688 lines
14 KiB
Text
688 lines
14 KiB
Text
HIE Assessment Codebook
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Health Information Exchange Assessment
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Codebook
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This codebook describes the variables in a dataset that examines variation in state laws relating to health
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information exchanges (HIEs). This dataset includes laws in effect on June 7, 2016. The jurisdictions selected
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for measurement are the 50 states, US territories, and the District of Columbia.
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HIE Governance
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Variable Name Question Answer Options Dataset Value
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Does the law Yes 1
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authorize No/Not mentioned 2
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implementation of a | Ambiguous 4
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G StateW statewide HIE?
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Who retains control State entity di
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over the statewide State-designated 2
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HIE’s operations? entity (SDE)
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State option to control | 3
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Not mentioned 4
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Ambiguous 5
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G StateW_Ctrl N/A 6
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If an SDE controls the Yes 1
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operation of the No/Not mentioned 2
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statewide HIE, is it Ambiguous 4
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required or authorized N/A 5
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G StateW_Ctrl_ SDE_non to function asa
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Profit nonprofit corporation?
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Does the law require | Yes 1
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HIE participants to No/Not mentioned 2
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enter into Ambiguous 4
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participation N/A 5
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agreements or
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business associate
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agreements with the
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G PartAgree HIE/HIO?
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Does the law Financial 1
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incentivize HIE Nonfinancial 2
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participation Both 3
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(excluding funds to None 4
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be spent solely on
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HIE creation or
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Incentives implementation)?
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Is there an entity Yes 1
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with oversight No/Not mentioned 2
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responsibilities for Ambiguous 4
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G Oversight the HIE?
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Is the state entity Yes 1
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authorized to No/Not mentioned 2
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promulgate rules and | Ambiguous 4
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regulations N/A 5
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G Oversight Rules pertaining to the HIE?
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G_Oversight_Resolve Is the oversight entity | Yes 1
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authorized to resolve | No/Not mentioned 2
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HIE Assessment Codebook
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disputes and/or levy | Ambiguous 4
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administrative N/A 5
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penalties related to
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the HIE?
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Does the law Yes 1
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authorize the No/Not mentioned 2
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creation of Ambiguous 4
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committees or N/A 5
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advisory boards to
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assist the oversight
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G Oversight AdvisB entity?
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Does the law require | Yes 1
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a HIE or health No/Not mentioned 2
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information Ambiguous 4
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organization to be N/A 5
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certified as a
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prerequisite to
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G_Oversight_Cert operation?
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Does the law require | Yes 1
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HIE participants to No/Not mentioned 2
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meet certain Ambiguous 4
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technical and/or
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interoperability
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G_Oversight_Stand standards?
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Does the law set Yes 1
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forth a complaint No/Not mentioned 2
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mechanism for Ambiguous 4
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patients or HIE N/A 5
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participants for
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adverse events
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G Oversight Compl related to the HIE?
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Does the law include | Yes 1
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provisions addressing | No/Not mentioned 2
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public transparency | Ambiguous 4
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of HIE activities,
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including but not
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limited to public
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participation in HIE
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policy and public
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disclosures of HIE
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policies, operations,
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G_Transparancy and activities?
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Does the law provide | Yes 1
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authority to a state No/Not mentioned 2
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entity for the Ambiguous 4
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evaluation or
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measurement of the
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G_Transparancy_ Eff HIE’s effectiveness?
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Is the HIE required to | Yes 1
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submit reports to the | No/Not mentioned 2
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public or legislature | Ambiguous 4
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N/A 5
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G Transparancy_Eff Rep
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on its operations?
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HIE Assessment Codebook
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Does the law provide | Yes 1
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authority to a state No/Not mentioned 2
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entity for auditing HIE | Ambiguous 4
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G Transparancy Eff Aud | operations? ies 5
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Does the law address | Yes et
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the ownership of data | No/Not mentioned 2
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G Ownership disclosed to the HIE? | Ambiguous |e
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Do entities Yes 1
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contributing to the No/Not mentioned 2
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HIE retain a property | Ambiguous 4
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right/ownership N/A 5
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interest over those
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G_Ownership_ Prop data?
