Evaluation of ARRA Comparative Effectiveness Research Dissemination Contract Efforts

Appendix B: Consumer Survey

Part A. Awareness—Patient Centered Outcomes Research (PCOR) Unaided Awareness

There are a many ways to treat most medical illnesses and conditions. Different treatment options have different levels of benefits and risks of side effects, as well as costs.

Q1. Have you heard of the concept of comparing health care treatments with your clinician to decide what options will work best for you?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q2. Have you heard about research that can help you compare treatment choices?

___ YES

___ NO → SKIP Part B intro

___ DON'T KNOW → SKIP TO Part B intro

___ REFUSED → SKIP TO Part B intro

Q3. Have you heard this research referred to by a specific name?

___ YES

___ NO → SKIP Part B intro

___ DON'T KNOW → SKIP TO Part B intro

___ REFUSED → SKIP TO Part B intro

Q4. What is the name of this kind of research?

RESPONDENT'S UNPROMPTED ANSWER MUST MATCH ONE OF FIRST THREE RESPONSE CATEGORIES; OTHERWISE CODE AS "OTHER" OR DON'T KNOW." PROCEED TO QUESTION 5.

___ COMPARATIVE EFFECTIVENESS RESEARCH

___ SHARED-DECISION MAKING

___ PATIENT CENTERED OUTCOMES RESEARCH

___ OTHER (SPECIFY: _________________________)

___ DON'T KNOW

___ REFUSED

Part B. Awareness—PCOR Aided Awareness

Medical research offers many ways to treat illnesses. There is research, called "comparative effectiveness research," also known as Patient Centered Outcomes Research or PCOR (PRONOUNCED "PEA-CORE"), which evaluates treatment options by comparing the benefits, risks and possible side effects.

Q5. Prior to this survey, had you ever heard about the existence of research that helps you compare the treatment options?

___ YES

___ NO → SKIP TO Part C

___ DON'T KNOW→ SKIP TO Part C

___ REFUSED→ SKIP TO Part C

Q6. How did you hear about it?

INTERVIEWER: LISTEN TO RESPONDENT'S ANSWER AND CHECK ALL THAT APPLY.

___ HEALTH CARE PROVIDER—DOCTOR, PHYSICIAN ASSISTANT, NURSE PRACTITIONER, OR OTHER

___ FRIEND OR FAMILY MEMBER

___ PERSON/SPEAKER AT AN EVENT

___ CLINIC/WIC/HEALTH DEPARTMENT

___ ORGANIZATION

___ SOCIAL MEDIA/BLOG (TWITTER or Facebook)

___ WEB SITE

___ EMAIL

___ LISTSERVE

___ NEWSPAPER/JOURNAL/MAGAZINE

___ EXHIBIT

___ POSTER/FLYER/BROCHURE

___ OTHER (SPECIFY: _________________________)

___ DON'T KNOW

___ REFUSED

Q7. How long ago did you hear about it? Would you say…

___ Within the last 3 months,

___ Within the last 4-6 months,

___ Within the last 7-9 months, or

___ More than 9 months ago?

___ DON'T KNOW

___ REFUSED

Q8. Did the information relate to a specific medical condition?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q9. Are you aware that there is research on the evaluation of treatment options for specific medical conditions?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Part C. Awareness—EHCP Awareness

The Effective Health Care Program also called E.H.C.P., funds research that compares treatments for different health conditions. Researchers work with the Agency for Healthcare Research and Quality in developing the research.

Q10. Prior to this survey, had you ever heard of "Ark," also called the "Agency for Healthcare Research and Quality"?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q11. Prior to this survey, had you ever heard of the Effective Health Care Program or E.H.C.P.?

___ YES

___ NO → If Q1 OR Q5 =YES, GO TO Part E Check.Iif Q1 AND Q5 =NO go to Part H

___ DON'T KNOW → SKIP TO Q13

___ REFUSED → SKIP TO Q13

Q12. How did you hear about it?

INTERVIEWER: LISTEN TO RESPONDENT'S ANSWER AND CHECK ALL THAT APPLY.

Part D. Awareness—EHCP Web Site Awareness

"Ark" has a web site that contains information about research that helps you compare treatment options, and the Effectiveness Health Care Program or E.H.C.P.

Q13. Prior to this survey, had you ever heard of the Ark's E.H.C.P website, which is: effectivehealthcare.ahrq.gov?

___ YES

___ NO → If Q1 OR Q5 =YES, GO TO Part E,

___ DON'T KNOW → SKIP TO PART E CHECK

___ REFUSED → SKIP TO PART E CHECK

Q14. How did you hear about it?

