1759 lines
51 KiB
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1759 lines
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<a href="/about/who-we-are">Who We Are</a>
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<li class="breadcrumb-item active is-active" aria-current="page"><em class="aou-text px-1">All of Us</em> Institutional Review Board (IRB) </li>
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<h1 class="page-title">All of Us Institutional Review Board (IRB) </h1>
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<p>As a single IRB, the <em>All of Us</em> IRB is charged with reviewing the protocol, informed consent, and other participant-facing materials for the <em>All of Us </em>Research Program. The IRB follows the regulations and guidance of the <a href="https://www.hhs.gov/ohrp/">Office for Human Research Protections</a> for all studies, ensuring that the rights and welfare of research participants are overseen and protected uniformly. </p>
|
||
<h2>IRB 101</h2>
|
||
<h2>What is an IRB?</h2>
|
||
<p>An IRB, or Institutional Review Board, is responsible for reviewing and approving research to ensure that the rights and welfare of human participants are protected.</p>
|
||
<h2>What is a participant?</h2>
|
||
<p>Federal regulations define a participant, or human subject, as “a living individual about whom an investigator (whether professional or student) conducting research obtains (1) data through intervention or interaction with the individual, or (2) identifiable private information.”</p>
|
||
<h2>How does the <em>All of Us</em> IRB fit in with the <em>All of Us</em> Research Program?</h2>
|
||
<p>Before the program could begin to recruit and enroll participants, the <em>All</em> <em>of Us</em> IRB had to approve the <em>All of Us</em> protocol and materials.</p>
|
||
<h2><em>All of Us</em> IRB Members</h2>
|
||
<p>The <em>All of Us </em>IRB is composed of representatives with diverse backgrounds, expertise, and perspectives.</p>
|
||
<h2>Contact the IRB</h2>
|
||
<p>Toll-free in the U.S.: (844) 200-8990<br><br>
|
||
Email us: <a href="mailto:AoUIRBContact@emmes.com">AoUIRBContact@emmes.com</a></p>
|
||
|
||
|
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</div>
|
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</div>
|
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||
<div class="container">
|
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<h2 class="member-list-title mb-5">
|
||
Members of the Institutional Review Board
|
||
</h2>
|
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<div class="row member-list-row">
|
||
<div class="member-list-item col-xl-3 col-lg-4 col-md-6 col-xs-12">
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<a href="/about/who-we-are/chester-antone">
|
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<figure class="img-thumbnail member-list-image">
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<article>
|
||
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||
|
||
<img src="/sites/default/files/bio_chester_antone.jpg" width="1200" height="1200" alt="Portrait of Chester Antone" loading="lazy" typeof="foaf:Image" class="img-fluid" />
|
||
|
||
|
||
|
||
</article>
|
||
|
||
|
||
</figure>
|
||
</a>
|
||
|
||
<h3 class="member-title px-2"><a href="/about/who-we-are/chester-antone">Chester Antone</a></h3>
|
||
<div class="organization-group px-2 mb-1">
|
||
|
||
<div>
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>Tohono O'odham Nation</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>O’odham Elder</p>
|
||
</span>
|
||
|
||
|
||
</div>
|
||
|
||
</div>
|
||
|
||
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</div>
|
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<div class="member-list-item col-xl-3 col-lg-4 col-md-6 col-xs-12">
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<a href="/about/who-we-are/wilma-r-batiste-crc-ncpt">
|
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<figure class="img-thumbnail member-list-image">
|
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<article>
|
||
|
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|
||