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Does the HIE acquire | Yes 1
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an ownership interest pe mentioned -
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j ? MbDIQUOUS
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G Ownership Prop HIE See oo N/A = 5
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Variable Name
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Question
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Answer Options
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Dataset Value
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Does the law Yes, authorizes it 1
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authorize providers Yes, does not 2
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to access or authorize it 3
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contribute to HIE Not mentioned 4
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data for patient hee ow °
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Use_Provid treatment?
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Does the law Yes cl
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authorize No/Not mentioned 2
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participating Ambiguous 4
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healthcare facilities N/A 5
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to designate roles
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within the facility for
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Use Provid Desig authorized HIE use?
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Does the law Yes 1
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mandate any No/Not mentioned 2
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providers to access | Ambiguous 4
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or contribute to HIE | N/A 5
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Use Provid Mand data?
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Can the HIE be used | Yes 1
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for an advanced No 2
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directives registry? Not mentioned 3
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Ambiguous 4
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Use Provid AdvDir N/A 5
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Use_ Patient Are patients Yes, authorizes it 1
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authorized to access | Yes, does not Zz
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their HIE data authorize it 3
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electronically through | Not mentioned 4
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an HIE portal or user Ryemee :
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interface (i.e.,
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excluding patient
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HIE Assessment Codebook
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access to emailed,
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faxed, or mailed
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copies of their
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records)?
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Does the law Yes, authorizes it 1
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authorize Yes, does not 2
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bidirectional authorize it 3
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communication Not mentioned a
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between patients and Rae =)
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other HIE participants
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(e.g., communication
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between patients and
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providers regarding
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their medical
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treatment through an
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HIE portal or user
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Use Patient Bi interface)?
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Are patients Yes, request il
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authorized to use the | amendments 2
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HIE to request Yes, make alterations | 3
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amendments or Both .
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make revisions to Moyen imiein donee 6
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their data directly ae d
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through an HIE portal
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Use Patient Change or user interface?
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Does the law Yes, authorizes it 1
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specifically authorize | Yes, does not 2
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emergency medical | authorize it 3
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services (EMS) to Not mentioned 4
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access or contribute See ya 5
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to HIE data for
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Use EMS patient treatment?
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Does the law Yes, authorizes it 1
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authorize payers to Yes, does not 2
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access HIE data? authorize it 3
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Not mentioned 4
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Ambiguous 5
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Use_Payer N/A
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Does the law address | Yes, authorizes it 1
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bidirectional Yes, does not 2
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communication authorize it 3
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between payers and_ | Not mentioned 4
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other HIE participants eae 2)
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through an HIE portal
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Use Payer Bi or user interface?
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Does the law Yes, authorizes it 1
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authorize medical Yes, does not 2
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labs to convey authorize it 3
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medical test results | Not mentioned a
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Use Lab through the HIE? ce 5
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Use Research Does the law Yes, authorizes it 1
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authorize educational | Yes, does not Z
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HIE Assessment Codebook
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or other research authorize it 3
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institutions to access | Not mentioned 4
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HIE data through an | Ambiguous 5
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HIE portal or user N/A
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interface (excluding
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research requiring
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express consent for
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the use of an
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individual’s
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information)?
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Does the law Yes, authorizes it 1
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authorize employers | Yes, does not 2
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to access the HIE a ee :
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(e.g., for conveying
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the results of heeee 5
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employee drug tests
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or background
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Use Employer checks)?
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Does the law Yes, authorizes it 1
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authorize Yes, does not 2
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pharmacists and authorize it 3
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pharmacies to access | Not mentioned 4
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the HIE (e.g., for the eae 5
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purposes of
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executing
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prescription drug
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orders and
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documenting other
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pharmaceutical
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Use Pharm care)?
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Can the HIE be used | Yes, authorizes it 1
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for prescription Yes, does not 2
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monitoring purposes | authorize it 3
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by prescribers and Not mentioned oy
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those dispensing aes >
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Use Pharm PDMP prescriptions?
