876 lines
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<h1 class="page-title">All of Us Research Program to Host Information Sessions with Tribal Communities </h1>
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June 1, 2023
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<p>Summer Series to Deepen the Dialogue on the Respectful Inclusion of American Indian and Alaska Native (AI/AN) People in Research</p>
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<p>As part of ongoing efforts to engage and solicit input from Tribal communities, the National Institutes of Health’s<em> All of Us</em> Research Program will host a series of four virtual information sessions and discussions this summer. The series will be followed by a Tribal consultation on September 28, 2023, to receive feedback from Tribal leaders to help inform the program’s efforts and to support responsible and community-led participation of American Indian and Alaska Native (AI/AN) people in <em>All of Us</em>.</p>
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<p>The information sessions and consultation build on the program’s <a href="/about/diversity-and-inclusion/tribal-engagement">continuing dialogue with Tribal communities</a>, which includes the prior listening sessions and Tribal consultations that began in 2019. <em>All of Us</em> is a landmark research initiative focused on helping researchers advance health equity and identify ways to improve health through individualized prevention, treatment, and care. The program has a special focus on engaging communities that have been left out of past research, such as American Indians and Alaska Natives.</p>
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<p>“The input and perspectives shared by Tribal leaders over the years has been vital to informing how we can support research that recognizes the needs of AI/AN communities, and the upcoming sessions will deepen our understanding of community priorities, especially when it comes to sensitive issues like data access, use, and protection,” said Michael Hahn, <em>All of Us’ </em>Tribal engagement team lead. “Inclusion in research is essential to closing the information gaps that fuel persistent health disparities in communities all around the country.”</p>
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<p>Interested organizations and individuals can sign up to attend <em>All of Us</em>’<em> </em>information sessions through the links below:</p>
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<li>Session 1: <em>All of Us </em>Research Program Overview and Tribal Engagement, Tuesday, June 6, 2023, 1:00–3:00 pm ET</li>
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<li>Session 2: How Researchers Access and Use <em>All of Us </em>Data, Tuesday, June 13, 2023, 1:00–3:00 pm ET</li>
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<li>Session 3: Describing Self-Identified AI/AN Participants in <em>All of Us </em>Data, Tuesday, June 20, 2023, 1:00–3:00 pm ET</li>
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<li>Session 4: Data and Partnerships in <em>All of Us, </em>Tuesday, June 27, 2023, 1:00–3:00 pm ET</li>
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<p>The formal Tribal consultation that <em>All of Us </em>will host in September will include an update on the program’s Tribal engagement activities and help guide the future integration of information from self-identified AI/AN participants into the program’s secure cloud-based data platform, the <a href="https://researchallofus.org/"><em>All of Us </em>Researcher Workbench</a>.</p>
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<p>Tribal leaders and urban Indian organization leaders <a href="/about/diversity-and-inclusion/tribal-engagement/tribal-leaders-letter-050123">have been invited to participate</a> in these events. Questions and written testimony can also be submitted in advance to <a href="mailto:AOUTribal@nih.gov">AOUTribal@nih.gov</a>.</p>
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<p>“We are grateful to Tribal leaders and participants who have been so generous and forthcoming with their input to date,” said Karriem Watson, D.H.Sc., M.S., M.P.H., chief engagement officer at <em>All of Us</em>. “We will build on our engagement efforts in the months and years ahead, to ensure that <em>All of Us </em>lives up to its promise of meaningful inclusion and that the perspectives of Tribal communities continue to shape program plans.”</p>
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<p>To learn more about <em>All of Us</em>’ Tribal engagement activities, visit <a href="/about/diversity-and-inclusion/tribal-engagement">http://allofus.nih.gov/tribalengagement</a>.</p>
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<p><em>Sign language interpreting services are available upon request. Individuals who need interpreting services and/or other reasonable accommodations to participate in this event should contact AoUTribal@nih.gov. Requests should be made by May 30, 2023, to be addressed in advance of the event. For Telecommunications Relay Service (TRS) call 711.</em></p>
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