools in the immune system’s fight against cancer.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-video_thumbnail"><div id="file-33366" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/andrea-apolo-video-still.jpg">andrea-apolo-video-still.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Video still of Andrea Apolo, M.D." title="Andrea Apolo, M.D. - video still" height="150" width="150" class="media-element" data-delta="32" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/health-info/clinical-trials/andrea-apolo-video-still.jpg?itok=SbTsDoQ7" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/andrea-apolo-md-spotlight-scientists">Andrea Apolo, M.D. — Spotlight on Scientists</a></h4>
|
||
|
||
<p class="teaser-description">Dr. Andrea Apolo, physician and cancer researcher, discusses her path to medical school and advice for aspiring doctors.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-27701" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/27701">Study Partners in Alzheimer's Disease Clinical Trials</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Study Partners in Alzheimer's Disease Clinical Trials" height="150" width="150" class="media-element" data-delta="33" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/GH8fsPL88UE.jpg?itok=-eoziAgH" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/how-study-partners-are-vital-alzheimers-research">How Study Partners are Vital to Alzheimer’s Research</a></h4>
|
||
|
||
<p class="teaser-description">Dr. Madhav Thambisetty of the National Institute on Aging at NIH discusses the role of study partners in Alzheimer's disease clinical trials. A study partner relates her experience in an Alzheimer's trial.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-29296" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/29296">Progress on the Inclusion of Women in Clinical Research</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Progress on the Inclusion of Women in Clinical Research" height="150" width="150" class="media-element" data-delta="34" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/o9OnyAy4PEs.jpg?itok=2t5zjE1k" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/progress-inclusion-women-clinical-research">Progress on the Inclusion of Women in Clinical Research</a></h4>
|
||
|
||
<p class="teaser-description">Dr. Janine Clayton, Director of the NIH Office of Research on Women’s Health, discusses the changes made in the inclusion of women in clinical research in the last 25 years.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-video_thumbnail"><div id="file-31181" class="file file-image file-image-jpeg">
|
||
|
||
<h2 class="element-invisible"><a href="/clinical-trials/janine-clayton-video-still.jpg">janine-clayton-video-still.jpg</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Video still of Dr. Janine Clayton" title="Dr. Janine Clayton - video still" height="150" width="150" class="media-element" data-delta="35" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/health-info/clinical-trials/janine-clayton-video-still.jpg?itok=gf2VM3Ra" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/why-should-all-women-consider-participating-clinical-trials">Why Should All Women Consider Participating in Clinical Trials?</a></h4>
|
||
|
||
<p class="teaser-description">The purpose of clinical research is to help understand how the human body works and how health and disease come about. Why is it important for all women to consider participating in clinical trials? The NIH Office of Research on Women’s Health (ORWH) answers this question by sharing personal experiences from clinical trial participants and insights from NIH leaders.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-7816" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/7816">Children and Clinical Studies: Messages for researchers</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Children and Clinical Studies: Messages for researchers" height="150" width="150" class="media-element" data-delta="40" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/73AKmsHMnEM.jpg?itok=DLXzi7MF" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/researcher-story-children-clinical-studies">Children and Clinical Studies</a></h4>
|
||
|
||
<p class="teaser-description">In this video, more than a dozen pediatric clinician-researchers, doctors, and nurses talk about the importance of conducting clinical trials for children and what motivates them to do this critical work.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-5076" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/5076">Brian Wansink Spotlight</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Brian Wansink Spotlight" height="150" width="150" class="media-element" data-delta="41" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/5IE02JZKO1c.jpg?itok=x0J032HK" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/researcher-story-eating-habits">Eating Habits</a></h4>
|
||
|
||
<p class="teaser-description">Brian Wansink, Professor at Cornell University, discusses how a lot of eating habits can be changed by changing the environment in which people encounter food.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-5086" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/5086">Carl Lejuez Spotlight</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Carl Lejuez Spotlight" height="150" width="150" class="media-element" data-delta="42" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/W0yTY5HNx5s.jpg?itok=kA11kwgy" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/researcher-story-addictive-behaviors">Addictive Behaviors</a></h4>