<img src="/sites/default/files/wilma_batiste.jpg" width="1200" height="1200" alt="Portrait of Wilma Batiste" loading="lazy" typeof="foaf:Image" class="img-fluid" />
|
||
|
||
|
||
|
||
</article>
|
||
|
||
|
||
</figure>
|
||
</a>
|
||
|
||
<h3 class="member-title px-2"><a href="/about/who-we-are/wilma-r-batiste-crc-ncpt">Wilma R. Batiste, CRC, NCPT</a></h3>
|
||
<div class="organization-group px-2 mb-1">
|
||
|
||
<div>
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>University of California, San Francisco</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Chair, Faith Communities Committee, Helen Diller Family Comprehensive Cancer Center</p>
|
||
</span>
|
||
|
||
|
||
</div>
|
||
|
||
</div>
|
||
|
||
|
||
</div>
|
||
<div class="member-list-item col-xl-3 col-lg-4 col-md-6 col-xs-12">
|
||
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||
<a href="/about/who-we-are/ysabel-duron">
|
||
<figure class="img-thumbnail member-list-image">
|
||
|
||
<article>
|
||
|
||
|
||
<img src="/sites/default/files/17-1300_pmi_bio_images_ysabelduron.jpg" width="1200" height="1200" alt="Portrait of Ysabel Duron." loading="lazy" typeof="foaf:Image" class="img-fluid" />
|
||
|
||
|
||
|
||
</article>
|
||
|
||
|
||
</figure>
|
||
</a>
|
||
|
||
<h3 class="member-title px-2"><a href="/about/who-we-are/ysabel-duron">Ysabel Duron</a></h3>
|
||
<div class="organization-group px-2 mb-1">
|
||
|
||
<div>
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>Latino Cancer Institute</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Founder/Director</p>
|
||
</span>
|
||
|
||
|
||
</div>
|
||
|
||
</div>
|
||
|
||
|
||
</div>
|
||
<div class="member-list-item col-xl-3 col-lg-4 col-md-6 col-xs-12">
|
||
|
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<a href="/about/who-we-are/kadija-ferryman-phd">
|
||
<figure class="img-thumbnail member-list-image">
|
||
|
||
<article>
|
||
|
||
|
||
<img src="/sites/default/files/kadija_ferryman_0.jpg" width="1200" height="1200" alt="Portrait of Kadija Ferryman" loading="lazy" typeof="foaf:Image" class="img-fluid" />
|
||
|
||
|
||
|
||
</article>
|
||
|
||
|
||
</figure>
|
||
</a>
|
||
|
||
<h3 class="member-title px-2"><a href="/about/who-we-are/kadija-ferryman-phd">Kadija Ferryman, Ph.D.</a></h3>
|
||
<div class="organization-group px-2 mb-1">
|
||
|
||
<div>
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>Johns Hopkins Berman Institute of Bioethics </p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Core Faculty</p>
|
||
</span>
|
||
|
||
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>Johns Hopkins University</p>
|
||
<p>Department of Health Policy and Management</p>
|
||
<p>Bloomberg School of Public Health</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Assistant Professor</p>
|
||
</span>
|
||
|
||
|
||
</div>
|
||
|
||
</div>
|
||
|
||
|
||
</div>
|
||
<div class="member-list-item col-xl-3 col-lg-4 col-md-6 col-xs-12">
|
||
|
||
<a href="/about/who-we-are/aaron-goldenberg-phd-mph">
|
||
<figure class="img-thumbnail member-list-image">
|
||
|
||
<article>
|
||
|
||
|
||
<img src="/sites/default/files/aaron_goldenberg_0.jpg" width="1200" height="1200" alt="Portrait of Aaron Goldenberg" loading="lazy" typeof="foaf:Image" class="img-fluid" />
|
||
|
||
|
||
|
||
</article>
|
||
|
||
|
||
</figure>
|
||
</a>
|
||
|
||
<h3 class="member-title px-2"><a href="/about/who-we-are/aaron-goldenberg-phd-mph">Aaron Goldenberg, Ph.D., M.P.H.</a></h3>
|
||
<div class="organization-group px-2 mb-1">
|
||
|
||
<div>
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>Case Western Reserve University School of Medicine</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Associate Professor and Research Director, Department of Bioethics</p>
|
||
</span>
|
||
|
||
|
||
</div>
|
||
|
||
</div>
|
||
|
||
|
||
</div>
|
||
<div class="member-list-item col-xl-3 col-lg-4 col-md-6 col-xs-12">
|
||
|
||
<a href="/about/who-we-are/fuki-marie-hisama-md">
|
||
<figure class="img-thumbnail member-list-image">
|
||
|
||
<article>
|
||
|
||
|
||
<img src="/sites/default/files/fuki_marie_hisama.jpg" width="1200" height="1200" alt="Portrait of Fuki Marie Hisama" loading="lazy" typeof="foaf:Image" class="img-fluid" />
|
||
|
||
|
||
|
||
</article>
|
||
|
||
|
||
