723 lines
34 KiB
HTML
723 lines
34 KiB
HTML
|
||
|
||
|
||
<!doctype html>
|
||
<html dir="ltr" lang="en">
|
||
<head>
|
||
<!-- meta data -->
|
||
<meta charset="utf-8">
|
||
<meta name="viewport" content="initial-scale=1">
|
||
|
||
|
||
|
||
<link rel='canonical' href='https://magazine.medlineplus.gov/nih-resources/navigating-a-rare-disease-the-genetic-and-rare-diseases-information-center-can-help'>
|
||
|
||
|
||
|
||
|
||
<title>Navigating a rare disease? The Genetic and Rare Diseases Information Center can help! | NIH MedlinePlus Magazine</title>
|
||
<meta name="twitter:title" content="NIH MedlinePlus Magazine">
|
||
<meta property="og:title" content="NIH MedlinePlus Magazine">
|
||
<meta property="og:site_name" content="NIH MedlinePlus Magazine">
|
||
<meta property="og:type" content="article">
|
||
<meta name="twitter:card" content="summary_large_image">
|
||
<meta name="twitter:site" content="@medlineplus">
|
||
<meta name="twitter:creator" content="@medlineplus">
|
||
<meta name='description' content='Navigating a rare disease can be daunting. NIH’s Genetic and Rare Diseases (GARD) Information Center offers reliable, easy-to-understand information in English and Spanish on thousands of rare diseases. '>
|
||
<meta property="og:locale" content="en_US">
|
||
<meta property="og:locale:alternate" content="es_ES">
|
||
<meta property="og:description" content="Navigating a rare disease can be daunting. NIH’s Genetic and Rare Diseases (GARD) Information Center offers reliable, easy-to-understand information in English and Spanish on thousands of rare diseases. ">
|
||
<meta name="twitter:description" content="Navigating a rare disease can be daunting. NIH’s Genetic and Rare Diseases (GARD) Information Center offers reliable, easy-to-understand information in English and Spanish on thousands of rare diseases. ">
|
||
<meta property="fb:app_id" content="240215103329416">
|
||
|
||
<!-- generated by seo_lite template -->
|
||
|
||
<meta property="og:image" content="https://magazine.medlineplus.gov//images/uploads/main_images/GARDMain.jpg">
|
||
<meta name="twitter:image" content="https://magazine.medlineplus.gov//images/uploads/main_images/GARDMain.jpg">
|
||
|
||
|
||
|
||
|
||
<meta property="og:url" content="https://magazine.medlineplus.gov/nih-resources/navigating-a-rare-disease-the-genetic-and-rare-diseases-information-center-can-help">
|
||
|
||
|
||
|
||
<link rel="alternate" hreflang="en" href="https://magazine.medlineplus.gov/nih-resources/navigating-a-rare-disease-the-genetic-and-rare-diseases-information-center-can-help/">
|
||
|
||
<link rel="alternate" hreflang="es" href="https://magazine.medlineplus.gov/es/nih-resources/navega-una-enfermedad-rara-el-centro-de-informacion-sobre-enfermedades-genetica-y-raras-puede-ayudar/">
|
||
|
||
|
||
|
||
<meta name="google-site-verification" content="1vqBPMloWNSvBFlS5qlOUjpWHxdv1TfmfFrH-tfYpcs" />
|
||
<!-- styles -->
|
||
<link rel="shortcut icon" type="image/x-icon" href="/images/design/favicon.ico">
|
||
<link href="/css/font-awesome.css" rel="stylesheet" type="text/css" media="all">
|
||
<link href="/css/uswds.min.css" rel="stylesheet" type="text/css" media="all">
|
||
<!-- link rel="stylesheet" type="text/css" media="all" href="https://magazine.medlineplus.gov/?css=custom/styles-2020.v.1632316900" / -->
|
||
<link href="/css/style.css" rel="stylesheet" type="text/css" media="all">
|
||
<link href="/css/slick.css" rel="stylesheet" type="text/css">
|
||
<link href="/css/responsive.css" rel="stylesheet" type="text/css" media="all">
|
||
<!-- fluid styles -->
|
||
