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Evaluation of ARRA Comparative Effectiveness Research Dissemination Contract Efforts

Appendix F: Frequency Tables of Consumer Responses (continued)

Part E. Knowledge/Understanding—Knowledge/Understanding of PCOR

Q20. You indicated that you heard through your health care provider about research that helps you compare and evaluate treatment options. Did your health care provider start the discussion about how useful comparing treatments can be?

  Freq. Unweighted Percentage Weighted Percentage
Yes 21 52.50 50.92
No 17 42.50 47.25
Refused 0 0 0
Don't Know 2 5.00 1.83
Total 40 100.00 100.00



Q21. Did you start the discussion on comparing treatment options?

  Freq. Unweighted Percentage Weighted Percentage
Yes 8 42.11 25.93
No 9 47.37 66.67
Refused 0 0.00 0.0
Don't Know 2 10.53 7.40
Total 19 100.00 100.00



Q22. You indicated that you heard through (a source other than Healthcare Provider) about research that helps you compare and evaluate treatment options. Do you understand how it can be useful?

  Freq. Unweighted Percentage Weighted Percentage
Yes 124 92.54 97.43
No 8 5.97 1.72
Refused 0 0.00 0.00
Don't Know 2 1.49 0.85
Total 134 100.00 100.00



Q23. Do you feel you could describe this idea of evaluating treatment options to a family member or friend?

  Freq. Unweighted Percentage Weighted Percentage
Yes 354 61.04 67.63
No 189 31.61 28.45
Refused 3 0.50 0.25
Don't Know 41 6.86 3.68
Total 598 100.00 100.00



Part F. Attitudes/Beliefs—Perceived Benefits of PCOR



Q24. I am going to read some statements. For each statement, tell me whether you strongly agree, agree, neither agree nor disagree, disagree, or strongly disagree.



Q24a. Evaluating treatment options provides information to help you make good medical healthcare choices.

  Freq. Unweighted Percentage Weighted Percentage
Strongly agree 213 35.62 44.49
Agree 323 54.01 43.66
Neither agree nor disagree 32 5.35 8.08
Disagree 17 2.84 1.99
Strongly disagree 2 0.33 0.10
Refused 2 0.33 0.10
Don't know 9 1.51 1.59
Total 598 100.00 100.00



Q24b. Decisions reached after evaluating treatment options lead to better health outcomes for patients.

  Freq. Unweighted Percentage Weighted Percentage
Strongly agree 152 25.42 31.90
Agree 327 54.68 49.52
Neither agree nor disagree 80 13.38 13.77
Disagree 22 3.68 2.83
Strongly disagree 3 0.50 0.25
Refused 2 0.33 0.10
Don't know 12 2.01 1.64
Total 598 100.00 100.00



Q24c. Decisions reached after evaluating treatment options lower medical expenses/costs.

  Freq. Unweighted Percentage Weighted Percentage
Strongly agree 72 12.04 11.84
Agree 232 38.80 32.26
Neither agree nor disagree 182 30.43 39.29
Disagree 68 11.37 10.50
Strongly disagree 17 2.84 3.32
Refused 3 0.50 0.15
Don't know 24 4.01 2.63
Total 598 100.00 100.00



Q24d. Evaluating treatment options results in unbiased information.

  Freq. Unweighted Percentage Weighted Percentage
Strongly agree 56 9.36 13.77
Agree 258 43.14 42.22
Neither agree nor disagree 150 25.08 26.85
Disagree 93 15.55 12.99
Strongly disagree 8 1.34 0.69
Refused 7 1.17 0.45
Don't know 26 4.35 3.03
Total 598 100.00 100.00



Q24e. Evaluating treatment options allows patients and doctors to make choices based on the needs of individual patients.

  Freq. Unweighted Percentage Weighted Percentage
Strongly agree 183 30.60 35.37
Agree 339 56.69 52.43
Neither agree nor disagree 30 5.02 3.82
Disagree 28 4.68 5.11
Strongly disagree 3 0.50 0.25
Refused 4 0.67 0.20
Don't know 11 1.84 2.83
Total 598 100.00 100.00



Q24f. Evaluating treatment options provides information I can trust.

