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Table 16. Data Sources for At-Risk Population Groups
|
Data Source
|
Most Recent Data
|
Geographic Detail
|
Availability
|
At-Risk Population Covered
|
Limitations
|
|
MassCHIP
|
1999-2006
|
City
|
Online
|
HIV/AIDS patients*
|
No information on severity of disease
|
|
SAMHDA
|
2005
|
County level
|
Online
|
Methadone patients*
|
Data at the county level
|
|
United States Renal Data System
|
2008
|
County level
|
Online
|
Dialysis patients*
|
Data at the county level
|
|
NHIS
|
2007
|
States are grouped in 4 U.S. Census regions:
NE, MW, S, and W
|
Requires submission and approval of
proposal, fee payment
|
None
|
N/A
|
|
National Home and Hospice Care Survey
|
Last conducted in 2007; public use data
files released in 2009
|
County level
|
Available on CD from CDC
|
Functional dependence*
IV/Infusions*
Catheter/colostomy
Oxygen/other respiratory equipment
Hospice care*
|
Limited to a nationally representative
sample of home health agencies, but not a representative sample of patients
|
|
OASIS
|
Data available within several months of
submission
|
Zip code
|
CMS approval/ DUA required
|
Functional dependence*
IV/Infusions*
Insulin-dependent diabetes
Oxygen/nebulizer use
Ventilator
Hospice care*
|
Captures only those patients in the care of
a certified home health agency
|
|
American Community Survey
|
2005-2007
|
City and town
|
Public use data files
|
Functional dependence
Cognitive impairment
|
No information on severity of condition
|
|
Medicare claims
|
Check data availability
|
Zip code
|
CMS approval/
DUA required
|
Functional dependence*
Dialysis*
Catheter/colostomy*
Schedule II controlled substances
HIV/AIDS*
IV/Infusions*
Insulin-dependent diabetes*
Oxygen/nebulizer use
Ventilator*
Hospice care*
Complex wound care
Early discharge
Specialized medical equipment
|
Captures only the elderly, and those who
have a disability or ESRD
|
|
Medicaid claims
|
Check data availability
|
Zip code
|
CMS approval/
DUA required
|
Functional dependence*
Dialysis*
Catheter/colostomy*
Schedule II controlled substances
HIV/AIDS*
IV/Infusions*
Insulin-dependent diabetes*
Oxygen/nebulizer use*
Ventilator*
Hospice care*
Complex wound care
Early discharge
Specialized medical equipment
Community programs for mental illness, developmental
delays, and cognitive impairment
|
Captures only low-income individuals;
covered services not consistent from State to State or year to year
|
* More
than one data source available.
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