<link rel="stylesheet" type="text/css" media="all" href="https://magazine.medlineplus.gov/?css=custom/fluid-styles.v.1702498498" />
|
||
|
||
|
||
<!-- google tag manager -->
|
||
<script>(function(w,d,s,l,i){w[l]=w[l]||[];w[l].push({'gtm.start':new Date().getTime(),event:'gtm.js'});var f=d.getElementsByTagName(s)[0],j=d.createElement(s),dl=l!='dataLayer'?'&l='+l:'';j.async=true;j.src= 'https://www.googletagmanager.com/gtm.js?id='+i+dl;f.parentNode.insertBefore(j,f);})(window,document,'script','dataLayer','GTM-MMVM77');</script>
|
||
</head>
|
||
<body>
|
||
<noscript><iframe src="https://www.googletagmanager.com/ns.html?id=GTM-MMVM77" height="0" width="0" style="display:none;visibility:hidden" title="googletagmanager"></iframe></noscript>
|
||
<a class="usa-skipnav" href="#main-content">Skip to main content</a>
|
||
<!-- Wrapper -->
|
||
<div class="wrapper">
|
||
<div id="top"></div>
|
||
<!-- Container -->
|
||
<header role="banner">
|
||
<div class="usa-accordion">
|
||
<div class="usa-header-top">
|
||
<div class="usa-grid">
|
||
<div class="usa-width-one-half top_logo">
|
||
<div class="usa-top-logo ">
|
||
<img src="/themes/ee/site/default/asset/img/common/nlm-logo-new.svg" alt="National Library of Medicine">
|
||
</div>
|
||
</div>
|
||
|
||
</div>
|
||
<!--<div class="usa-banner-content usa-grid usa-accordion-content" id="gov-banner">
|
||
<div class="usa-banner-guidance-gov usa-width-one-half">
|
||
<img class="usa-banner-icon usa-media_block-img" src="/images/design/icon-dot-gov-white.svg" alt="Dot gov">
|
||
<div class="usa-media_block-body">
|
||
<p>
|
||
The .gov means it’s official.<br>Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you're on a federal government site.
|
||
</p>
|
||
</div>
|
||
</div>
|
||
<div class="usa-banner-guidance-ssl usa-width-one-half">
|
||
<img class="usa-banner-icon usa-media_block-img" src="/images/design/icon-https-white.svg" alt="Https">
|
||
<div class="usa-media_block-body">
|
||
<p>
|
||
The site is secure.<br> The <em>https://</em> ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.
|
||
</p>
|
||
</div>
|
||
</div>
|
||
</div>-->
|
||
</div>
|
||
</div>
|
||
|
||
<div class="usa-grid usa-logo-grid">
|
||
<div class="nih-logo">
|
||
<img src="/images/design/nih-mobile.svg" alt="NIH logo">
|
||
</div>
|
||
<div class="usa-width-two-thirds">
|
||
<div class="usa-logo">
|
||
<a href="/"><img src="/images/design/medlineplus-logo2.png" alt="Medlineplus"></a>
|
||
</div>
|
||
<div class="tagline">
|
||
<p>Trusted Health Information from the National Institutes of Health</p>
|
||
</div>
|
||
<button class="usa-menu-btn">Menu</button>
|
||
|
||
</div>
|
||
<div class="usa-width-one-third">
|
||
<div class="lang-mobile">
|
||
|
||
|
||
|
||
|
||
<a href="https://magazine.medlineplus.gov/es/nih-resources/navega-una-enfermedad-rara-el-centro-de-informacion-sobre-enfermedades-genetica-y-raras-puede-ayudar/">Español</a>
|
||
|
||
|
||
</div>
|
||
<div class="usa-social">
|
||
<ul>
|
||
<li>
|
||
|
||
|
||
|
||
|
||
<a href="https://magazine.medlineplus.gov/es/nih-resources/navega-una-enfermedad-rara-el-centro-de-informacion-sobre-enfermedades-genetica-y-raras-puede-ayudar/">Español</a>
|
||
|
||
|
||
</li>
|
||
|
||
<li><a href="https://magazine.medlineplus.gov/home/nih-medlineplus-magazine.feed"><i class="fa fa-rss-square" aria-hidden="true"></i>rss</a></li>
|
||
|
||
<li><a href="https://www.facebook.com/nationallibraryofmedicine"><i class="fa fa-facebook-square" aria-hidden="true"></i>facebook</a></li>
|
||
|
||