|
||
|
||
<p class="teaser-description">Carl Lejuez, Professor of Clinical Psychology at the University of Maryland, College Park, and Director of the Center for Addictions, Personality & Emotional Research, discusses translational research — studying the basic internal processes that lead people to addictive behaviors.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-5071" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/5071">Charlene Quinn Spotlight</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Charlene Quinn Spotlight" height="150" width="150" class="media-element" data-delta="43" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/-Rygoew2LJE.jpg?itok=22iW8i3Y" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/researcher-story-diabetes">Diabetes</a></h4>
|
||
|
||
<p class="teaser-description">Charlene Quinn, Associate Professor, University of Maryland School of Medicine, discusses new mobile technologies and behavioral changes that could reduce the number of diabetes cases related to lifestyle and eating habits.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-5081" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/5081">Nina Jablonski Spotlight</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Nina Jablonski Spotlight" height="150" width="150" class="media-element" data-delta="44" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/UO5VbqEyzBw.jpg?itok=L3j1rfIX" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/researcher-story-skin">Skin</a></h4>
|
||
|
||
<p class="teaser-description">Distinguished Professor of Anthropology, Penn State University, discusses how human lifestyle decisions impact the health of our skin and our skin's ability to mediate our health overall.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-7821" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/7821">National Database for Autism Research</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="National Database for Autism Research" height="150" width="150" class="media-element" data-delta="45" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/vxhSRYg4lFM.jpg?itok=--nyw5Sy" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/researcher-story-national-database-autism-research-ndar">National Database for Autism Research (NDAR)</a></h4>
|
||
|
||
<p class="teaser-description">The National Database for Autism Research provides a way for scientists share data on human autism studies. Families with autism can accelerate discoveries by participating in research and consenting to have their data shared.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-7831" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/7831">Why Participate in Clinical Research?</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Why Participate in Clinical Research?" height="150" width="150" class="media-element" data-delta="48" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/-Fo5OB--TYc.jpg?itok=MK_LoLaV" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/researcher-story-why-participate-clinical-research">Why Participate in Clinical Research?</a></h4>
|
||
|
||
<p class="teaser-description">NIH-supported ResearchMatch.org helps volunteers and researchers connect for clinical trials. Researchers and clinical trial participants explain what it's like to volunteer for a trial and how it promotes medical advances.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-7866" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/7866">Clinical Research Nurses</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Clinical Research Nurses" height="150" width="150" class="media-element" data-delta="50" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/-koZnElb20M.jpg?itok=dmphL4Ei" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/researcher-story-why-i-do-clinical-research">Why I Do Clinical Research</a></h4>
|
||
|
||
<p class="teaser-description">Clinical research nurses tell about their pleasure in working with clinical trials.</p>
|
||
</div>
|
||
|
||
<div class="teaser teaser-clickable">
|
||
<div class="teaser-thumbnail"><div class="media media-element-container media-thumbnail"><div id="file-15316" class="file file-video file-video-youtube">
|
||
|
||
<h2 class="element-invisible"><a href="/file/15316">Becoming a Medical Researcher Is Not For Everyone</a></h2>
|
||
|
||
|
||
<div class="content">
|
||
<img alt="Becoming a Medical Researcher Is Not For Everyone" height="150" width="150" class="media-element" data-delta="51" typeof="foaf:Image" src="https://www.nih.gov/sites/default/files/styles/video_thumbnail/public/media-youtube/xFx6aw9cK3A.jpg?itok=mLTf-pnG" /> </div>
|
||
|
||
|
||
</div>
|
||
</div></div>
|
||
|
||
<h4 class="teaser-title"><a href="/health-information/nih-clinical-research-trials-you/researcher-stories-why-we-became-scientists">Why We Became Scientists</a></h4>
|
||
|
||
<p class="teaser-description">As featured on LabTV, NIH researchers talk about why they became scientists and what they hope to accomplish through their research.</p>
|
||
</div>
|
||
</div>
|
||
</div></div>
|
||
|
||
</div>
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<div class="lastupdated">
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<p>This page last reviewed on September 16, 2024</p> </div> </div>
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