{"id":12144,"date":"2023-09-20T10:35:46","date_gmt":"2023-09-20T14:35:46","guid":{"rendered":"https:\/\/ncbiinsights.ncbi.nlm.nih.gov\/?p=12144"},"modified":"2023-09-20T10:35:46","modified_gmt":"2023-09-20T14:35:46","slug":"clinvar-partners-with-clingen","status":"publish","type":"post","link":"https:\/\/ncbiinsights.ncbi.nlm.nih.gov\/2023\/09\/20\/clinvar-partners-with-clingen\/","title":{"rendered":"ClinVar Partners with ClinGen to Review & Curate Submitted Records"},"content":{"rendered":"
Do you currently use or submit clinical variation data? NCBI now has a new mechanism to improve <\/span>ClinVar<\/span><\/a> data quality. Since ClinVar’s founding over 10 years ago, the amount of information in this free resource has expanded dramatically with submissions from research and clinical laboratories all over the world. Because of the large volume of data and the importance of data quality, we are working with <\/span>ClinGen<\/span><\/a> biocurators to address problematic records for variants that do not require the efforts of an expert panel.<\/span>\u00a0<\/span><\/p>\n ClinVar and ClinGen have established a new process for ClinGen biocurators to review submitted records in ClinVar. A problematic record will be curated by ClinGen as a candidate to be flagged in ClinVar. We will notify relevant submitters giving them an opportunity to review and update their data. If the submitter does not provide an update, the problematic record will be flagged in ClinVar, so that it does not contribute to the overall classification. The record, however, will remain accessible in the database (Figure 1). This will reduce the number of variants with a conflict in the classification and improve the accuracy of the ClinVar dataset.\u00a0<\/span>\u00a0<\/span><\/p>\n Common reasons for a record to be flagged include:<\/span><\/b>\u00a0<\/span><\/p>\n Some problematic records can be identified automatically without the need for manual curation by the ClinGen biocurators. For example, some records are submitted as novel when they were intended to be updates to existing records. For these cases, we are developing an automated process to alert submitters to the duplicate records, request an update, and flag the record if it\u2019s not updated.\u00a0<\/span>\u00a0<\/span><\/p>\n Learn how to submit your data to ClinVar! For more information about\u202fClinVar\u202fand for step-by-step instructions on how to use it, check out our Help Documentation<\/a>.\u202f\u202f<\/span>\u00a0<\/span><\/p>\n Follow us on social\u202f<\/span>@NCBI<\/span><\/a>\u202f<\/span>and<\/span>\u202f<\/span>join our mailing list<\/span><\/a>\u202f<\/span>to<\/span> keep up to date with\u202fClinVar\u202fand other NCBI news.\u202f\u202f<\/span>\u00a0<\/span><\/p>\n If you have questions or would like to provide feedback, please\u00a0<\/span>write to our help desk<\/span><\/a>.\u00a0\u00a0<\/span>\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":" Do you currently use or submit clinical variation data? NCBI now has a new mechanism to improve ClinVar data quality. Since ClinVar’s founding over 10 years ago, the amount of information in this free resource has expanded dramatically with submissions from research and clinical laboratories all over the world. Because of the large volume of … Continue reading ClinVar Partners with ClinGen to Review & Curate Submitted Records<\/span> What\u2019s new?<\/h5>\n
Figure 1: Example of a problematic record that would be flagged in ClinVar. (Note: This is test data.) <\/i>\u00a0<\/span><\/p>\n
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