892 lines
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892 lines
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<h1 class="page-title">El Programa Científico All of Us de los Institutos Nacionales de Salud reúne información sobre el entorno social para su base de datos de medicina de precisión</h1>
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November 4, 2021
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<p><span><span><span><span><span><span><span><span>Los participantes comparten información sobre sus experiencias diarias para complementar la información clínica y genética y, así, acelerar la investigación de salud y los descubrimientos médicos. </span></span></span></span></span></span></span></span></p>
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<p><a href="/news-events-and-media/announcements/national-institutes-healths-all-us-research-program-gathers-data-social-environment-precision-medicine-database">In English</a></p>
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<p>Los participantes comparten información sobre sus experiencias diarias para complementar la información clínica y genética y, así, acelerar la investigación de salud y los descubrimientos médicos.</p>
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<p>El Programa Científico <em>All of Us</em>, que forma parte de los Institutos Nacionales de Salud, publicó una nueva encuesta para recolectar información sobre varios factores sociales, incluyendo la seguridad de los vecindarios, el acceso a los alimentos, las experiencias de atención médica, la discriminación y los entornos de trabajo y de vida. Las respuestas de los participantes proporcionarán información clave a los investigadores científicos para entender mejor la relación entre estos factores del entorno social y el impacto en la salud en general, lo que se denomina "determinantes sociales de la salud" (SDOH, por sus siglas en inglés).</p>
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<p>En la actualidad, el Programa Científico <em>All of Us</em> tiene a más de 350,000 participantes y busca inscribir a un millón o más de personas que reflejen la gran diversidad de los Estados Unidos. Los participantes comparten información sobre su salud y su genética, lo cual les da acceso a los investigadores científicos autorizados a una cantidad de información sin precedentes para impulsar la medicina de precisión.</p>
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<p>"La salud es más que nuestro ADN o lo que sucede en el consultorio del médico. Está influenciada por varios factores. Nuestras experiencias diarias son importantes para nuestra salud física y mental", dice Josh Denny, MD, MS, director ejecutivo del Programa Científico <em>All of Us</em>. "Estamos comprometidos a crear una visión más integral de la salud de nuestros participantes para proporcionarles a los investigadores científicos la información que necesitan para identificar las causas fundamentales e interrelacionadas de las enfermedades y las desigualdades que influyen en la salud".</p>
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<p>Se estima que la encuesta tomará alrededor de diez minutos en completar y estará disponible en español e inglés.</p>
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<p>Las investigaciones científicas anteriores indican que los determinantes sociales de la salud desempeñan un papel en alrededor del 30 al 55 % de los resultados de salud. Aprender más sobre los entornos y experiencias de vida puede esclarecer por qué algunas personas se mantienen saludables y otras tienen un riesgo más elevado de contraer enfermedades. Por ejemplo, las relaciones sociales y un sentido de pertenencia son necesidades humanas fundamentales. Sin esas relaciones básicas, puede surgir una sensación de soledad y detonar problemas de salud más graves, como depresión, ansiedad y un riesgo elevado de demencia y enfermedades cardíacas, según los Centros para el Control y la Prevención de Enfermedades (CDC, por sus siglas en inglés).</p>
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<p>"Estamos pidiendo a nuestros participantes que compartan estos detalles personales sobre sus vidas para que los investigadores científicos tengan una mejor comprensión de los factores que contribuyen a la salud y el bienestar", dice Cheryl Clark, MD ScD, profesora adjunta de Medicina en la Escuela de Medicina de Harvard y colíder del Grupo de trabajo sobre determinantes sociales de la salud del Programa Científico <em>All of Us</em>.</p>
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<p>El Programa Científico <em>All of Us</em> ha demostrado el valor de recolectar este tipo de información a partir de los resultados de su encuesta Experiencias del participante acerca del coronavirus (COVID-19), o COPE, por sus siglas en inglés. Alrededor de cien mil participantes completaron esta encuesta entre mayo de 2020 y febrero de 2021, la que incluía información sobre los síntomas del COVID-19, los niveles de estrés, el distanciamiento social, la discriminación y el impacto económico.</p>
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<p>La encuesta COPE ayudó a esclarecer el impacto de la pandemia. Por ejemplo, 20 % de los encuestados indicó que trabajaron más horas durante la pandemia y otro 20 % respondió que no recibieron ningún pago durante la pandemia. Otro 10 % indicó que perdieron su trabajo. Estas respuestas, junto con otra información de los registros electrónicos de salud, Fitbit y otros, presentan una imagen más completa de las experiencias de los participantes durante la pandemia.</p>
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<p>Se espera que las respuestas de los participantes a la nueva encuesta SDOH estén disponibles para los investigadores científicos en la plataforma de análisis de información llamada Taller Digital de Investigación Científica para mediados del 2022.</p>
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<p>Para más información sobre el Programa Científico <em>All of Us</em>, visite <a href="https://allofus.nih.gov">joinallofus.org/es</a> o escríbanos a <a href="mailto:allofuspress@nih.gov">allofuspress@nih.gov</a>.</p>
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<p><em>All of Us,</em> el logo de <em>All of Us</em> y “The Future of Health Begins with You" (El futuro de la salud comienza con usted) son marcas registradas en inglés del Departamento de Salud y Servicios Humanos de los Estados Unidos.</p>
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