INTERVIEWER: LISTEN TO RESPONDENT'S ANSWER AND CHECK ALL THAT APPLY.

Q15. Have you ever visited the Effective Health Care Program web site: effectivehealthcare.ahrq.gov?

___ YES

___ NO → GO TO PART E

___ DON'T KNOW → SKIP TO PART E CHECK

Q16. When was the last time you visited the web site? Would you say …

___ In the past 3 months,

___ In the past 4-6 months,

___ In the past 7-9 months,

___ In the past 10-12 months, or

___ More than 12 months ago?

___ DON'T KNOW

___ REFUSED

Q17. Why did you visit the web site? Would you say …

INTERVIEWER: READ RESPONSE CATEGORIES TO THE RESPONDENT AND CHECK ALL THAT APPLY.

___ To learn more about Effective Health Care Program,

___ To learn more about the evaluation of treatment options, in general,

___ To learn more about evaluation of treatment options on a specific topic,

___ To download information, or

___ Some other reason? SPECIFY: ___________________________________

___ DON'T KNOW

___ REFUSED

Q18. Were you able to find what you were looking for?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q19. How many times have you visited the web site in the past 6 months? Would you say …

___ None,

___ One time,

___ Two times,

___ Three times, or

___ More than three times?

___ DON'T KNOW

___ REFUSED

PART E CHECK:

IF Q6 = MISSING THEN GO TO Q23

IF Q6 = ANY SOURCE OTHER THAN HEALTH CARE PROVIDER OR DON'T KNOW OR REFUSED, CONTINUE TO Q22.

IF Q6 = HEALTH CARE PROVIDER, CONTINUE TO Q20.

Part E. Knowledge/Understanding—Knowledge/Understanding of PCOR

Q20. You indicated that you heard through your health care provider about research that helps you compare and evaluate treatment options. Did your health care provider start the discussion about how useful comparing treatments can be?

___ YES → SKIP TO Q23

___ NO

___ DON'T KNOW

___ REFUSED

Q21. Did you start the discussion on comparing treatment options?

___ YES → SKIP TO Q23

___ NO → SKIP TO Q23

___ DON'T KNOW→ SKIP TO Q23

___ REFUSED → SKIP TO Q23

Q22. You indicated that you heard through (FILL SOURCE FROM Q6 IF Q6 = REFUSED/DON'T KNOW FILL WITH "A SOURCE") about research that helps you compare and evaluate treatment options. Do you understand how it can be useful?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q23. Do you feel you could describe this idea of evaluating treatment options to a family member or friend?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Part F. Attitudes/Beliefs—Perceived Benefits of PCOR

Q24. I am going to read some statements. For each statement, tell me whether you strongly agree, agree, neither agree nor disagree, disagree, or strongly disagree.

a. Evaluating treatment options provides information to help you make good medical health care choices. Do you…

___ Strongly Agree

___ Agree

___ Neither agree nor disagree

___ Disagree, or

___ Strongly Disagree

___ DON'T KNOW

___ REFUSED

b. Decisions reached after evaluating treatment options lead to better health outcomes for patients. Do you…

___ Strongly Agree

___ Agree

___ Neither agree nor disagree

___ Disagree or

___ Strongly Disagree

___ DON'T KNOW

___ REFUSED

c. Decisions reached after evaluating treatment options lower medical expenses/costs. Do you…

___ Strongly Agree

___ Agree

___ Neither agree nor disagree

___ Disagree or

___ Strongly Disagree

___ DON'T KNOW

___ REFUSED

d. Evaluating treatment options results in unbiased information. Do you…

___ Strongly Agree

___ Agree

___ Neither agree nor disagree

___ Disagree or

___ Strongly Disagree

___ DON'T KNOW

___ REFUSED

e. Evaluating treatment options allows patients and doctors to make choices based on the needs of individual patients. Do you…

___ Strongly Agree

___ Agree

___ Neither agree nor disagree

___ Disagree or

___ Strongly Disagree

___ DON'T KNOW

___ REFUSED

f. Evaluating treatment options provides information I can trust. Do you…

___ Strongly Agree

___ Agree

___ Neither agree nor disagree

___ Disagree or

___ Strongly Disagree

___ DON'T KNOW

___ REFUSED

Part G. Behavior Change/Use—Past/Current Use of PCOR Studies/Products

Q25. Do you currently use research that compares or evaluates different treatment options to help you make medical decisions?

___ YES → SKIP TO Q28

___ NO

___ DON'T KNOW

___ REFUSED

Q26. Have you ever used research that compares or evaluates different treatment options to help make medical decisions?