  Freq. Unweighted Percentage Weighted Percentage
Strongly agree 73 12.21 18.63
Agree 303 50.67 43.66
Neither agree nor disagree 146 24.41 25.71
Disagree 43 7.19 6.84
Strongly disagree 5 0.84 1.39
Refused 3 0.50 0.15
Don't know 25 4.18 3.63
Total 598 100.00 100.00



Part G. Behavior Change/Use—Past/Current Use of PCOR Studies/Products



Q25. Do you currently use research that compares or evaluates different treatment options to help you make medical decisions?

  Freq. Unweighted Percentage Weighted Percentage
Yes 290 48.50 51.83
No 292 48.83 46.04
Refused 3 0.50 0.15
Don't Know 13 2.17 1.98
Total 598 100.00 100.00



Q26. Have you ever used research that compares or evaluates different treatment options to help make medical decisions?

  Freq. Unweighted Percentage Weighted Percentage
Yes 83 26.95 20.67
No 212 68.83 73.25
Refused 5 1.62 0.72
Don't Know 8 2.60 5.35
Total 308 100.00 100.00



Q27. When did you most recently use research that compares or evaluates different treatments to help you make medical decisions?

  Freq. Unweighted Percentage Weighted Percentage
In the past 3 months 9 10.84 7.47
In the past 4-6 months 9 10.84 16.94
In the past 7-9 months 9 10.84 11.41
In the past 10-12 months, or 5 6.02 3.50
More than 12 months ago 51 61.45 60.68
Don't Know 0 0 0
Total 83 100.00 100.00

AHRQ’s summaries of treatment option evaluations, which are written for consumers, are available from AHRQ’s EHC Program Web site. These are tools to help you understand your condition and the choices that are available to you. Consumer summaries provide you with the evidence that exists about the benefits and risk for each treatment choice.



Q28. Prior to this survey, were you aware of these consumer summaries?

  Freq. Unweighted Percentage Weighted Percentage
Yes 70 11.71 11.35
No 519 86.79 87.16
Refused 3 0.50 0.15
Don't Know 6 1.00 1.34
Total 598 100.00 100.00



Q29. Have you ever used one or more of these consumer summaries?

  Freq. Unweighted Percentage Weighted Percentage
Yes 26 37.14 40.16
No 44 62.86 59.84
Refused 0 0.00 0.00
Don't Know 0 0 0
Total 70 100.00 100.00



Q30. I am going to read some statements about these consumer summaries. For each statement, tell me whether you strongly agree, agree, neither agree nor disagree, disagree, or strongly disagree.

Q30a. In general, these consumer summaries are easy to understand

  Freq. Unweighted Percentage Weighted Percentage
Strongly agree 4 15.38 33.67
Agree 16 61.54 48.99
Neither agree nor disagree 3 11.54 9.75
Disagree 2 7.69 4.35
Strongly disagree 1 3.85 3.25
Refused 0 0.00 0.00
Don't know 0 0.00 0.00
Total 26 100.00 100.00



Q30b. You can trust the information in these consumer summaries.

  Freq. Unweighted Percentage Weighted Percentage
Strongly agree 3 11.54 30.42
Agree 10 38.46 17.42
Neither agree nor disagree 9 34.62 43.46
Disagree 3 11.54 5.44
Strongly disagree 1 3.85 3.25
Refused 0 0.00 0.00
Don't know 0 0.00 0.00
Total 26 100.00 100.00



Q31. Did you and your health care provider use consumer summaries to make a decision about your health care during an office visit?

  Freq. Unweighted Percentage Weighted Percentage
Yes 13 50.00 72.83
No 13 50.00 27.17
Refused 0 0.00 0.00
Don't Know 0 0.00 0.00
Total 26 100.00 100.00



Q32. Did you feel your health care provider was open to talking to you about the summaries so that you could make decisions together?

  Freq. Unweighted Percentage Weighted Percentage
Yes 13 100.00 100.00
No 0 0.00 0.00
Refused 0 0.00 0.00
Don't Know 0 0.00 0.00
Total 13 100.00 100.00



Q33. Where do you prefer to get your medical information from?

