1391 lines
42 KiB
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1391 lines
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<meta name="description" content="Explore a list of projects that researchers are conducting with All of Us data. See how researchers are studying many different things about health." />
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<meta property="og:updated_time" content="Mon, 04/15/2024 - 14:22" />
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<meta property="article:published_time" content="Tue, 09/15/2020 - 23:34" />
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<h1 class="page-title">Research Projects Directory</h1>
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<span property="schema:name" content="Research Projects Directory" class="hidden"></span>
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<div class="col-12 ">
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<p><a href="#v-rpdApp">Jump to projects</a></p>
|
||
<p>Researchers use <em>All of Us</em> data to study many different things about health. The program’s <a href="#tiereddataaccessmodel">tiered data access model</a> allows registered researchers to work with different data types, such as electronic health record data and genomic data, while also <a href="/protecting-data-and-privacy">protecting participant privacy</a>. </p>
|
||
<p>Researchers provide these project descriptions. Any views expressed belong to those researchers. They do not represent the views of the <em>All of Us</em> Research Program. A directory is also available on the <a href="https://www.researchallofus.org/research-projects-directory/">Research Hub</a>.</p>
|
||
<p>If you have any concerns about a project, please open the project description and request a formal review.</p>
|
||
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</div>
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</div>
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</div>
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</div>
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</div>
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</div>
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</div>
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<div class="vue-app-block-wrapper">
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<div class="container vue-app-container">
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<div class="row">
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</div>
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</div>
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<div class="vue-app vue-rpd">
|
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<div id="vue-rpd"></div>
|
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<noscript>
|
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<p>Looks like your browser is not able to load this page correctly, please try enabling JavaScript on your browser or switch to another browser.</p>
|
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<p><a href="https://www.staging.researchallofus.org/research-projects-directory/?section=abc">Research Projects
|
||
Directory</a></p>
|
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</noscript>
|
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</div>
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</div>
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<div class="container-fluid " style="background-color: ;">
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<div class="container " style="background-color: ;">
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<div class="basic-content full " >
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<div class="col-12 no-gutters">
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<div class="basic-content-body text-left ">
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<div class="col-12 ">
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<div class="row">
|
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<div class="col-12">
|
||
<div class="row">
|
||
<div class="col-md-8">
|
||
<h2><em>All of Us </em>offers tiered access to data</h2>
|
||
<p id="tiereddataaccessmodel"><strong>The</strong> <strong>Registered Tier</strong> gives researchers access to data from electronic health records, survey answers, physical measurements, and wearables like Fitbit devices. Registered Tier data is adjusted to lower the chance that a researcher could identify any one participant. For example, researchers cannot see a participant’s exact location, only the state where they live.</p>
|
||
<p><strong>The Controlled Tier </strong>gives researchers access to the same data types available in the Registered Tier, as well as genomic data. This tier also includes more specific demographic data. For example, researchers can see the first three digits of participants’ ZIP codes. These data types are more personal than the ones available to researchers in the Registered Tier. Neither tier includes direct identifiers, such as participants’ names or addresses.</p>
|
||
</div>
|
||
<div class="col-md-4">
|
||
<div class="row info-card hidden-sm hidden-xs pb-0 pt-3">
|
||
<h2>Read our scientific publication summaries</h2>
|
||