<li><a href="https://twitter.com/NLM_NIH" target="_blank"><img src=/images/uploads/multimedia/twitter.svg class="twit" alt="Twitter"></a></li>
|
||
|
||
<li><a href="https://www.youtube.com/user/NLMNIH"><i class="fa fa-youtube-square" aria-hidden="true"></i>youtube</a></li>
|
||
|
||
<li><a href="https://public.govdelivery.com/accounts/USNLMOCPL/subscriber/new?preferences=true"><i class="fa fa-envelope" aria-hidden="true"></i></a></li>
|
||
|
||
|
||
</ul>
|
||
</div>
|
||
<div class="usa-search-box">
|
||
<form class="usa-search usa-search-small" id="search_form" action="https://search.usa.gov/search" accept-charset="UTF-8" method="get" data-publisher-ignored="yes">
|
||
|
||
<input name="utf8" type="hidden" value="✓" /><input type="hidden" name="affiliate" id="affiliate" value="mlp-mag" />
|
||
|
||
<div role="search">
|
||
<label for="basic-search-field-small">Search</label>
|
||
<input id="basic-search-field-small" type="search" class="search-form usagov-search-autocomplete" placeholder="Search..." name="query" autocomplete="off" >
|
||
<button type="submit" name="commit"><i class="fa fa-search"></i>Search</button>
|
||
</div>
|
||
</form>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
|
||
</header>
|
||
<div class="usa-navbar-section" role="navigation">
|
||
<!-- navbar -->
|
||
<div class="usa-grid">
|
||
<nav role="navigation" class="usa-nav">
|
||
<div class="usa-nav-inner">
|
||
<button class="usa-nav-close">
|
||
<img src="/images/design/close.svg" alt="close">
|
||
</button>
|
||
<ul class="usa-nav-primary usa-accordion">
|
||
<li>
|
||
<button class="usa-accordion-button usa-nav-link" aria-expanded="false" aria-controls="extended-nav-section-one">
|
||
<span>Health A-Z</span>
|
||
</button>
|
||
<ul id="extended-nav-section-one" class="usa-nav-submenu" aria-hidden="true">
|
||
<li>
|
||
<a href="/topic/anxiety/">Anxiety</a>
|
||
</li>
|
||
<li>
|
||
<a href="/topic/antidepressants/">Antidepressants</a>
|
||
</li>
|
||
<li>
|
||
<a href="/topic/breast-cancer/">Breast Cancer</a>
|
||
</li>
|
||
<li>
|
||
<a href="/topic/cholesterol/">Cholesterol</a>
|
||
</li>
|
||
<li>
|
||
<a href="/topic/COVID-19/">COVID-19</a>
|
||
</li>
|
||
<li>
|
||
<a href="/topic/hypothyroidism/">Hypothyroidism</a>
|
||
</li>
|
||
|
||
<li>
|
||
<a href="/topic/palliative-care/">Palliative Care</a>
|
||
</li>
|
||
|
||
<li>
|
||
<a href="/topic/physical-activity/">Physical Activity</a>
|
||
</li>
|
||
<li>
|
||
<a href="/topic/skin-conditions/">Skin Conditions</a>
|
||
</li>
|
||
|
||
<li>
|
||
<a href="/topics/"><strong>View all topics</strong></a>
|
||
</li>
|
||
</ul>
|
||
</li>
|
||
<li>
|
||
<button class="usa-accordion-button usa-nav-link" aria-expanded="false" aria-controls="extended-nav-section-two">
|
||
<span>NIH Research</span>
|
||
</button>
|
||
<ul id="extended-nav-section-two" class="usa-nav-submenu" aria-hidden="true">
|
||
<li>
|
||
<a href="/research-highlights/">Research Highlights</a>
|
||
</li>
|
||
<li>
|
||
<a href="/nih-technology-breakthroughs/">NIH Technology Breakthroughs</a>
|
||
</li>
|
||
<li>
|
||
<a href="/meet-the-researcher/">Meet the Researchers</a>
|
||
</li>
|
||
<li>
|
||
<a href="/nih-resources/">Resources at NIH</a>
|
||
</li>
|
||
</ul>
|
||
</li>
|
||
<li>
|
||
<button class="usa-accordion-button usa-nav-link" aria-expanded="false" aria-controls="extended-nav-section-three">
|
||
<span>Issues</span>
|
||
</button>
|
||
<ul id="extended-nav-section-three" class="usa-nav-submenu" aria-hidden="true">
|
||
<li>
|
||
<a href="/issues/current">Current Issue</a>
|
||
</li>
|
||
<li>
|
||
<a href="/issues/past-issues/">Past Issues</a>
|
||
</li>
|
||
<li>
|
