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Explore the latest stories and publications from NCATS and our partners, see upcoming events, or explore the variety of resources we provide to better understand translational science and our work.

News

Read the latest news from NCATS and its collaborators whose research is supported through the Center’s programs, or follow coverage of NCATS' translational research activities through national and local media.

How Covid-19 Is Changing Rare Diseases Research

March 9, 2021 - Media Coverage

  • COVID-19

Twenty years after researchers published their first discoveries associated with human genome sequencing, policymakers are fighting to overcome obstacles that hobble the potential of genetic medici

Economic Burden of Rare Diseases in the U.S. Approached $1 Trillion in 2019, Surpassing Cost Estimates for Many Chronic Diseases

February 25, 2021 - Media Coverage

  • Genetic and Rare Diseases (GARD) Information Center

Rare Diseases – a Research Priority for Everyone

February 25, 2021 - Media Coverage

  • Genetic and Rare Diseases (GARD) Information Center

7,000 Challenges: The Basis and Burden of Rare Diseases

February 24, 2021 - Media Coverage

  • Rare Diseases Clinical Research Network (RDCRN)

Rare Disease Congressional Caucus to Host Virtual Briefing: Economic Burden of Rare Diseases in America on Feb. 25, 2021

February 17, 2021 - Media Coverage

  • Genetic and Rare Diseases (GARD) Information Center

Rare Diseases Are Not Rare: Gallery of Creative Work Raises Awareness of Rare Diseases

August 25, 2020 - NCATS News

  • Genetic and Rare Diseases (GARD) Information Center

Participants nationwide showcased their creativity for the second Rare Diseases Are Not Rare! 2020 Challenge to raise awareness about rare diseases.

Last updated on February 19, 2025