<p><a href="/news-events/research-highlights">Read our Research Highlights</a> for a snapshot of how our researchers use <em>All of Us </em>data and tools to better understand health and disease.</p>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
|
||
|
||
</div>
|
||
|
||
|
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</div>
|
||
|
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</div>
|
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</div>
|
||
|
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|
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|
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</div>
|
||
|
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</div>
|
||
</div>
|
||
</div>
|
||
|
||
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|
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|
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|
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<div class="container-fluid " style="background-color: ;">
|
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<div class="container " style="background-color: ;">
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|
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<div class="basic-content full " >
|
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<div class="row " >
|
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<div class="col-12 no-gutters">
|
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<div class="basic-content-body text-left ">
|
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|
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|
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<div class="row">
|
||
<div class="col-12 col-md-8">
|
||
|
||
<h2><em>All of Us</em> has many safeguards in place<strong> </strong>to protect participant privacy</h2>
|
||
<p>Our rigorous security models, access requirements, and data use policies help ensure that data is protected and used ethically and responsibly. To access the Researcher Workbench’s Registered and Controlled Tiers, researchers must register with the program, verify their identity, take our Responsible Conduct of Research training, and agree to a code of conduct for responsible data use. They must also share what their project is and how they plan to use the data.</p>
|
||
<p>For more information about how <em>All of Us</em> protects the privacy and security of data shared by participants, visit our <a href="https://www.joinallofus.org/privacy-safeguards">Privacy Safeguards</a> page.</p>
|
||
|
||
|
||
</div>
|
||
|
||
<div class="col-sm-4 hidden-xs video-container">
|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
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|
||
|
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|
||
|
||
|
||
|
||
|
||
<div class="content-video"><div class="feed feed--video">
|
||
<script type="text/javascript" src="https://www.youtube.com/iframe_api"></script>
|
||
|
||
<!-- Video -->
|
||
<div class="feed__image-wrapper" style="padding-top: 56.25%">
|
||
<img class="feed__image" src="https://img.youtube.com/vi/bbzzMrudt8Q/mqdefault.jpg" alt="Thumbnail for Protecting Participant Privacy and Building Trust"/>
|
||
|
||
|
||
<a href="#" class="feed__play" data-toggle="modal" data-target="#videoModal_bbzzMrudt8Q" data-snippet-src="https://plugin.3playmedia.com/ajax.js?mf=9610249&p3sdk_version=1.10.7&p=35823&pt=606&target=3p-plugin-target-9610249-&vembed=0&video_id=bbzzMrudt8Q&video_target=bbzzMrudt8Q" title="Open Modal for Video: Protecting Participant Privacy and Building Trust" aria-label="Play Video: Protecting Participant Privacy and Building Trust"></a>
|
||
|
||
|
||
</div>
|
||
|
||
<!-- Modal -->
|
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<div class="modal video-modal fade" id="videoModal_bbzzMrudt8Q" tabindex="-1" role="dialog" aria-hidden="true" aria-label="Video modal">
|
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<div class="modal-dialog modal-lg" role="document">
|
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<div class="modal-content video-modal-content">
|
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<div class="modal-body">
|
||
<button type="button" class="close" data-dismiss="modal" aria-label="Close">
|
||
<span aria-hidden="true">×</span>
|
||
</button>
|
||
<div class="container-fluid">
|
||
<div class="row">
|
||
<div
|
||
class="col p-0">
|
||
<!-- 16:9 aspect ratio -->
|
||
<div class="embed-responsive embed-responsive-16by9">
|
||
<iframe sandbox="allow-scripts allow-same-origin" class='embed-responsive-item' id="bbzzMrudt8Q" width="560" height="315" src="https://www.youtube.com/embed/bbzzMrudt8Q?controls=0&enablejsapi=1&rel=0&html5=1" frameborder="0" allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture" allowfullscreen></iframe>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
<div class="row">
|
||
<div
|
||
class="col p-0">
|
||
<!-- 16:9 aspect ratio -->
|
||
<div class="embed-responsive embed-responsive-16by9">
|
||
<div id='3p-plugin-target-9610249-' class='p3sdk-target embed-responsive-item'></div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
<!-- Title -->
|
||
<div class="feed__title_wrapper">
|
||
<p class="feed__title feed__field">
|
||