||
<a href="/issues/issue-archive">Archived Issues</a>
|
||
</li>
|
||
</ul>
|
||
</li>
|
||
|
||
<li>
|
||
<button class="usa-accordion-button usa-nav-link" aria-expanded="false" aria-controls="extended-nav-section-five">
|
||
<span>Multimedia</span>
|
||
</button>
|
||
<ul id="extended-nav-section-five" class="usa-nav-submenu" aria-hidden="true">
|
||
<li>
|
||
<a href="/multimedia/video/">Video</a>
|
||
</li>
|
||
<li>
|
||
<a href="/multimedia/infographics/">Infographics</a>
|
||
</li>
|
||
<li>
|
||
<a href="/multimedia/health-fast-facts/">Health Fast Facts</a>
|
||
</li>
|
||
<li>
|
||
<a href="/multimedia/landing/">All Multimedia</a>
|
||
</li>
|
||
</ul>
|
||
</li>
|
||
<li>
|
||
<button class="usa-accordion-button usa-nav-link" aria-expanded="false" aria-controls="extended-nav-section-six">
|
||
<span>About</span>
|
||
</button>
|
||
<ul id="extended-nav-section-six" class="usa-nav-submenu" aria-hidden="true">
|
||
|
||
<li>
|
||
<a href="/about/the-magazine-team">Contact us</a>
|
||
</li>
|
||
|
||
</ul>
|
||
</li>
|
||
<li>
|
||
<button class="usa-accordion-button usa-nav-link" aria-expanded="false" aria-controls="extended-nav-section-four">
|
||
<span>Subscribe</span>
|
||
</button>
|
||
<ul id="extended-nav-section-four" class="usa-nav-submenu" aria-hidden="true">
|
||
|
||
<li>
|
||
<a href="/subscribe/">Email Updates</a>
|
||
</li>
|
||
</ul>
|
||
</li>
|
||
</ul>
|
||
<div class="usa-search-box">
|
||
<form class="usa-search usa-search-small" id="search_form_mobile" action="https://search.usa.gov/search" accept-charset="UTF-8" method="get" data-publisher-ignored="yes">
|
||
|
||
<input name="utf8" type="hidden" value="✓" /><input type="hidden" name="affiliate" id="affiliate-mobile" value="mlp-mag" />
|
||
|
||
<div role="search">
|
||
<label for="basic-search-field-small-mobile">Search</label>
|
||
<input id="basic-search-field-small-mobile" type="search" class="search-form" placeholder="Search..." name="query" autocomplete="off" >
|
||
<button type="submit" name="commit"><i class="fa fa-search"></i>Search</button>
|
||
</div>
|
||
</form>
|
||
</div>
|
||
</div>
|
||
</nav>
|
||
</div>
|
||
</div>
|
||
|
||
|
||
|
||
<main>
|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
||
<!--banner-->
|
||
|
||
<section class="usa-grid usa-section article_section" role="main" aria-labelledby="main" id="main-content">
|
||
<a href="/topic/rare-diseases/" class="article_btn">Rare Diseases</a>
|
||
<div class="inner_heading">
|
||
<h1 id="main">Navigating a rare disease? The Genetic and Rare Diseases Information Center can help!</h1></div>
|
||
|
||
<div class="inner_article_img article_banner_img">
|
||
<img src="/images/uploads/main_images/GARDMain.jpg" alt="GARD Information Specialists can help you find information and resources for your rare disease. ">
|
||
<div class="article_caption" aria-hidden="true">
|
||
<p><i class="fa fa-camera"></i> GARD Information Specialists can help you find information and resources for your rare disease. </p>
|
||
</div>
|
||
</div>
|
||
</section>
|
||
<section class="usa-grid article_section" role="region" aria-labelledby="article">
|
||
<article id="article">
|
||
<div class="usa-width-two-thirds inner-article_content inner_article_content" id="feature">
|
||
<p>Millions of people in the United States live with a rare disease. While each individual disease may be uncommon, the people they affect often face similar challenges. Finding reliable information, getting a diagnosis, and locating resources can feel overwhelming.</p>
|
||
|
||
