1474 lines
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<h1 class="page-title">Aprendiendo con All of Us sobre la salud de los sobrevivientes jóvenes de cáncer</h1>
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<h2><strong>Puntos clave</strong></h2>
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<li>Los participantes de <em>All of Us</em> ayudan a los investigadores a entender mejor la salud a largo plazo de quienes tuvieron cáncer en la adolescencia o como adultos jóvenes. </li>
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<li>Esas personas tienen más probabilidad de tener neuropatía, fatiga crónica, pérdida de memoria y epilepsia que quienes nunca tuvieron cáncer. </li>
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<li>Estos problemas de salud pueden continuar 10 años después del diagnóstico.</li>
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<p><strong>Cerca de <a href="https://www.cancer.gov/espanol/tipos/adolescentes-adultos-jovenes">86,000</a> adolescentes y jóvenes adultos en los Estados Unidos son diagnosticados con cáncer cada año.</strong> Las personas de <a href="https://www.cancer.gov/espanol/noticias/temas-y-relatos-blog/2021/adolescentes-adultos-jovenes-cancer-documentan-su-calidad-de-vida">este grupo de edad</a> tienen desafíos únicos. Sin embargo, este grupo no es estudiado tanto como los casos de los niños o adultos que han tenido cáncer. Se necesita más investigación científica para entender los <a href="https://www.cancer.gov/espanol/noticias/temas-y-relatos-blog/2020/adolescentes-jovenes-supervivientes-cancer-problemas-salud">desafíos de salud a largo plazo que los sobrevivientes jóvenes de cáncer enfrentan a menudo</a>.</p>
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<p>En un estudio financiado por los Institutos Nacionales de la Salud (NIH, por sus siglas en inglés), los investigadores científicos compararon la información de <em>All of Us</em> de sobrevivientes jóvenes de cáncer con información de otros participantes de <em>All of Us</em> que nunca tuvieron cáncer. Los resultados mostraron <strong>que cuatro problemas de salud que afectan al cerebro y a los nervios eran más comunes entre los sobrevivientes jóvenes de cáncer,</strong> en comparación con participantes que nunca han tenido la enfermedad. Algunos sobrevivientes estaban aún recibiendo tratamientos para esos problemas neurológicos 10 años después de sus diagnósticos de cáncer.</p>
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<p>El estudio fue publicado en la revista<em> Cancer Medicine*.</em></p>
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<h2>Estudiando la salud a largo plazo</h2>
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<p><strong>Los investigadores analizaron información de cerca de 800 participantes de <em>All of Us</em> que fueron diagnosticados con cáncer entre los 15 y los 39 años de edad.</strong> También analizaron información de alrededor de 3,150 participantes que nunca tuvieron cáncer y que tenían una edad similar y otras características en común. El estudio se basó en información de los registros electrónicos de salud de los participantes, además de respuestas a una encuesta sobre su historia personal de salud.</p>
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<p>Los investigadores científicos analizaron el número de participantes que tuvieron problemas de salud que afectaron al cerebro, a los nervios, al ánimo y a la conducta. Los sobrevivientes jóvenes de cáncer tenían más probabilidad que otros participantes de tener las siguientes afecciones neurológicas:</p>
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<ul>
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<li>Pérdida de <a href="https://medlineplus.gov/spanish/memory.html">memoria</a></li>
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<li>Problemas en los nervios, como adormecimiento y dolor (<a href="https://medlineplus.gov/spanish/peripheralnervedisorders.html">neuropatía</a>)</li>
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<li>Cansancio abrumador y de largo plazo (<a href="https://medlineplus.gov/spanish/chronicfatiguesyndrome.html">fatiga crónica</a>)</li>
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<li>Convulsiones (<a href="https://medlineplus.gov/spanish/epilepsy.html">epilepsia</a>)</li>
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</ul>
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<p><strong>Algunos sobrevivientes jóvenes de cáncer estaban recibiendo tratamientos para estos problemas de salud hasta 10 años después de sus diagnósticos de cáncer.</strong> Esto sugiere que los sobrevivientes jóvenes de cáncer podrían necesitar diferentes formas de manejar estos problemas de salud que otros grupos.</p>
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<p>Los sobrevivientes jóvenes de cáncer no tenían más probabilidad que otros participantes de tener problemas de ánimo y conducta, como la <a href="https://medlineplus.gov/spanish/anxiety.html">ansiedad</a> o el <a href="https://medlineplus.gov/spanish/posttraumaticstressdisorder.html">trastorno de estrés postraumático.</a></p>
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<h2>Apoyando la investigación científica y la salud</h2>
|
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<p>Este estudio incluye más sobrevivientes jóvenes de cáncer que otros estudios pasados. También explora las preocupaciones de salud de los sobrevivientes, muchos años después de sus diagnósticos de cáncer. <strong>Gracias a los participantes de <em>All of Us</em>, tenemos una idea más completa de la salud de las personas que tuvieron cáncer en su adolescencia o cuando eran adultos jóvenes.</strong></p>
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<p>El estudio genera preguntas para las investigaciones científicas del futuro. Por ejemplo, los problemas neurológicos de los sobrevivientes, ¿comenzaron antes o después de que desarrollaron cáncer? Algunos tipos de cáncer o tratamientos, ¿están más a menudo asociados que otros a problemas neurológicos que se presentan más tarde en la vida?</p>
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<p>Los investigadores científicos podrían también investigar tratamientos que funcionarán especialmente para las personas que recibieron tratamientos para el cáncer cuando eran adolescentes o adultos jóvenes.</p>
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<p style="font-size:13px;">*Esta publicación se actualizará con cambios que están pendientes, para alinearla con las políticas de publicación de <em>All of Us</em>. <em>All of Us</em> agregará un enlace de internet a la publicación actualizada, una vez que esté disponible.</p>
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<li>Encuentre <strong><a href="/funding-and-program-partners/funding-opportunities/nih-funding-opportunities-researchers">fondos</a></strong> (en inglés) para financiar investigaciones científicas que usen datos e información de <em>All of Us</em>. </li>
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<li>Vea más <strong><a href="https://www.researchallofus.org/research-projects-directory/">proyectos de investigación científica que son posibles gracias a la información y las herramientas de <em><em><em>All of Us</em></em></em></a></strong><em> </em>(en inglés).</li>
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