  Freq.* Unweighted Percentage† Weighted Percentage†
Healthcare Provider—Doctor or Nurse 479 80.10 72.95
Friend or Family 260 43.48 58.20
Person/Speaker at an event 1 0.17 0.05
Newspaper/Journal/Magazine 85 14.21 10.47
Other* 54 9.03 6.94
Self 5 2.91 1.31
Television/Radio 4 2.33 1.12
Clinic, WIC, Health Department 14 2.34 3.17
Organization 19 3.18 2.58
Poster/Flyer/Brochure 4 0.67 0.30
Total Responses 925 - -
Total Respondents 598 - -

* Wherever applicable, responses in the "Other" category were recoded into one of the existing categories.

† Respondents could choose more than one category. "Percent" is calculated as a percentage of total respondents who selected a particular category.



Q33_Spec. Where do you prefer to get your medical information from? OTHER (SPECIFY: _____________)

  Freq.* Unweighted Percentage Weighted Percentage
Anywhere That's Pertinent And Valid To The Subject 1 2.17 0.94
Books 4 8.70 3.77
Clinical Research 1 2.17 0.94
Dictionary 1 2.17 0.94
Different Sources 1 2.17 0.94
Employer 1 2.17 2.79
Federal Agency 1 2.17 2.79
From Prescription Side Effects Paper 1 2.17 0.94
Government Social Security 1 2.17 2.79
Grad From College To And Questions 1 2.17 0.94
Hospital 2 4.35 5.59
Library 3 6.52 6.53
Library Research Manuals And Periodicals 1 2.17 2.79
Library/ Books 1 2.17 2.79
Mail 2 4.35 5.59
Medical Book 1 2.17 0.94
Medical Dictionary 1 2.17 2.79
No Preferred Source 1 2.17 0.94
Other Patients 1 2.17 0.94
Pamphlets In Doctor's Office 1 2.17 2.79
Prescription Labels 1 2.17 0.94
Promotional Info 1 2.17 0.94
Radio 1 2.17 0.94
Television 14 30.43 24.30
The Library 1 2.17 20.57
Through the Mail 1 2.17 2.79
Total 46 100.00 100.00

* Only those responses in the "Other" category that could not be recoded into one of the existing response categories are included.



Part H. Behavior Change/Use—Interest in Learning More About PCOR

Q34. Are you interested in learning more about evaluating treatment options for specific medical conditions?

  Freq. Unweighted Percentage Weighted Percentage
Yes 443 46.73 50.59
No 455 48.00 45.88
Refused 13 1.37 0.68
Don't Know 37 3.90 2.86
Total 948 100.00 100.00



Q35. Are you interested in learning more about the Effective Health Care Program?

  Freq. Unweighted Percentage Weighted Percentage
Yes 500 52.74 58.36
No 407 42.93 38.57
Refused 7 0.74 0.39
Don't Know 34 3.59 2.68
Total 948 100.00 100.00



Q36. Are you interested in evaluating treatment options before making medical decisions for yourself, a family member, or close friend?

  Freq. Unweighted Percentage Weighted Percentage
Yes 664 70.04 74.24
No 247 26.05 23.80
Refused 5 0.53 0.32
Don't Know 32 3.38 1.65
Total 948 100.00 100.00



Part I. Behavior Change/Use—Intention to Use PCOR Studies/Products

Q37. Within the next year, do you intend to use AHRQ’s consumer summaries or other studies that evaluate treatment options to prepare for a medical visit or make medical decisions for you, a family member, or close friend?

  Freq. Unweighted Percentage Weighted Percentage
Yes 368 38.82 45.23
No 443 46.73 39.96
Refused 12 1.27 0.78
Don't Know 125 13.19 14.02
Total 948 100.00 100.00



Part K. Exposure to Dissemination Strategies—Publicity Center: Media and Marketing

Q38. From your earlier responses, you indicated you heard about the evaluation of treatment options from a source other than your health care provider, prior to this survey. When was the last time you recall hearing/seeing the information? Would you say...