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Does the law address | Yes, authorizes it 1
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the use of HIE data Yes, does not 2
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for marketing or authorize it 3
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other commercial Not mentioned 2
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purposes (excluding Nae 5
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marketing or
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commercial purposes
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requiring express
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consent for the use of
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an individual’s
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Use Marketing information)?
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Does the law Yes, authorizes it 1
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authorize state and Yes, does not 2
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local health authorize it 3
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authorities to access_| Not mentioned a
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Ambiguous 5
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Use_ PH
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the HIE?
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N/A
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HIE Assessment Codebook
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Does the law address | Yes, authorizes it 1
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HIE bidirectional Yes, does not 2
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communication authorize it 3
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between public Not mentioned 4
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health authorities Se 5
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and other HIE
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participants through
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an HIE portal or user
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Use PH Bi interface?
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Can the HIE be used | Yes 1
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for prescription drug | No 2
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monitoring? Not mentioned B}
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Ambiguous 4
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Use PH PDMP N/A Is
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Can the HIE be used | Yes 1
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for case reporting? No 2
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Not mentioned 3
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Ambiguous 4
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Use _PH_CaseReport N/A 5
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Can the HIE be used | Yes 1
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for immunization No 2
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reporting? Not mentioned 3
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Ambiguous 4
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Use _PH_IIS N/A 5
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Can the HIE be used | Yes 1
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for syndromic No Z
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surveillance? Not mentioned 3
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Ambiguous 4
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Use PH SyndSurv N/A 5
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1
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2
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3
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4
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5
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Use_StateAgency
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Does the law
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authorize any other
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state agency or
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entity (other than
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public health) to
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access the HIE?
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Yes, authorizes it
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Yes, does not
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authorize it
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Not mentioned
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Ambiguous
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N/A
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Does the law address | Yes, authorizes it cl
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bidirectional Yes, does not 2
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communication authorize it 3
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between these state | Not mentioned a
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agencies and other A egaa se 5
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Use StateAgency Bi HIE participants?
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Does the law Yes, authorizes it 1
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authorize the Yes; does not Z
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collection of data on | authorize it 3
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healthcare operations | Not mentioned a
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and quality through iene 3
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Use QM
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Variable Name
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the HIE?
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Question
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Answer Options
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Dataset Value
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HIE Assessment Codebook
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confidentiality related
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to HIE data?
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Does the law have mes 1
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patient notice No/Not mentioned 2
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requirements Ambiguous 4
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(excluding patient- N/A 5
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initiated requests for
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information, such as
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a request fora
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medical record
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Data PtNotice access audit log)?
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...of the content of Yes 1
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data collected or No/Not mentioned 2
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released by or Ambiguous 4
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Data_PtNotice Collect through the HIE? N/A >
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...of the entities with | Yes 1
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access to HIE data? No/Not mentioned Z
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Ambiguous 4
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Data_PtNotice_ Entities N/A 5
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...of the purposes for | Yes 1
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which patient data No/Not mentioned 2
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can be Ambiguous 4
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Data PtNotice Purpose | disclosed/used? N/A 5
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Is there a procedure | Yes 1
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for correcting or No/Not mentioned 2
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removing HIE data? | Ambiguous 4
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Data_Correct N/A 5
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Does the law vary on | Yes 1
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data protection No/Not mentioned 2
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requirements for Ambiguous 4
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query-based and N/A 5
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point-to-point HIE
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Data_HIEType functions?
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Does the law require | Yes 1
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privacy protections No/Not mentioned 2
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for the HIE (excluding | Ambiguous 4
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direct reference to N/A °
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state or federal
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Data_Privacy privacy laws)?
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Does the law address | Yes 1
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privacy violations or | No/Not mentioned 2
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breaches? Ambiguous 4
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Data_Privacy Breach N/A 5
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Can participating Yes 1
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patients restrict No/Not mentioned 2
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certain health Ambiguous 4
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information from N/A -)
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being disclosed to
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the HIE or restrict
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certain accesses or
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Data_Privacy_PtRestricti | uses by HIE
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ons participants?
