1223 lines
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<h1 class="page-title">The Reflection and Advancement Working Group</h1>
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<h2>Purpose</h2>
|
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<p><span><span><span><span><span><span>The</span></span></span></span></span></span><span><span><span><span><em><span> All of Us</span></em></span></span></span></span><span><span><span><span><span><span> Research Program Reflection and Advancement Working Group, a working group of the </span></span></span></span></span></span><span><span><span><span><em><span>All of Us </span></em></span></span></span></span><span><span><span><span><span><span>Research Program Advisory Panel, was charged with assessing the program’s evolution, evaluating achievements, challenges, and opportunities for improvement and advancement since the national launch in 2018. The Working Group provided an assessment and identified opportunities in order to shape the program's strategic plan towards maximizing its scientific impact and trajectory leading up to 2031.</span></span></span></span></span></span></p>
|
||
<h2><span><span><span><span><span><span>Deliverable</span></span></span></span></span></span></h2>
|
||
<p><span><span><span><span><span><span>The Working Group convened a series of working sessions to discuss and write a report to lay the groundwork for shaping the next iteration and extension of the </span></span></span></span></span></span><span><span><span><span><em><span>All of Us</span></em></span></span></span></span><span><span><span><span><span><span> strategic plan, with a forward-looking vision aimed at maximizing the program's impact leading up to 2031. Key questions deliberated in this report included:</span></span></span></span></span></span></p>
|
||
<p><span><span><span><strong><span><span>Charting Progress: Key Metrics and Program Differentiators</span></span></strong></span></span></span></p>
|
||
<ol>
|
||
<li><span><span><span><span><span><span>Given the vision outlined in the 2015 Advisory Committee to the NIH Director Working Group Report, which key indicators or metrics best reflect the program’s progress and success thus far?</span></span></span></span></span></span></li>
|
||
<li><span><span><span><span><span><span>What are the most important differentiators of the program? What is, or should be, </span></span></span></span></span></span><span><span><span><span><em><span>All of Us</span></em></span></span></span></span><span><span><span><span><span><span> uniquely positioned to achieve?</span></span></span></span></span></span></li>
|
||
</ol>
|
||
<p><span><span><span><strong><span><span>Cultivating Established Trust: Future Growth Opportunities for </span></span></strong></span></span></span><span><span><span><strong><em><span>All of Us</span></em></strong></span></span></span></p>
|
||
<ol start="3">
|
||
<li><span><span><span><span><span><span>Where are there opportunities for growth or areas for improvement within the program?</span></span></span></span></span></span></li>
|
||
<li><span><span><span><span><span><span>How can the program amplify the trust established among diverse participants, expanding their engagement and leveraging their involvement and voices?</span></span></span></span></span></span></li>
|
||
</ol>
|
||
<p><span><span><span><strong><span><span>Ensuring Health Equity: The Current and Future Impact of </span></span></strong></span></span></span><span><span><span><strong><em><span>All of Us</span></em></strong></span></span></span><span><span><span><strong><span><span> as a National Resource</span></span></strong></span></span></span></p>
|
||
<ol start="5">
|
||
<li><span><span><span><span><span><span>What is the impact of the </span></span></span></span></span></span><span><span><span><span><em><span>All of Us</span></em></span></span></span></span><span><span><span><span><span><span> Research Program and what are the best opportunities for it to change the equitable practice of medicine now and in the future?</span></span></span></span></span></span></li>
|
||
<li><span><span><span><span><span><span>As the program exceeds 800K participants, and 10K researchers, how should the program focus its future investments to sustain and grow as a vital national research resource?</span></span></span></span></span></span></li>
|
||
</ol>
|
||
<p><span><span><span><strong><span><span>Envisioning the Future: The Sustainability and Longitudinality of </span></span></strong></span></span></span><span><span><span><strong><em><span>All of Us</span></em></strong></span></span></span><span><span><span><strong><span><span> </span></span></strong></span></span></span></p>
|
||
<ol start="7">
|
||
<li><span><span><span><span><span><span>What prospective actions can </span></span></span></span></span></span><span><span><span><span><em><span>All of Us</span></em></span></span></span></span><span><span><span><span><span><span> take to minimize long-term infrastructure costs to taxpayers while improving overall efficiency and effectiveness?</span></span></span></span></span></span></li>
|
||
<li><span><span><span><span><span><span>How can </span></span></span></span></span></span><span><span><span><span><em><span>All of Us </span></em></span></span></span></span><span><span><span><span><span><span>strategically contribute to future cost savings for researchers within the scientific ecosystem, leveraging initiatives like the passport and cloud model?</span></span></span></span></span></span></li>
|
||
</ol>
|
||
<p><span><span><span><span><span><span>A summary of key findings from the report was presented at the September 2024 Council of Councils meeting.</span></span></span></span></span></span></p>
|
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<img src="/sites/default/files/24-0435%20AoU%20Reflection%20%26%20Advancement%20Working%20Group%20Report_dev5_508_thumbnail-1_0.png" width="900" height="900" alt="AoU Reflection & Advancement Working Group Report September 17, 2024" loading="lazy" typeof="foaf:Image" class="img-fluid" />
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<a href="/sites/default/files/AoU-Pioneering_Precision.pdf" class="title_link">
|
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|
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<p class="p card-title gtm-card">
|
||
The Reflection and Advancement Working Group Report
|
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|
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</p>
|
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</a>
|
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<p>PDF, 12 MB </p>
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<h2><span><span><span><span><span><span>Roster </span></span></span></span></span></span></h2>