<p>That’s where NIH’s <a href="https://rarediseases.info.nih.gov/" target="_blank">Genetic and Rare Diseases (GARD) Information Center</a> can help.</p>
|
||
|
||
<h2>Easy-to-understand information at your fingertips</h2>
|
||
|
||
<p>GARD is a comprehensive resource for anyone affected by a rare disease. On their website, you’ll find current, reliable, and easy-to-understand information on thousands of <a href="https://rarediseases.info.nih.gov/diseases?category=&page=1&letter=&search=" target="_blank">rare diseases</a>. Information is available in both English and Spanish. It is presented in a clear and actionable way, giving you the information you may need to get a diagnosis, manage your care, or find a supportive community.</p>
|
||
|
||
<p><img alt="" src="/images/uploads/main_images/GARD1.jpg" style="width: 800px; height: 548px;" /></p>
|
||
|
||
<div class="article_caption">
|
||
<p>Explore thousands of rare diseases in GARD’s online directory.</p>
|
||
</div>
|
||
|
||
<h2>Connect with a GARD Information Specialist</h2>
|
||
|
||
<p>Getting a diagnosis for a rare disease can be challenging and, for some patients, may take months to years. GARD offers free support through its team of dedicated Information Specialists.</p>
|
||
|
||
<p>GARD Information Specialists can provide individualized help with:</p>
|
||
|
||
<ul>
|
||
<li>Finding or understanding information about a rare disease</li>
|
||
<li>Navigating the process of getting a rare disease diagnosis</li>
|
||
<li>Finding resources, disease experts, and clinical trials</li>
|
||
<li>Connecting with patient communities</li>
|
||
</ul>
|
||
|
||
<p>While GARD Information Specialists can’t give you medical advice or make a diagnosis, they can help you find someone to answer your questions.</p>
|
||
|
||
<p><img alt="Example of a GARD webpage about a specific condition" src="/images/uploads/main_images/GARD2.jpg" style="width: 800px; height: 474px;" /></p>
|
||
|
||
<div class="article_caption">
|
||
<p>Each disease page has information about the disease, diagnosis, clinical research, patient organizations, and other resources.</p>
|
||
</div>
|
||
|
||
<h2>Contacting GARD</h2>
|
||
|
||
<p>GARD Information Specialists are available Monday through Friday from 12 p.m. to 6 p.m. Eastern Time (except federal holidays).</p>
|
||
|
||
<p>Get in touch by calling toll-free at 888-205-2311 or by filling out a <a href="https://contact.rarediseases.info.nih.gov/Gard/s/?language=en_US" target="_blank">contact form</a> on their website.</p>
|
||
|
||
<p style="margin-left:.5in;"><strong>Tip: </strong>Be as specific as possible when describing your information needs to a GARD Information Specialist. It’s a good idea to have some questions prepared ahead of time.</p>
|
||
|
||
<p>With GARD's support, you won't have to face a rare disease alone.</p>
|
||
|
||
<p><img alt="" src="/images/uploads/main_images/GARD3.jpg" style="width: 800px; height: 529px;" /></p>
|
||
|
||
<div class="article_caption">
|
||
<p>After filling out the GARD contact form, you will be contacted by an Information Specialist.</p>
|
||
</div>
|
||
|
||
<p> </p>
|
||
|
||
|
||
<div class="article-meta">
|
||
|
||
<div class="mt-1 mb-2"><strong>Image credit:</strong> Getty Images </div>
|
||
<p><i class="fa fa-calendar"></i> August 06, 2024</p>
|
||
</div>
|
||
</div>
|
||
</article>
|
||
|
||
|
||
|
||
|
||
|
||
|
||
<div class="usa-width-one-third aside_content">
|
||
<aside>
|
||
|
||
<div role="complementary" aria-labelledby="sidebar">
|
||
<div class="heading">
|
||
<h3 id="sidebar">Learn More</h3>
|
||
</div>
|
||
<div class="usa-grid find_section padding-0">