___ YES

___ NO → SKIP TO Q28

___ DON'T KNOW → SKIP TO Q28

___ REFUSED → SKIP TO Q28

Q27. When did you most recently use research that compares or evaluates different treatments to help you make medical decisions? Would you say….

___ In the past 3 months,

___ In the past 4-6 months,

___ In the past 7-9 months,

___ In the past 10-12 months, or

___ More than 12 months ago?

___ DON'T KNOW

___ REFUSED

AHRQ's summaries of treatment option evaluations, which are written for consumers, are available from AHRQ's E.H.C.P website. These are tools to help you understand your condition and the choices that are available to you. Consumer summaries provide you with the evidence that exists about the benefits and risk for each treatment choice.

Q28. Prior to this survey, were you aware of these consumer summaries?

___ YES

___ NO → SKIP TO Q33

___ DON'T KNOW → SKIP TO Q33

___ REFUSED → SKIP TO Q33

Q29. Have you ever used one or more of these consumer summaries?

___ YES

___ NO → SKIP TO Q33

___ DON'T KNOW → SKIP TO Q33

___ REFUSED → SKIP TO Q33

Q30. I am going to read some statements about these consumer summaries. For each statement, tell me whether you strongly agree, agree, neither agree nor disagree, disagree, or strongly disagree.

a. In general, these consumer summaries are easy to understand. Do you…

___ Strongly agree,

___ Agree,

___ Neither agree nor disagree,

___ Disagree, or

___ Strongly disagree?

___ DON'T KNOW

___ REFUSED

b. You can trust the information in these consumer summaries. Do you…

___ Strongly agree,

___ Agree,

___ Neither agree nor disagree,

___ Disagree, or

___ Strongly disagree?

___ DON'T KNOW

___ REFUSED

Q31. Did you and your health care provider use consumer summaries to make a decision about your health care during an office visit?

___ YES

___ NO → SKIP TO Q33

___ DON'T KNOW → SKIP TO Q33

___ REFUSED → SKIP TO Q33

Q32. Did you feel your health care provider was open to talking to you about the summaries so that you could make decisions together?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q33. Where do you prefer to get your medical information from?

INTERVIEWER: LISTEN TO RESPONDENT'S ANSWER AND CHECK ALL THAT APPLY.

___ HEALTH CARE PROVIDER—DOCTOR, PHYSICIAN ASSISTANT, NURSE PRACTITIONER, OR OTHER

___ FRIEND OR FAMILY MEMBER

___ PERSON/SPEAKER AT AN EVENT

___ CLINIC/WIC/HEALTH DEPARTMENT

___ ORGANIZATION

___ SOCIAL MEDIA/BLOG (TWITTER or Facebook)

___ WEB SITE

___ EMAIL

___ LISTSERVE

___ NEWSPAPER/JOURNAL/MAGAZINE

___ EXHIBIT

___ POSTER/FLYER/BROCHURE

___ OTHER (SPECIFY: _________________________)

___ DON'T KNOW

___ REFUSED

Part H. Behavior Change/Use—Interest in Learning More About PCOR

Q34. Are you interested in learning more about evaluating treatment options for specific medical conditions?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q35. Are you interested in learning more about the Effective Health Care Program?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q36. Are you interested in evaluating treatment options before making medical decisions for yourself, a family member, or close friend?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Part I. Behavior Change/Use—Intention to Use PCOR Studies/Products

Q37. Within the next year, do you intend to use AHRQ's consumer summaries or other studies that evaluate treatment options to prepare for a medical visit or make medical decisions for you, a family member, or close friend?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Part K. Exposure to Dissemination Strategies—Publicity Center: Media and Marketing

Q38 CHECK: IF Q5 = Yes and Q6 = ANY SOURCE OTHER THAN HEALTH CARE PROVIDER CONTINUE TO INTRODUCTION BELOW. OTHERWISE SKIP TO Q42.

If Q1=Yes OR Q5 = Yes then Q42 otherwise go to Part N (Q45)

Q38. From your earlier responses, you indicated you heard about the evaluation of treatment options from a source other than your health care provider, prior to this survey.

When was the last time you recall hearing/seeing the information? Would you say …

___ Within the last month,

___ Within the last 2-4 months,

___ Within the last 5-6 months, or

___ Over six months ago?

___ DON'T KNOW

___ REFUSED

Q39. Was the information on a specific medical condition?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q40. The information was useful to you. Do you . . .

___ Strongly agree, ___ Agree,

___ Neither agree nor disagree,

___ Disagree, or

___ Strongly disagree?

___ DON'T KNOW

___ REFUSED

___

Q41. What would have made it more useful?