</figure>
|
||
</a>
|
||
|
||
<h3 class="member-title px-2"><a href="/about/who-we-are/fuki-marie-hisama-md">Fuki Marie Hisama, M.D.</a></h3>
|
||
<div class="organization-group px-2 mb-1">
|
||
|
||
<div>
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>University of Washington Department of Medicine</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Medical Director, Genetic Medicine Clinic</p>
|
||
</span>
|
||
|
||
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>University of Washington Department of Medicine</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Professor, Medical Genetics</p>
|
||
</span>
|
||
|
||
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>University of Washington Department of Medicine</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Adjunct Professor, Neurology</p>
|
||
</span>
|
||
|
||
|
||
</div>
|
||
|
||
</div>
|
||
|
||
|
||
</div>
|
||
<div class="member-list-item col-xl-3 col-lg-4 col-md-6 col-xs-12">
|
||
|
||
<a href="/about/who-we-are/ingrid-holm-md-mph">
|
||
<figure class="img-thumbnail member-list-image">
|
||
|
||
<article>
|
||
|
||
|
||
<img src="/sites/default/files/ingrid_holms.jpg" width="1200" height="1200" alt="Portrait of Ingrid Holms" loading="lazy" typeof="foaf:Image" class="img-fluid" />
|
||
|
||
|
||
|
||
</article>
|
||
|
||
|
||
</figure>
|
||
</a>
|
||
|
||
<h3 class="member-title px-2"><a href="/about/who-we-are/ingrid-holm-md-mph">Ingrid A. Holm, M.D., M.P.H.</a></h3>
|
||
<div class="organization-group px-2 mb-1">
|
||
|
||
<div>
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>Harvard Medical School</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Professor of Pediatrics</p>
|
||
</span>
|
||
|
||
|
||
</div>
|
||
|
||
</div>
|
||
|
||
|
||
</div>
|
||
<div class="member-list-item col-xl-3 col-lg-4 col-md-6 col-xs-12">
|
||
|
||
<a href="/about/who-we-are/nancy-e-kass-scd">
|
||
<figure class="img-thumbnail member-list-image">
|
||
|
||
<article>
|
||
|
||
|
||
<img src="/sites/default/files/17-1300_pmi_bio_images_nancykass.jpg" width="1200" height="1200" alt="Portrait of Nancy Cass." loading="lazy" typeof="foaf:Image" class="img-fluid" />
|
||
|
||
|
||
|
||
</article>
|
||
|
||
|
||
</figure>
|
||
</a>
|
||
|
||
<h3 class="member-title px-2"><a href="/about/who-we-are/nancy-e-kass-scd">Nancy E. Kass, Sc.D.</a></h3>
|
||
<div class="organization-group px-2 mb-1">
|
||
|
||
<div>
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>All of Us Research Program</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Chair, Institutional Review Board</p>
|
||
</span>
|
||
|
||
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>Johns Hopkins University</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Vice Provost, Graduate and Professional Education</p>
|
||
</span>
|
||
|
||
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>Johns Hopkins University</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Phoebe R. Berman Professor of Bioethics and Public Health, Berman Institute of Bioethics and Bloomberg School of Public Health</p>
|
||
</span>
|
||
|
||
|
||
</div>
|
||
|
||
</div>
|
||
|
||
|
||
</div>
|
||
<div class="member-list-item col-xl-3 col-lg-4 col-md-6 col-xs-12">
|
||
|
||
<a href="/about/who-we-are/david-magnus-phd">
|
||
<figure class="img-thumbnail member-list-image">
|
||
|
||
<article>
|
||
|
||
|
||
<img src="/sites/default/files/david_magnus_ep_-_version_3_0.jpg" width="1200" height="1200" alt="Portrait of David Magnus." loading="lazy" typeof="foaf:Image" class="img-fluid" />
|
||
|
||
|
||
|
||
</article>
|
||
|
||
|
||
</figure>
|
||
</a>
|
||
|
||
<h3 class="member-title px-2"><a href="/about/who-we-are/david-magnus-phd">David Magnus, Ph.D.</a></h3>
|
||
<div class="organization-group px-2 mb-1">
|
||
|
||
<div>
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>All of Us Research Program</p>
|
||
</span>
|
||
|
||
|
||
<span class="d-block org-info-list-item field-position-title"><p>Vice-Chair, Institutional Review Board</p>
|
||
</span>
|
||
|
||
|
||
|
||
<span class="d-block org-info-list-item field-organization"><p>Stanford University</p>
|
||
</span>
|
||
|
||
|
||
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