  Freq. Unweighted Percentage Weighted Percentage
Within the last month 38 28.36 38.51
In the past 2-4 months 30 22.39 24.90
In the past 5-6 months, or 17 12.69 11.07
Over 6 months ago 45 33.58 24.24
Refused 0 0.00 0.00
Don't Know 4 2.99 1.28
Total 134 100.00 100.00



Q39. Was the information on a specific medical condition?

  Freq. Unweighted Percentage Weighted Percentage
Yes 81 60.45 68.73
No 44 32.84 28.07
Refused 1 0.75 0.21
Don't Know 8 5.97 2.98
Total 134 100.00 100.00



Q40. The information was useful to you

  Freq. Unweighted Percentage Weighted Percentage
Strongly agree 25 18.66 20.62
Agree 67 50.00 53.84
Neither agree nor disagree 31 23.13 21.07
Disagree 8 5.97 3.82
Strongly disagree 0 0.00 0.00
Refused 0 0.00 0.00
Don't know 3 2.24 0.64
Total 134 100.00 100.00



Q41. What would have made it more useful? (Open ended question)

  Freq. Unweighted Percentage Weighted Percentage
A better body 1 0.75 0.21
Anything that gives better choices for yourself or friends 1 0.75 0.21
Being something personal doctor agreed to 1 0.75 0.64
Did not feel confident about it and did not trust it 1 0.75 0.21
Don't know 31 23.13 15.34
Easier to find information 1 0.75 0.64
Feel I had more control over the choices, doctor doesn't make me feel i have that level of control 1 0.75 0.64
I need to know what doctors use it 1 0.75 0.21
I was not looking for a particular medical need 1 0.75 0.64
I'm the only one in the family that has a specific migraine, so more information and treatments of migraines 1 0.75 0.21
If god made more useful 1 0.75 0.21
If he knew sponsor of the information 1 0.75 0.21
If he would have known prior to surgery 1 0.75 0.64
If I could trust someone besides my doctor 1 0.75 0.64
If I had a condition at that time it would been helpful 1 0.75 0.21
If I had a specific condition that I needed to research 1 0.75 0.21
If I had specific question on it 1 0.75 0.64
If I was more representational of the groups studied 1 0.75 0.64
If I or a family member had the condition 12 8.96 13.20
If it was more easily accessible 1 0.75 0.64
If it had been available earlier 1 0.75 4.68
If it was relevant to a particular problem 1 0.75 0.64
If it was something I was interested in pertaining myself or family 1 0.75 0.64
If it wasn't driven by economics of medical industry, implementation stinks 1 0.75 0.64
If it would have been related to a specific topic at the time 1 0.75 0.64
If knew more about it 1 0.75 0.21
If personal condition or issue would have been useful 1 0.75 0.21
If relevant to anything I had experienced 1 0.75 0.64
Inclusion of a wider range of treatment options 1 0.75 0.64
It didn’t really pertaining to the problem 1 0.75 0.64
Just overheard a conversation 1 0.75 0.21
Just reading not a necessity 1 0.75 0.64
Knowing what's out there 1 0.75 0.64
Location because it was out of the area money 1 0.75 4.68
More definitive 1 0.75 0.64
More detail 9 6.72 2.78
More information about whether my medical health insurance would cover the costs of the procedure 1 0.75 4.68
More information, more detail about specific treatments 1 0.75 4.68
More reliable outcomes data 1 0.75 0.64
More researched and back up with more studies 1 0.75 0.21
More results driven of the individual, study comparisons 1 0.75 0.21
More studies 1 0.75 0.21
Nothing 29 21.64 27.64
One study doesn’t make it right 1 0.75 0.21
Something that you would have needed 1 0.75 0.21
Sorting out the information 1 0.75 0.64
Specific diseases 1 0.75 0.21
Talking one on one 1 0.75 0.64
Through the doctor, and reading 1 0.75 0.21
Very satisfactory 1 0.75 0.21
Was not directly related to anything just reading 1 0.75 0.64
Wouldn't rely on the website 1 0.75 0.21
Total 134 100.00 100.00



Part L. Exposure to Dissemination Strategies—Publicity Center: Virtual Centers



Q42. In the past six months, have you seen links to the E.H.C.P. web site or information comparing treatment options on a Web site?