SPECIFY: ____________________________________________

Part L. Exposure to Dissemination Strategies—Publicity Center: Virtual Centers

Q42. In the past six months, have you seen links to the E.H.C.P. web site or information comparing treatment options on a website?

___ YES

___ NO → SKIP to Part M

___ DON'T KNOW → SKIP to Part M

___ REFUSED → SKIP to Part M

Q43. Which web site(s)?

SPECIFY: ____________________________________________

Q44. What medical condition or conditions were addressed by the information you saw?

SPECIFY: ____________________________________________

Part M. Exposure to Dissemination Strategies—Publicity Center and Regional Office: Partnerships

Q45. Are you a member of any organization that provides you with information about health care?

INTERVIEWER, IF NEEDED: For example, the A.A.R.P.

___ YES

___ NO → PART N

___ DON'T KNOW → SKIP to Part N

___ REFUSED → SKIP to Part N

Q46. Did the organization inform you about the EHCP or about the idea of research that compares or evaluates treatment options?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Part N. Other—Respondent Characteristics

Now I am going to ask you some questions for classification.

Q47. What is your age?

CODE RESPONSE INTO APPROPRIATE CATEGORY.

___ 18-33 YEARS

___ 34-44 YEARS

___ 45-64 YEARS

___ 65 YEARS OR OLDER

___ DON'T KNOW

___ REFUSED

Q48. What is your gender?

CODE RESPONSE INTO APPROPRIATE CATEGORY.

___ MALE

___ FEMALE

___ DON'T KNOW

___ REFUSED

Q49. Are you Hispanic or Latino?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q50. What is your race? Are you …

___ American Indian or Alaska Native,

___ Asian,

___ Native Hawaiian or other Pacific Islander,

___ Black or African American, or

___ White or

___ Other? Please specify__________________________

___ DON'T KNOW

___ REFUSED

Q51. Are you currently seeking medical care?

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q52. Do you provide care for another person with a medical condition?

INTERVIEWER, IF NEEDED, PROBE: This could include close friends or a family member.

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q53. Are you a member of a patient advocacy group?

INTERVIEWER, IF NEEDED: A patient advocacy group supports patient education and assists patients with information about how to obtain the needed medical care.

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q54. Do you participate in the Medicare program?

INTERVIEWER, IF NEEDED: Medicare is a U.S. government program of hospital and medical insurance for those 65 and over and for certain disabled people under the age of 65.

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q55. Do you participate in the Medicaid program?

INTERVIEWER, IF NEEDED: Medicaid is a U.S. government program, financed by the federal, state and local governments for hospital and medical insurance for people of all ages that have certain income levels

___ YES

___ NO

___ DON'T KNOW

___ REFUSED

Q56. In a few months, we will be conducting focus groups to learn more about patients' understanding of research comparing treatment options. Based on your answers to the questions we just asked, we may want to invite you to participate I these focus groups. You would need to have a telephone and computer to participate and we would pay you for your time. It will take about 90 minutes. Would you be willing to participate if we determine that you are eligible for a focus group?

___ YES

___ NO → SKIP TO CLOSING

___ DON'T KNOW → SKIP TO CLOSING

___ REFUSED → SKIP TO CLOSING

Q57a. Can you please confirm your full name, address, and telephone number?

I have your current name as: [PARTICIPANT NAME] Is that correct?

___ YES

___ NO → TYPE IN CORRECT NAME

___ DON'T KNOW → TYPE IN CORRECT NAME

___ REFUSED → SKIP TO CLOSING

Q57b. I have your address at: [PARTICIPANT ADDRESS] Is that correct?

___ YES

___ NO → TYPE IN CORRECT ADDRESS

___ DON'T KNOW → TYPE IN CORRECT ADDRESS

___ REFUSED → SKIP TO CLOSING

Q57c. I have your phone number at:[PARTICIPANT PHONE] Is this the best phone number to reach you?

___ YES

___ NO → TYPE IN CORRECT PHONE NUMBER

___ DON'T KNOW → TYPE IN CORRECT PHONE NUMBER

___ REFUSED → SKIP TO CLOSING

Closing. Thank you for your help doing the survey. We appreciate your time.

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Page last reviewed October 2013
Page originally created December 2014

Internet Citation: Evaluation of ARRA Comparative Effectiveness Research Dissemination Contract Efforts. Content last reviewed October 2013. Agency for Healthcare Research and Quality, Rockville, MD. https://archive.ahrq.gov/research/findings/final-reports/arracer/arracer-apb.html

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