|
||
|
||
<div class="usa-grid find_section padding-0">
|
||
<ul>
|
||
<li><a href="https://clinicaltrials.gov" target="_blank">Join a clinical trial on<br />
|
||
ClinicalTrials.gov</a></li>
|
||
<li><a href="https://collections.nlm.nih.gov/" target="_blank">Dive into medical history with NLM Digital Collections</a></li>
|
||
<li><a href="https://ghr.nlm.nih.gov/" target="_blank">Find out more about inherited conditions on Genetics Home Reference</a></li>
|
||
</ul>
|
||
</div>
|
||
|
||
</div>
|
||
</div>
|
||
|
||
|
||
<div role="complementary" aria-labelledby="video">
|
||
<div class="heading video-title">
|
||
<h3 id="video">Latest Video</h3>
|
||
</div>
|
||
<div class="regular video_section">
|
||
<div class="item">
|
||
|
||
<iframe width="300" height="215" src="https://www.youtube.com/embed/A9pbzFAqaho?rel=0&showinfo=0" allow="autoplay; encrypted-media" allowfullscreen title="Celiac Disease in Video"></iframe>
|
||
|
||
</div>
|
||
</div>
|
||
</div>
|
||
|
||
|
||
|
||
|
||
<div class="usa-grid explore_section padding-0">
|
||
<div class="heading">
|
||
<h3>MedlinePlus.gov Covers Over 1000 Health Topics</h3>
|
||
</div>
|
||
<div>
|
||
|
||
<p>Produced by the National Library of Medicine, the world's largest medical library, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free.</p>
|
||
<a href="https://www.medlineplus.gov" class="usa-button usa-external_link-alt" target="_blank">Visit MedlinePlus.gov</a>
|
||
|
||
</div>
|
||
</div>
|
||
|
||
|
||
</aside>
|
||
</div>
|
||
</section>
|
||
|
||
|
||
|
||
|
||
</main>
|
||
|
||
|
||
|
||
|
||
|
||
<!-- Segment 1: nih-resources -->
|
||
|
||
|
||
|
||
|
||
<!-- Related Articles : -->
|
||
|
||
<!-- Related Articles from entry : 3792 : 3447|3471|3459 -->
|
||
|
||
|
||
|
||
|
||
|
||
<section class="usa-grid usa-section" role="region" aria-labelledby="related-articles">
|
||
<div class="heading">
|
||
<h3 id="related-articles">You May Also Like</h3>
|
||
</div>
|
||
|
||
<div class="usa-width-one-third">
|
||
<div class="feature_box">
|
||
|
||
|
||
<a href="/article/gene-therapies-are-a-promising-path-to-treating-rare-diseases/">
|
||
|
||
<div class="feature_img">
|
||
<img src="/images/uploads/main_images/_main_article_list/geneTherapies980x587.jpg" class="feature_img" alt="Gene therapies “fix” genetic mutations by replacing or changing a gene that doesn’t work with one that does. ">
|
||
<span class="feature_tag">
|
||
Rare Diseases</span>
|
||
</div>
|
||
<h4>Gene therapies are a promising path to treating rare diseases</h4>
|
||
<p>Researching and developing new treatments for rare diseases is time consuming, complex, and often expensive. Most rare diseases (almost 80%) are...</p>
|
||
</a>
|
||
</div>
|
||
</div>
|
||
|
||
|
||
|
||
<div class="usa-width-one-third">
|
||
<div class="feature_box">
|
||
|
||
|
||
<a href="/article/covid-19-makes-living-with-a-rare-disease-even-harder/">
|
||
|
||
<div class="feature_img">
|
||
<img src="/images/uploads/main_images/_main_article_list/rareDiseasesCovidImpact980x587.jpg" class="feature_img" alt="Telehealth makes it easier for some people with rare diseases to access medical care. ">
|
||
<span class="feature_tag">
|
||
Rare Diseases</span>
|
||
</div>
|
||
<h4>COVID-19 makes living with a rare disease even harder</h4>
|
||
<p>Ongoing uncertainty, being alone, and not being able to get treatment. In many ways, the widespread challenges the COVID-19 pandemic...</p>
|
||
</a>
|
||
</div>
|
||
</div>
|
||
|
||
|
||
|
||
<div class="usa-width-one-third">
|
||
<div class="feature_box">
|
||
|
||