  Freq. Unweighted Percentage Weighted Percentage
Yes 56 10.02 10.52
No 492 88.01 87.46
Refused 2 0.36 0.11
Don't Know 9 1.61 1.91
Total 559 100.00 100.00



Q43. Which Web site(s)?

  Freq. Unweighted Percentage Weighted Percentage
MD Website 1 1.79 0.51
AHRQ EHCP Website 1 1.79 0.51
Clark-Norton Healthcare 1 1.79 1.51
Don't Know 23 41.07 21.73
Dr. Orinstean 1 1.79 0.51
Dryer Medical Clinic, Web MD 1 1.79 1.51
John Hopkins and Clinics 1 1.79 0.51
Mayo Clinic website 7 12.50 27.79
Newchoicehealth Com 1 1.79 1.51
NIH Website 1 1.79 0.51
PCORI, Healthwise, Fimdm 1 1.79 1.51
Sites Depend On Illness 1 1.79 0.51
So Many: UCLA, WebMD, Depends On Topic 1 1.79 1.51
UHC.Com, Delta Airlines 1 1.79 1.51
WebMD 13 23.21 36.85
Wisertogether Com 1 1.79 1.51
Total 56 100.00 100.00



Q44. What medical condition or conditions were addressed by the information you saw?

  Freq. Unweighted Percentage Weighted Percentage
ADHD 2 3.57 12.63
Arthritis 1 1.79 1.51
Atrial Fribration 1 1.79 0.51
Cancer 2 3.57 2.02
Cancer, Sinus 1 1.79 0.51
Cholesterol 1 1.79 1.51
Chronic Bladder Infections 1 1.79 0.51
Cervical Spine Surgery 1 1.79 0.51
Dementia, Cancer, Shingles, Blood clots, Repetitive Strain Injury/Brain Injury 1 1.79 1.51
Diabetes 2 3.57 1.02
Diabetes, Congestive Heart Failure, Legal Narcotic Addiction, Alzheimer’s, Dementia, Thoracic Outlet Syndrome, Eating Syndrome, MRSA Infections 1 1.79 1.51
Don't Know 9 16.07 19.20
Dupuytrens 1 1.79 0.51
General Multiple Conditions 1 1.79 1.51
Heart Disease, Aortic Stenosis 1 1.79 0.51
Heart Health, Cholesterol, Good Life Style 1 1.79 1.51
Heart Problems, Thyroid Medication 1 1.79 0.51
Heart Symptoms, Depression, Fevers, Vomiting, Allergies 1 1.79 1.51
Hernia And Gastritis 1 1.79 1.51
High Blood Pressure, High Cholesterol, Stroke In Women, Heart Attack N Women 1 1.79 0.51
Hip Replacement Surgery 1 1.79 0.51
Hypertension 1 1.79 11.12
Inguinal Hernia 1 1.79 1.51
Knee Replacement Surgery 1 1.79 0.51
Lower Back Pain 1 1.79 1.51
Lungs 1 1.79 1.51
Mammography, Home Health Care, Back Surgery, Routine Medical Exam Dental Conditions 1 1.79 1.51
Minor Surgery 1 1.79 1.51
Orthopedic Knee, Heart Problems, Atrial Fibralation 1 1.79 0.51
Ovarian Cancer 1 1.79 1.51
Pinched Nerves In The Legs 1 1.79 0.51
Post-Polio 1 1.79 0.51
Pre-Cancerous Breast 1 1.79 1.51
Prostate Cancer 1 1.79 0.51
Rheumatoid Arthritis 1 1.79 1.51
Shattered Tibia 1 1.79 1.51
Total 56 100.00 100.00



Part M. Exposure to Dissemination Strategies—Publicity Center and Regional Office: Partnerships



Q45. Are you a member of any organization that provides you with information about health care?

  Freq. Unweighted Percentage Weighted Percentage
Yes 413 43.57 36.52
No 521 54.96 62.83
Refused 4 0.42 0.14
Don't Know 10 1.05 0.50
Total 948 100.00 100.00



Q46. Did the organization inform you about the EHCP or about the idea of research that compares or evaluates treatment options?