<a href="#" class="title__play" data-toggle="modal" data-target="#videoModal_bbzzMrudt8Q" data-snippet-src="https://plugin.3playmedia.com/ajax.js?mf=9610249&p3sdk_version=1.10.7&p=35823&pt=606&target=3p-plugin-target-9610249-&vembed=0&video_id=bbzzMrudt8Q&video_target=bbzzMrudt8Q" title="Open Modal for Video: Protecting Participant Privacy and Building Trust" aria-label="Play Video: Protecting Participant Privacy and Building Trust">
|
||
<strong>Protecting Participant Privacy and Building Trust</strong>
|
||
<span class="feed__media-duration">(0:51)</span>
|
||
</a>
|
||
|
||
</p>
|
||
|
||
|
||
<p class="vid-desc"></p>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
</div>
|
||
|
||
</div>
|
||
|
||
</div>
|
||
</div>
|
||
|
||
|
||
|
||
</div>
|
||
|
||
</div>
|
||
</div>
|
||
</div>
|
||
|
||
|
||
|
||
|
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|
||
|
||
|
||
|
||
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||
|
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|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
||
<div class="container-fluid " style="background-color: ;">
|
||
<div class="container " style="background-color: ;">
|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
||
|
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|
||
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|
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|
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|
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|
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|
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|
||
<div class="basic-content full " >
|
||
|
||
|
||
|
||
<div class="row " >
|
||
|
||
<div class="col-12 no-gutters">
|
||
<div class="basic-content-body text-left ">
|
||
|
||
|
||
<div class="row">
|
||
<div class="col-12 ">
|
||
|
||
<hr>
|
||
<h3>Interested in joining the All of Us Research Program?</h3>
|
||
<ul>
|
||
<li>
|
||
<p><a href="https://www.joinallofus.org">Visit JoinAllofUs.org to learn more about participating in <em>All of Us</em></a>.</p>
|
||
</li>
|
||
<li><a href="/get-involved/opportunities-researchers ">Learn how researchers can access <em>All of Us</em> data and tools</a>.</li>
|
||
</ul>
|
||
|
||
|
||
</div>
|
||
|
||
|
||
</div>
|
||
|
||
</div>
|
||
</div>
|
||
|
||
|
||
|
||
</div>
|
||
|
||
</div>
|
||
</div>
|
||
</div>
|
||
|
||
|
||
|
||
|
||
<div class="related-content">
|
||
<div class="container">
|
||
<div class="row">
|
||
|
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|
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|
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|
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|
||
|
||
|
||
|
||
|
||
|
||
<div class="col-4">
|
||
|
||
<span class=" related-content-title">Related Links</span>
|
||
|
||
|
||
|
||
|
||
|
||
|
||
<ul>
|
||
<li><a href="https://www.nih.gov/sites/default/files/research-training/initiatives/pmi/pmi-working-group-report-20150917-2.pdf">Precision Medicine Initiative Working Group Final Report.</a></li>
|
||
<li><a href="https://www.nejm.org/doi/full/10.1056/NEJMsr1809937">NEJM Special Report: The <em>All of Us</em> Research Program</a></li>
|
||
<li><a href="/about/diversity-and-inclusion/all-us-tribal-engagement"><em>All of Us</em> Tribal Engagement</a></li>
|
||
</ul>
|
||
|
||
|
||
|
||
|
||
</div>
|
||
|
||
|
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|
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|
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<div class="col-4">
|
||
|
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|
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|
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|
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|
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</div>
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|
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|
||
|
||
|
||
|
||
|
||
<div class="col-4">
|
||
|
||
<a href="https://participant.joinallofus.org/ParticipantPortal/s/login/SelfRegister?c__language=en_US&c__step=step1" target="_blank" rel="noopener noreferrer">
|
||
<span class=" related-content-title">Enrollment Now Open</span>
|
||
|
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</a>
|
||
|
||
|
||
|
||
<div class="text-center mb-4">
|
||
|
||
<article>
|
||
|
||
|
||
<img src="/sites/default/files/2020-09/participation-opens-soon1x.png" width="360" height="152" alt="Participation" loading="lazy" typeof="foaf:Image" class="img-fluid" />
|
||
|
||
|
||
|
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</article>
|
||
|
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|
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</div>
|
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|
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</div>
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</div>
|
||
</div>
|
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</div>
|
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|
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|
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</div>
|
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|
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<div id="lastReviewed" class="container py-3">
|
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