|
||
<a href="/article/virtual-rare-disease-day-at-nih-2022/">
|
||
|
||
<div class="feature_img">
|
||
<img src="/images/uploads/main_images/_main_article_list/RDD_2022_Collage_980x478_P1_1_.jpg" class="feature_img" alt="Rare Disease Day at NIH 2022 ">
|
||
<span class="feature_tag">
|
||
Rare Diseases</span>
|
||
</div>
|
||
<h4>Virtual Rare Disease Day at NIH 2022</h4>
|
||
<p>In the United States, diseases that each affect less than 200,000 people are called “rare diseases.” There are about 7,000 – 10,000...</p>
|
||
</a>
|
||
</div>
|
||
</div>
|
||
</section>
|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
||
<!-- <section class="inbox_section" role="region" aria-labelledby="subscribe">
|
||
<div class="usa-grid" id="subscribe">
|
||
<h2>Trusted health information delivered to your inbox</h2>
|
||
<form id="GD-snippet-form" action=
|
||
|
||
"https://public.govdelivery.com/accounts/USNLMMP/subscribers/qualify" accept-charset="UTF-8" method="post"><input name="utf8" type="hidden" value="✓" data-publisher-ignored="yes" /><input type="hidden" name="authenticity_token" value="yZ0SpTi1i9jOE2hqCnIK4EjbIKRWglj/Ltq7aX3F3KkWcqkCFRAIpzz0areoLIpVXiD7vKKJdHug07v6QWruaQ==" />
|
||
|
||
<p>Enter your email below</p>
|
||
<label for="signup">Sign</label>
|
||
<input id="signup" type="email" class="input_form" placeholder="Enter email address here ..." required>
|
||
<button type="submit" class="submit_btn">Sign up</button>
|
||
</form>
|
||
|
||
</div>
|
||
</section> -->
|
||
|
||
|
||
<footer role="contentinfo">
|
||
<div class="footer_top">
|
||
|
||
<div class="usa-grid">
|
||
<div class="usa-width-one-fourth footer_bottom_right">
|
||
<div class="" aria-label="Social Links">
|
||
|
||
|
||
<p class="font-white mt-1 mb--1"><a href="https://www.nlm.nih.gov/socialmedia/index.html"> Connect with NLM</a></p>
|
||
<ul>
|
||
<!--<li><a href="/home/nih-medlineplus-magazine" target="_blank"><i class="fa fa-rss-square" aria-hidden="true"></i>rss</a></li> -->
|
||
|
||
<li><a href="https://www.facebook.com/nationallibraryofmedicine" target="_blank"><img src=/images/uploads/multimedia/facebook.svg alt="Facebook"></a></li>
|
||
|
||
<li><a href="https://www.linkedin.com/company/national-library-of-medicine-nlm/" target="_blank"><img src=/images/uploads/multimedia/linkedin.svg alt="LinkedIn"></a></li>
|
||
|
||
<li><a href="https://twitter.com/NLM_NIH" target="_blank"><img src=/images/uploads/multimedia/twitter.svg alt="Twitter"></a></li>
|
||
|
||
<li><a href="https://www.youtube.com/user/NLMNIH" target="_blank"><img src=/images/uploads/multimedia/youtube.svg alt="YouTube"></a></li>
|
||
|
||
<li><a href="https://public.govdelivery.com/accounts/USNLMOCPL/subscriber/new?preferences=true" target="_blank"><img src=/images/uploads/multimedia/mail.svg alt="email"></a></li>
|
||
|
||
</ul>
|
||
|
||
</div>
|
||
|
||
|
||
</div>
|
||
<div class="usa-width-one-fourth mt-1">
|
||
<p class="font-white">National Library of Medicine
|
||
<br>8600 Rockville Pike
|
||
<br> Bethesda, MD 20894
|
||
</p>
|
||
</div>
|
||
<div class="footer_top_middle" role="navigation" aria-label="Footer Menu">
|
||
<ul class="usa-width-one-fourth footer_list mt-1">
|
||
|
||
<li><a href="https://www.nlm.nih.gov/web_policies.html" class="text-white"> Web Policies </a></li>
|
||
<li><a href="https://www.nih.gov/institutes-nih/nih-office-director/office-communications-public-liaison/freedom-information-act-office" class="" target="_blank">FOIA</a></li>
|
||
|
||
<li><a href="https://www.hhs.gov/vulnerability-disclosure-policy/index.html" class="" target="_blank" id="anch_87">HHS Vulnerability Disclosure</a></li>