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Data Privacy Consent Is patient consent Opt-in 1
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HIE Assessment Codebook
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required for Opt-out 2
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disclosure of patient | Voluntary (not 5
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data in the HIE? specified) 4
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No/Not mentioned 5
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Ambiguous 6
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N/A
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Can patients change _ | Yes 1
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: their consent No/Not mentioned 2
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Data_Privacy_Consent_C preference? Ambiguous 4
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hange N/A 5
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Is there an exception | Yes if
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to the consent No/Not mentioned 2
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Data Privacy Consent_E | requirement in Ambiguous 4
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merg emergencies? N/A 5
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Are there specific Yes it
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consent No/Not mentioned 2
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Data Privacy Consent_M | requirements for Ambiguous 4
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inors minors? N/A 5
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Does the law address | Yes 1
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administrative, No/Not mentioned 2
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technical, or physical | Ambiguous 4
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safeguards to secure N/A 5
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HIE data (excluding
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direct references to
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state or federal
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Data_Security laws)?
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Does the law require | Yes 1
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HIE users to receive beat mentioned 7
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j iN ? MmMbDIQUOUS
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Data Security Training roa aL N/A 5
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Does the law require | Yes 1
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minimum encryption | No/Not mentioned 2
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standards of HIE data | AMbiguous 4
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(excluding general N/A 5
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references to
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interoperability
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Data Security Encrypt standards)?
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Does the law require | Yes 1
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minimum standards | No/Not mentioned 2
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for authentication of | Ambiguous 4
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Data Security Authent | user identity? N/A 5
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Are there express Yes 1
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duties for providers | No/Not mentioned 2
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or other HIE users to | Ambiguous 4
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protect patient data N/A 3
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from unauthorized
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Data_Confid accesses/disclosures?
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Are there provisions | Yes 1
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addressing No/Not mentioned 2
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subpoenas or other | Ambiguous A
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judicial court orders | N/A 5
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Data_Confid_ Subpoena for HIE data?
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Data_Confid_FOIA Are there provisions _| Yes 1
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HIE Assessment Codebook
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Data Confid Sensitive
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addressing public No/Not mentioned 2
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access requests of Ambiguous 4
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HIE data? N/A 5
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Does the law provide | Yes 1
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heightened No/Not mentioned 2
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protections for Ambiguous -
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N/A 5
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sensitive health
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information (e.g.,
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mental health
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information, genetic
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information, HIV test
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results)?
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Funding
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Variable Name Question Answer Options Dataset Value
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Does the law address | Yes 1
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HIE funding? No/Not mentioned 2
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Funding Ambiguous 4
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Does the law specify | Yes 1
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funding sources to No/Not mentioned 2
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cover initial HIE Ambiguous 4
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implementation N/A 5
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Funding Implement costs?
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Funding Implement_ST State resources True/False
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Funding _Implement_Fed Federal resources True/False
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Funding Implement_Priv Private contributions True/False
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Funding Implement_Fee Participant fees True/False
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Does the law specify | Yes 1
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funding sources for No/Not mentioned 2
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long-term Ambiguous 4
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Funding Longterm operability? N/A 5
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Funding Longterm_ST State resources True/False
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Funding Longterm Fed Federal resources True/False
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Funding Longterm Priv Private contributions True/False
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Funding Longterm Fee Participant fees True/False
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Liability
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Variable Name
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Liability
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Question
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Does the law provide
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immunity from
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liability for the
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HIE/HIO or its
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participants?
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Answer Options
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HIE
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Healthcare provider
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Both
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No/Not mentioned
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Ambiguous
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Dataset Value
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ABWNFH
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Interjurisdictional Exchange
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Variable Name
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Question
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|
||
Answer Options
|
||
|
||
|
||
Dataset Value
|
||
|
||
|
||
Interjurisdiction
|
||
|
||
|
||
Does the law address
|
||
the exchange of data
|
||
across state borders?
|
||
|
||
|
||
Yes, authorizes it
|
||
Yes, does not
|
||
authorize it
|
||
|
||
Not mentioned
|
||
Ambiguous
|
||
|
||
|
||
1
|
||
|
||
|
||
2
|
||
3
|
||
4
|
||
|
||
|
||
HIE Assessment Codebook
|
||
|
||
|