  Freq. Unweighted Percentage Weighted Percentage
Yes 57 13.80 16.72
No 268 64.89 67.34
Refused 7 1.69 1.46
Don't Know 81 19.61 14.48
Total 413 100.00 100.00



Part N. Other—Respondent Characteristics

Q47. What is your age?

  Freq. Unweighted Percentage Weighted Percentage
18-33 years 14 1.48 10.99
34-44 years 41 4.32 32.19
45-64 years 334 35.23 35.60
65 years or older 544 57.38 19.58
Refused 14 1.48 1.61
Don't Know 1 0.11 0.04
Total 948 100.00 100.00



Q48. What is your gender?

  Freq. Unweighted Percentage Weighted Percentage
Male 576 60.82 54.87
Female 368 38.86 44.95
Refused 2 0.21 0.14
Don't Know 1 0.11 0.04
Total 947 100.00 100.00



Q49. Are you Hispanic or Latino?

  Freq. Unweighted Percentage Weighted Percentage
Hispanic or Latino 39 4.12 6.22
Not Hispanic or Latino 880 93.02 91.35
Refused 19 2.01 2.00
Don't Know 8 0.85 0.43
Total 946 100.00 100.00



Q50. What is your race? Are you...

  Freq.* Unweighted Percentage Weighted Percentage
White 782 82.66 75.95
Black or African American 103 10.89 14.83
Asian 15 1.59 1.79
American Indian or Alaska Native 12 1.27 2.97
Native Hawaiian or other Pacific Islander 3 0.32 0.18
Other* 11 1.16 1.57
Refused 17 1.80 2.61
Don't Know 3 0.32 0.11
Total 948 100.00 100.00

* Wherever applicable, responses in the "Other" category were recoded into one of the existing categories.



Q50_Spec. What is your race? Are you... OTHER (SPECIFY: _________)

  Freq.* Unweighted Percentage Weighted Percentage
African American And White 1 9.09 2.29
American, Mix Of Everything 1 9.09 6.80
Black, Native American, White 1 9.09 50.05
European American Native Indian 1 9.09 6.80
Human 2 18.18 9.09
Human Race 1 9.09 6.80
Ingofidian 1 9.09 2.29
Mixed, Latino & Black, Mexican Indian 1 9.09 6.80
None Of The Above 1 9.09 6.80
West Indian 1 9.09 2.29
Total 11 100.00 100.00

* Only those responses in the "Other" category that could be recoded into one of the existing response categories are included.



Q51. Are you currently seeking medical care?

  Freq. Unweighted Percentage Weighted Percentage
Yes 573 60.63 49.26
No 364 38.52 50.38
Refused 6 0.63 0.22
Don't Know 2 0.21 0.14
Total 945 100.00 100.00



Q52. Do you provide care for another person with a medical condition?

  Freq. Unweighted Percentage Weighted Percentage
Yes 173 18.31 18.95
No 761 80.53 80.30
Refused 5 0.53 0.32
Don't Know 6 0.63 0.43
Total 945 100.00 100.00



Q53. Are you a member of a patient advocacy group?

  Freq. Unweighted Percentage Weighted Percentage
Yes 34 3.60 2.68
No 93 95.56 96.14
Refused 1 0.11 0.11
Don't Know 7 0.74 1.07
Total 945 100.00 100.00



Q54. Do you participate in the Medicare program?

  Freq. Unweighted Percentage Weighted Percentage
Yes 550 58.20 30.54
No 387 40.95 68.42
Refused 1 0.11 0.04
Don't Know 7 0.74 1.00
Total 945 100.00 100.00



Q55. Do you participate in the Medicaid program?

  Freq. Unweighted Percentage Weighted Percentage
Yes 131 13.86 15.24
No 798 84.44 83.22
Refused 2 0.21 0.07
Don't Know 14 1.48 1.47
Total 945 100.00 100.00



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Page originally created December 2014
Internet Citation: Evaluation of ARRA Comparative Effectiveness Research Dissemination Contract Efforts. Content last reviewed October 2013. Agency for Healthcare Research and Quality, Rockville, MD. https://archive.ahrq.gov/research/findings/final-reports/arracer/arracer-apfpt2.html

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