|
||
|
||
|
||
</ul>
|
||
<ul class="usa-width-one-fourth mt-1">
|
||
|
||
<li><a href="https://support.nlm.nih.gov/" class="" target="_blank">NLM Support Center</a></li>
|
||
<li><a href="https://www.nlm.nih.gov/accessibility.html" class="" target="_blank">Accessibility</a></li> <li><a href="https://www.nlm.nih.gov/careers/jobopenings.html" class="" target="_blank">Careers</a></li>
|
||
|
||
|
||
</ul>
|
||
</div>
|
||
|
||
</div>
|
||
</div>
|
||
<div class="footer_bottom">
|
||
<div class="usa-grid">
|
||
<div class="footer_bottom_left" role="navigation" aria-label="Footer External Links">
|
||
|
||
|
||
<p class="text-center text-white"> <a class="text-white" href="//www.nlm.nih.gov/">NLM</a> | <a class="text-white" href="https://www.nih.gov/">NIH</a> | <a class="text-white" href="https://www.hhs.gov/">HHS</a> | <a class="text-white" href="https://www.usa.gov/">USA.gov</a></p>
|
||
|
||
|
||
</div>
|
||
|
||
</div>
|
||
</div>
|
||
<a href="#top" class="scroll-btn scroll fa fa-angle-up"><i>Go to top</i></a>
|
||
</footer>
|
||
</div>
|
||
|
||
<script src="https://code.jquery.com/jquery-3.6.0.slim.min.js" integrity="sha256-u7e5khyithlIdTpu22PHhENmPcRdFiHRjhAuHcs05RI=" crossorigin="anonymous"></script>
|
||
<!-- script src="https://code.jquery.com/jquery-3.3.1.slim.min.js" integrity="sha256-3edrmyuQ0w65f8gfBsqowzjJe2iM6n0nKciPUp8y+7E=" crossorigin="anonymous"></script -->
|
||
<script src="/js/uswds.min.js"></script>
|
||
<!-- script src="/js/jquery-1.9.1.min.js"></script -->
|
||
<!-- script src="/js/jquery.easing.1.3.js"></script -->
|
||
|
||
<script src="/js/slick.min.js"></script>
|
||
<script src="/js/jquery.easing.1.4.min.js"></script>
|
||
|
||
<script src="/js/custom.js?t=1740551445"></script>
|
||
|
||
<script>
|
||
//<![CDATA[
|
||
var usasearch_config = {siteHandle:"mlp-mag"};
|
||
|
||
var script = document.createElement("script");
|
||
script.type = "text/javascript";
|
||
script.src = "//search.usa.gov/javascripts/remote.loader.js";
|
||
document.getElementsByTagName("head")[0].appendChild(script);
|
||
|
||
//]]>
|
||
</script>
|
||
|
||
|
||
<script src="https://www.nlm.nih.gov/coop_all.js"></script>
|
||
<script>
|
||
var createCookie = function(name, value, days) {
|
||
if (days) {
|
||
var date = new Date();AC
|
||
date.setTime(date.getTime() + (days * 24 * 60 * 60 * 1000));
|
||
var expires = '; expires=' + date.toGMTString();
|
||
}
|
||
else var expires = '';
|
||
document.cookie = name + '=' + value + expires + '; path=/';
|
||
};
|
||
var readCookie = function(name) {
|
||
var nameEQ = name + '=';
|
||
var ca = document.cookie.split(';');
|
||
for (var i = 0; i < ca.length; i++) {
|
||
var c = ca[i];
|
||
while (c.charAt(0) == ' ') c = c.substring(1, c.length);
|
||
if (c.indexOf(nameEQ) == 0) return c.substring(nameEQ.length, c.length);
|
||
}
|
||
return null;
|
||
};
|
||
var eraseCookie = function(name) {
|
||
createCookie(name, '', -1);
|
||
};
|
||
|
||
function coopcookie() {
|
||
$(".insertcoop").hide();
|
||
createCookie("coop", "hidden");
|
||
};
|
||
|
||
if (!readCookie("coop"))
|
||
{
|
||
if (coopMedlinePlusMagazineSpa && window.location.href.includes("medlineplus.gov/es/"))
|
||
{
|
||
$( "header" ).append( $(coopMedlinePlusMagazineSpa) );
|
||
}
|
||
else
|
||
{
|
||
if (coopMedlinePlusMagazineEng)
|
||
{
|
||
$( "header" ).append( $(coopMedlinePlusMagazineEng) );
|
||
}
|
||
}
|
||
}
|
||
|
||
if (readCookie("coop"))
|
||
{$(".insertcoop").hide();}
|
||
else
|
||
{$(".insertcoop").show();}
|
||
</script>
|
||
</body>
|
||
</html>
|