|
||
<h3><span><span><span><span><span><span>Chairs </span></span></span></span></span></span></h3>
|
||
<p><strong><span><span><span><span><span><span>Russ Altman, M.D., Ph.D., Working Group Chair</span></span></span></span></span></span></strong><br><br>
|
||
<span><span><span><span><span><span>Stanford University</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Kenneth Fong Professor of Bioengineering, Genetics, Medicine, Biomedical Data Science and (by courtesy) Computer Science</span></span></span></span></span></span></p>
|
||
<p><strong><span><span><span><span><span><span>Marylyn DeRiggi Ritchie, Ph.D., M.S., Working Group Vice Chair</span></span></span></span></span></span></strong><br><br>
|
||
<span><span><span><span><span><span>Edward Rose, M.D. and Elizabeth Kirk Rose, M.D. Professor of Genetics<br><br>
|
||
Vice President for Research Informatics Director of the Institute for Biomedical Informatics<br><br>
|
||
Director for the Division of Bioinformatics, Department of Biostatistics<br><br>
|
||
Vice Dean of Artificial Intelligence and Computing</span></span></span></span></span></span></p>
|
||
<p><strong><span><span><span><span><span><span>Rhonda Robinson Beale, M.D., Working Group Vice Chair</span></span></span></span></span></span></strong><br><br>
|
||
UnitedHealth Group<br><br>
|
||
<span><span><span><span><span><span>Senior Vice President, Mental Health Services</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Deputy Chief Medical Officer, Mental Health Service</span></span></span></span></span></span></p>
|
||
<h3><strong><span><span><span><span><span><span>Members</span></span></span></span></span></span></strong></h3>
|
||
<p><span><span><span><span><span><span><strong>Aaron Abend, M.B.A.</strong></span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Autoimmune Registry, Inc.</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Executive Director</span></span></span></span></span></span></p>
|
||
<p><span><span><span><span><span><span><strong>Naomi Allen, D.Phil., M.Sc., B.Sc.</strong></span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>UK Biobank</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Chief Scientist</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>University of Oxford</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Professor of Epidemiology, Nuffield Department of Population Health</span></span></span></span></span></span></p>
|
||
<p><span><span><span><span><span><span><strong>Wendy Chung, M.D., Ph.D.</strong></span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Boston Children’s Hospital</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Chief of the Department of Pediatrics</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Harvard Medical School</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Professor of Pediatrics</span></span></span></span></span></span></p>
|
||
<p><span><span><span><span><span><span><strong>Gary Miller, Ph.D., M.S.</strong></span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Columbia University Mailman School of Public Health</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Vice Dean, Research Strategy and Innovation</span></span></span></span></span></span></p>
|
||
<p><span><span><span><span><span><span><strong>Christopher O’Donnell, M.D., M.P.H., FAHA, FACC</strong> </span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Cardiovascular & Metabolism at Novartis Institutes for Biomedical Research</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Global Head of Translational Medicine</span></span></span></span></span></span></p>
|
||
<p><span><span><span><span><span><span><strong>Elizabeth O. Ofili, M.D., M.P.H., F.A.C.C.</strong></span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Morehouse School of Medicine</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Professor of Medicine</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Morehouse Healthcare</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Practicing Cardiologist</span></span></span></span></span></span></p>
|
||
<p><span><span><span><span><span><span><strong>Evelyn Ortiz</strong><br><br>
|
||
N</span></span></span></span></span></span><span><span><span><span><span><span>ew York City Housing Authority, Retired </span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Health Equity Advocate</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Participant Ambassador, <em>All of Us </em>Research Program</span></span></span></span></span></span></p>
|
||
<p><span><span><span><span><span><span><strong>Jesus Ramirez-Valles, Ph.D., M.P.H.</strong></span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>University of California San Francisco</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Chief of the University of California San Francisco Division of Prevention Science</span></span></span></span></span></span></p>
|
||
<p><span><span><span><span><span><span><strong>Scout, Ph.D., M.A.</strong> </span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>National LGBT Cancer Network</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Executive Director</span></span></span></span></span></span></p>
|
||
<p><span><span><span><span><span><span><strong>Prashant Shah, M.S.</strong> </span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Intel Corporation</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Director of Engineering of Health and Life Sciences</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Artificial Intelligence Products Group</span></span></span></span></span></span></p>
|
||
<p><span><span><span><span><span><span><strong>Hannah Valentine, M.D., M.R.C.P.</strong></span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Stanford University</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>Professor of Medicine</span></span></span></span></span></span><br><br>
|
||
<span><span><span><span><span><span>National Institutes of Health </span></span></span></span></span></span><br><br>
|
||
Former Chief Officer for Scientific Workforce Diversity</p>
|
||
<p><strong>Roberto Vargas, M.D., M.P.H.</strong><br><br>
|
||
Charles R. Drew University of Medicine and Science<br><br>
|
||
Assistant Dean, Health Policy and Inter-Professional Education, College of Medicine<br><br>
|
||
Charles R. Drew University of Medicine and Science<br><br>
|
||
Director, Health Policy Pillar of the Urban Health Institute</p>
|
||
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<span><span><span><span><span><span>Johns Hopkins Bloomberg School of Public Health and School of Medicine</span></span></span></span></span></span><br><br>
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